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Post by ouchy on Apr 6, 2007 16:55:36 GMT -5
I have also noticed that these last few cycles I would purposely wait to use the restroom until the pain let up because it was less painful. I've done that for years.
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Post by AussieBird on Apr 6, 2007 21:11:00 GMT -5
How are you feeling now, angelas?
Stina, your trials sound challenging!I think magnesium can help with that?
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rio
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Post by rio on Apr 7, 2007 10:30:58 GMT -5
I have had this fleeting but excruciating pain in the rectum/bowel on and off since my teens - a long time ago! You're so right about how it affects your facial expression - I think I deserve an Oscar for the times it's happened when having a conversation! I didn't realise it was another endo symptom - I shall add it to my list to take to the gynae dr as I haven't been diagnosed yet. Thank you all so much for sharing.
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Post by angelas on Apr 7, 2007 13:00:28 GMT -5
I am happy to say that today its over... no more on the toilet. The last time I had to go the blood had darkened some so I think it was starting to dry up a bit or something.
With the mucous though - I notice that throughout the month. I am so glad I am not alone here... like I said at the beginning, I know its not something we like to talk about, but I'm really glad we have. It makes so much more sense now!! I think we are now armed with a little more info for the next time that we all see the doctors! Now I just hope that my surgeon is well equipped and ready to take the time to REALLY look at EVERYTHING!!
As for the bleeding... I've read that in the case of endo it could be that the endo has possibly made it through the wall of the bowel. In my case I hope it was just from too much passing too fast.
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Post by puddleduck on Apr 8, 2007 15:40:10 GMT -5
Hi there,
Just wanted to add that any bleeding or mucus from the bowel that happens at times during the month other than during a period should be mentioned to a doctor. There are various causes of this and any GP worth their salt will want to do a rectal exam, ask you to put in stool samples and possibly also send you for tests such as sigmoidoscopy, barium enema and colonoscopy to rule out causes such as : colitis (there are different type such as mucus colitis, infectious colitis and ulcerative colitis), diverticulitis, polyps, haemorrhoids, fissures, Crohn's Disease, endometriosis in the bowel and malignancy (rare in people under 45). Once they've exluded all this they can make a diagnosis of IBS, but never before.
I say this in all seriousness because I have a family history of bowel cancer, and I believe my grandmother most probably died from embarrassment through not wanting to discuss her symptoms with the doctor.
All the best,
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Post by angelas on Apr 9, 2007 9:35:57 GMT -5
You are totally right about the seriousness of this type of issue. I am definitley going to mention it to my doctor just incase.
I have one more question though... when it comes to endo and the bowel, is it possible for it to be inside the bowel, but none on the outside??? Has anyone ever had this?
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stina
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Post by stina on Apr 14, 2007 14:53:21 GMT -5
Aussie Bird - Thanks for the tip on Magnesium...I will keep that in mind.
Puddleduck - I agree on the seriousness of it as well. My Aunt was diagnosed with Crohn's about 10 years back and she had the same problems I have right now. I have had a colonscopy done and many, many rectal exams done. I bring it up to my DR about every year or so to re-evaluate just in case I do end up with Crohn's.
Angelas - As per my RE, she did state that endo along the bowel wall can go through. As for me, the MRI and the colonscopy all came back saying that it had not gone through yet so they have stated that the blood that I have with stool and muscus is from the mass straining against the bowel wall. I personally have opted not to do surgery to remove it as the risk rate of getting a fisula from it is 1 in every 20 surgeries.
As for everyone else, this advise is amazing...thank you so much.
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Post by itstonic on Apr 30, 2007 19:10:59 GMT -5
I usually call when this happens an "Endo attack". I hated them with a passion. I have had sooo many tests done that I felt so violated afterwards. And the best the doctors could do was "IBS, maybe". So I stumbled onto a solution by accident. I get yeast infections while taking antibiotics and had to take antibiotics over a course of a few weeks so the dr told me to take acidophilous. So I did and noticed after a couple of weeks that my stomach and bowel problems eased. So now I've been taking it daily for about 5 months and it has been a lifesaver. I'm not in the restroom constantly. I can actually go out and have a life and not worry about where the bathroom is. Now I did stop taking it due to me forgetting to buy a new bottle and the pain came back. So I guess I have to take this for the rest of my life, but considering how it helps me I have no problem. You can find it in the vitamin aisle. It's not expensive, make sure to read the label to see if you have to refridgerate it and make sure to ask your doctor to make sure it's ok and doesn't mess with any other medication. I have recommended this to friends with IBS and endo and they have had great results. I hope this helps others because I hated being chained to the bathroom. I just can't believe that I found this out by accident!
