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Post by cherry on Dec 20, 2010 8:54:26 GMT -5
I don't know if anyone finds this an issue. I find it hard to go to the loo, and have just realised it is patterned around my sister's cycles.. It requires a bit of effort (I am careful not to strain and cause myself any injury) and a lot of patience and manouvering of my hips and legs. I don't always feel like I've finished which is not normal for me at all, usually I vacate no problem and feel better for it. But I get the feeling like I'm squeezing the toothpaste tube from halfway down. I've had IBS type issues related to my endo before, and since I recovered from my surgery last year have been relatively issue free. I have a healthy bowel, no constipation or loose stools unless I've eaten or taken something that causes these issues for me. Go at least once a day, usually 3 times if I'm eating very well. I don't have periods often atm, taking the pill with the advice of my gynae to just break for a period whenever I start spotting. So leading up to and during my sister's periods I have these problems. I've also noticed that I will know all day that I've not been (discomfort with a full bowel but no 'need' to go) to the loo, but then I need to go, and I need to go RIGHT AWAY like all of a sudden I realise I've been holding out all day like I'm coming home from a camping trip. Given the daily pain that I'm in currently, a full bowel and sudden painful urge to go is just making me grumpy. Last night I suddenly needed the loo and it was the longest 10 minutes of my life, waiting for my sister to get out of the shower. I'm literally just making the connection to my sister's periods now, and also the fact that I had my rectum freed up of endo during my last lap, I'm acutely aware that the endo being removed from my bowel and then from my rectum are possible causing this trouble. Wanted to know if any part of this is familiar to anyone? Sorry if it was TMI but with endo and bowel trouble I think it's better to be safe/gross than sorry/obstructed!
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Post by Shannon Elizabeth on Dec 20, 2010 11:10:58 GMT -5
Cherry I can almost echo every single word you said. I haven't seen any pattern in when mine does or doesn't happen, however it does require a lot of effort moving around and such like you say, and the patience of a saint! Other times, like you said, its like all the sudden you need a loo and you need it now! My brother is always taking showers that seem to last a lifetime, or I get on the telephone with someone and its like, oh god, and I have to create some excuse why I have to leave cuz otherwise I'm going to go in my pants. Something else I've noticed lately, is my body is not processing what I put into it. I have a cold and I always have major congestion so I take a prescription decongestant so that my head doesn't swell up like a balloon. Well, the other day I noticed they weren't working right. Lo and behold, next time I went #2 there was my pill. And also some of my fruits and veggies haven't been breaking down either. Like they go thru me way too fast (I have way more bowel movements in a day than the rest of my family, but sometimes I feel like its just one giant bowel movement because I never feel fully finished). So this is kinda strange and slightly disconcerting. But I totally agree with you...talk about it. I always feel its hard to talk about this stuff with anyone, but here I'm not alone!
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Post by hellsbells on Dec 20, 2010 13:14:07 GMT -5
I seriously, seriously struggled this morning. Some if actually got 'stuck' and wouldn't move. I have my period.
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Post by pretty on Dec 20, 2010 14:03:21 GMT -5
My surgeon told me my issues with BM's were due more to my pelvic muscles spasming tight than to any actual digestive issues.... just to add some confusion.... Before surgery, I had to physically push on my butt with a wad of tp to get them to start out, then they would come out ok... until the next one. Almost felt like I had to be full up before I could even get it started. Stool softeners and quitting coffee helped. I was over dependent on caffiene to get things going.... but caffeiene dehydrates and constipates too.... so there's something...
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Post by gemstone on Dec 20, 2010 15:18:19 GMT -5
I have major bowel problems but then I have most likely have endo in my bowel and possibly in the rectal wall all the way through to the vagina. I haven't been in 3 days (edit to say I just went a little bit!), but have the sudden urge you talk about all the time, even when I am feeling well. I usually go between 2 and anywhere up to 8 times a day and this is normal for me now. I totally get the 'effort' thing you talk about - a lot of balancing my legs on the bath etc! I tend to get the 'I have to go now, this minute, exactly right now!' thing you talk about, but when I go I'm waiting around for a bit and then it's often nothing much and I don't feel relived. However I do find that when I do finally go, providing I vacate fully, the pain tends to ease up a bit. I also have to go immediately after eating, so have to plan when I eat very well! If it's a new thing then best to get it checked, but after 5 years of this, you already know this
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Post by katiev on Dec 20, 2010 16:25:30 GMT -5
I have the same problems when I am not eating properly. Constipation and pain is terrible. Sometimes I think I may give birth to a baby I didn't know I was pregnant with! When I'm eating well its always a mad dash to the loo. When eating well I go a least 3 to 5 times a day which is way more than anyone else in my family. I always thought my endo pains are related to going #2 because when I have endo pain I feel a little better even just sitting on the loo. I guess sitting that way relieves pressure or something.
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Post by cherry on Dec 20, 2010 17:43:20 GMT -5
It is new yeah I didn't have major bowel issues last time just being unable to eat which didn't correlate as I was pooping? I usually have a good bowel habit, always check my poops and haven't been constipated in a long while. Around Nat's period my bowels are looser still which is something I have always had with periods; so with this 'not being able to poop properly' issue I've found a lot of the time I have little rabbit poops, which is worse because it's soft/easy to pass but hard for my muscles to get a grip of to push out and vacate my bowel properly. I'm going to read up on what foods actually bulk up your poop (insoluble fibre) and see if that helps. I'm relieved to hear that other people have seen this, just wish it wasn't so, I find myself wishing there was something I could prop my feet on to lift my legs higher and help get it out. I literally only just realised the pattern so the sudden urge to go and the need to do yoga poses to help me go was always bewildering before. Guess it's time for a colonoscopy and see if my rectum is in a close personal relationship with my vagina again
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Post by cherry on Dec 21, 2010 15:38:21 GMT -5
Just to be clear I don't currently suffer with any sort of constipation, that is dealt with in other threads I think. I can only describe this as feeling mechanical in nature, like my muscles are not focused on the task. It's trange when I say it all aloud! I've been given fybogel and mebeverine to see if they remedy it. Bulk it out and make my muscles behave is the idea. I didn't have enough time to explain everything, it's difficult to do so when you're seeing different GPs and have only a short time slot to talk it through. I don't remember what I've told to who! I'm writing everything down to discuss with the gynae. Given my past experience with endo on the outside of my bowel and on the rectum I'm tempted to assume it's that due to it responding to cycles. If it's IBS or muscles having a disco then I'd be happy as you can do something about that.
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Post by hellsbells on Dec 21, 2010 16:13:16 GMT -5
Yep, I'm the same Cher. I go pretty much every day, but it's a sensation that my rectum has gone to sleep and there's just no power there to push it out. Sometimes I get the same sensation when passing wind, gotta proper squeeze it out!
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Post by cherry on Dec 21, 2010 16:43:54 GMT -5
Did you tell your doc hels? What did they say? This fybogel is interesting! My mum used to get all dramatic saying it was disgusting (she messed up her bowel with abuse of opiate painkillers) but I don't mind it at all. Mebeverine never worked when I tried it before but as this is a new problem I have my fingers crossed.
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Post by hellsbells on Dec 21, 2010 16:51:40 GMT -5
Mebeverine was one of the only things my a$$hole ex doc gave me. It helped a little for a while with bloating but didn't do much. Up to now my gynae has put the bowel issues down to IBS :-(. Movicol has been the best thing for me. And my TENS machine also helps loosen things up. Remember a while ago I mentioned Motilium? That was good, but pricey OTC. My bowel issues got much better the longer I was on Provera, but it's all going a bit pear shaped again now. I KNOW I need to go, it's just bloomin hard work. Almost had me reduced to tears sitting on the loo some days. I would have been on time for work yesterday had it not been for getting stuck!
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Post by cherry on Dec 21, 2010 17:40:14 GMT -5
My tens was my saviour but these new issues... it soothes me but doesn't help with the deep pain and the pain in my back and hips and legs. Can you get your doc to prescribe you the motilium in bulk? Like 100 at a time or something? That would be great if you could work that out! I can't believe it made you late that's terrible. I've just taken a throw my hands in the air approach to it. There's no big pain and as yet no adverse effects like my skin getting bad so I try not to let it get to me, thought it feels strange when I do try to put some effort in. It's just bloody annoying that a 5 minute job is now a 30 minute yoga class on the loo haha! I am worried now about my doc's understanding of endometriosis though. She listens, genuinely cares and discusses rather than tells you, but she didn't seem to pick up on the correlation between my period and the issues with my bowel. I'll save that for the gynae I guess. A lot is hinging on that now, I am really nervous about it.
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Post by katiev on Dec 21, 2010 20:52:44 GMT -5
I think most docs have no idea about endo unless they are gynos or specialists. I still can't believe that most docs don't even recognize endo symptoms! Blows me away!
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Post by hellsbells on Dec 22, 2010 11:54:37 GMT -5
My gynae always separates my endo and bowel issues - as IBS.
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Post by cherry on Dec 29, 2010 7:19:54 GMT -5
Yeah my GP doesn't see the connection because as someone else has said, they literally seem to know nothing of the disease. When I told the gynae she said she wanted to know how the mebeverine and fybogel went as she thinks with my history that endo is possible cause. a Week in and I'm not at all thrilled with this treatment I have gas pains and though the first day the extra bulk from the fybogel was great, I'm finding now that it's giving me constipation type problems, it's making my inability to go worse (I honestly thought it would be better!) and as a result I have even more trapped wind. I expected some disruption but a week in and feeling worse...well I'll give it til Friday. But last night I could feel that I still needed to go and ended up making myself dizzy with trying to get it out. Sorry for the tmi. I am very unhappy with going once every other day it's not right and it can't be helping with the abdominal pain that I'm carrying poo luggage all day!
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