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Post by irishmuse on May 9, 2007 15:27:05 GMT -5
Thanks for this thread!
I get the sharp pains in my abdomin, the pains in my rectum, and the weird "poops", too! The gynecologist and GP think it's endo on my bowel, but I'm also going to a GI to be tested for Chrons and IBS, just in case.
I get HORRIBLY constipated, and often have to take laxatives (even eating extra fiber, and any other stuff to "get it moving" doesn't work). At other times, it's constant diahhrea.
I've also gotten the mucous, and a bit of blood on occasion (but only when I wipe).
ARgh! So frustrating!
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Post by scarletmoon on May 25, 2007 20:58:49 GMT -5
Angela...I havent posted on this board in awhile, but I just read your thread. At the beginning of this month, I have had one of the worst periods yet. And as far as the painful bowel movements...I know exactly what you mean. Mine started right after I had a tall glass of milk. I have decided I cant do dairy anymore while on my period. I started around the 3rd of this month, and am due to start again around the 29-30. So I plan to stop eating or drinking dairy about right now. But...back to my milk story...about 30 min. later...I began to have the worst cramps..Im assuming both bowel and menstrual cramps...anymore, sometimes I cant tell the difference. Like you...I felt like I needed to go, and couldnt for the longest time. All the while feeling like someone was twisting and cutting my insides. When I finally did go...I thought I was going to pass out. For the first time ever my worst fear came true. I had to grab the trash can to throw up, while I was on the toilet. Gross I know...but it happened. After several rounds like that...I ended up spending the better part of 3 hours either on the toilet or on the bathroom floor with the trash can in front of me. All because I craved milk that morning. Pay attention to what you are eating...Im praying that if I try to drink more water, less caffeine, no dairy, that Ill be better this time.
Ann
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Post by ouchy on May 25, 2007 21:04:25 GMT -5
scarlettmoon, good to see you posting again. Have you tried psyllium husk? My intestines have been twisted and tacked in weird places from the endo and freed up by a couple surgeries, but it always seems to attack them again. Anyway, I found a lot of relief from using psyllium husk. It makes bowel movements a LOT easier.
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Post by scarletmoon on May 29, 2007 11:44:55 GMT -5
I havent tried that no....but my sister gave me a list of things to take, which I need to get soon! Im trying to find someone who does acupunc**ture as well. Also, since I first joined this board I have been on, and finished treatment with hormone therapy and it didnt work. But Ill start a new thread on that.
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Post by marshmellow on May 31, 2007 12:59:54 GMT -5
Thank you, Thank you, Thank you! Although this topic can be a little hush hush I am SO glad you have posted! I never put it all together. I have been having trouble with Bowel movements and my Bladder for years. I have had the mucus , diarrhea and what feels like menstrual cramps with my BM's and like so many of you it is worse before and during my period. It has been so bad that I actually try to lift myself away from the toilet.. not to mention the sweats and tears. Once I started doing some research on all of this I was able to connect all of my problems. This is actually what made my OBGYN send me to see a surgeon to have a lap.. Pre-Op is tomorrow. Eventhough I haven't been keeping a journal of when, what..etc. Is this something that should be stressed in a Pre-Op?
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Post by ouchy on May 31, 2007 13:11:46 GMT -5
hi, marsh! DEFINITELY stress it! It could be an indication of endo on the bowels. Also, interview your doctor about his/her skills at removal of endo from the bowels just in case that is what you have. Some doctors are actually not confortable with operating on the bowels themselves, so then an additional surgery with another surgeon has to be scheduled. I got lucky and had it done all at once, endo on the uterus, endo on the bowels, etc. Be sure to also discuss what will be done whether or not you have endo on your appendix--would your doctor want to remove it or not. Also, check out this thread "Things to Ask Your Doc Before Having a Lap." cjlevett.proboards33.com/index.cgi?board=surgery&action=display&thread=1149454617
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Post by marshmellow on Jun 1, 2007 15:04:11 GMT -5
Well I had my Pre-Op today and went into detail about my painful BM's and the Dr. really seemed to shrug off the symptoms. He told me not to focus on the " Exotic Endo" and only about 10 patients out of 1000 have endo on thier bowels. He also said that there was no need to do the cleansing of the intestines before the surgery. He said that if he finds it on my bowels he will have to go back in another time.... it seems silly to me not to take this step and be pro-active... what are your thoughts or experience with your Dr's when you made them aware of the painful BM's???
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