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Post by painttheseconds on Dec 11, 2011 18:00:40 GMT -5
I hope you are ok Kristin. That sounds absolutely awful. I hope you decide to make a Dr.'s apt.
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Post by JC on Dec 11, 2011 18:14:24 GMT -5
Oh GOD Kristin! That sounds horrid! Listen to your body. You know when it's time to go to the hospital.
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Post by 1234 on Dec 11, 2011 18:55:05 GMT -5
thanks you all--I've been better now for several hours. I was quite literally trying to decide whether I should put on something other than the "pajamas" I was still wearing (a pair of little kid yoga pants, and a large tshirt of my husband's--sexy) to go to the ER or just go looking like a hobo, when the pain eased up. It's been better for several hours now, so I don't know? I had lots of really intense pain before my last period too--that's when I fainted and quit working at the shop.
I suppose I'll try to find a doctor to go to. I'm just so used to going to doctors and saying I'm in pain and being ignored. And the thing is, I know from seeing Dr. Belizan that I have LOTS of endo growing all over the place, and a very inflamed large intestine, particularly on the R side, so I feel like all of the pain is explainable. If I have this again, I'll go to the ER.
Jenaya, I was wishing you still worked at WHC. I would TOTALLY have gone!
Thanks for all of the support. Today's been a doozy. But I have (other than those horrible hours) had a really wonderful restful weekend with my husband, so that's been really good! I love winter sunlight, and we went down to the Bay in southern MD yesterday, to see winter sun on the Potomac/Bay.
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Post by semicolon on Dec 11, 2011 21:30:52 GMT -5
This is no good, RM! Have you had a CT scan to make sure your bowels aren't doing anything crazy? Hmm, that pain would probably be on the left...regardless, I hope you continue to feel better. I'm glad it didn't ruin the whole weekend.
My rule is if you no longer care what you look like its time for the ER. When I didn't bother to put on a bra, and didn't care about it, it was clearly the right choice (I had been booting for six hours so that really wore down any sense of attractiveness I once had!). And I rode there with a big blue mop bucket on my lap, which the ER tech found hilarious.
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Post by JC on Dec 11, 2011 22:34:00 GMT -5
You have so much endo going on I just don't want it to get too far. Have you considered another lap? Kind of a crappy thought but with inflamed bowels and endometriomas, I don't know how you handle all that pain  |
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Post by JC on Dec 11, 2011 22:34:53 GMT -5
I had another allergic reaction to something and I have no idea what the f**k it is this time. I broke out into all these damn welts all over my back and I don't know what caused them. How the hell does this stuff just spontaneously happen!?!?  Attachments:
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Post by danniv on Dec 12, 2011 5:56:18 GMT -5
RM - i hope you are feeling better. let us know what the docs say
Jenaya - Holy moly, should u have pressed up against some kind of shrub. there is this tree and if i touch or get remotely close to it i develop hives?
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Post by JC on Dec 12, 2011 6:50:35 GMT -5
I didn't step foot outside of my house all weekend. I was studying in my little room and my back started to itch. I went to the bathroom and looked at my back in the mirror and saw all that!
This morning I woke up with my lips swollen. UGH. I don't know what the hell I'm allergic to now! Whatever caused that has potential to be quite dangerous since it caused my lips to swell. I need to see my doctor but I don't have time! I'm in finals right now! It figures that my health would f**k with me now. Of all times... ANNNDD I have ANOTHER bladder infection.
I need to just stock up on benedryl until I can get to my doctor. I was supposed to see an immunologist a long time ago and never did. Now I REALLY need to see one. I'm f**king broke. I can't afford another doctor.
GOD I'M SO FRUSTRATED!!!!
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Post by 1234 on Dec 12, 2011 7:05:06 GMT -5
good lord Jenaya, I'm sorry. I actually can have allergic reactions just from stress--like when my entire leg broke out after I got hit by the bus. Did you change detergents?
BTW, sexy back!
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Post by hellsbells on Dec 12, 2011 7:56:32 GMT -5
I'm thinking it could be stress J. You've got so much on your plate right now x
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Post by 1234 on Dec 12, 2011 9:15:17 GMT -5
Eczema is a skin allergic reaction that can be produced by stress,and it's worst in the winter b/c skin is drier. I get it all the time. not fun . I hope the itching gets under control... And also wanted to day, I would definitely have another lap, but if all that stuff grew back so quickly, I don't see what good it would do me now. As long as I can still poop, I assume that I don't have a bowel obstruction, and so I'm just hanging on, hoping the acupuncture will make enough changes that when I do have a lap, less stuff will grow back, and grow back more slowly. |
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Post by JC on Dec 13, 2011 7:12:53 GMT -5
I see what you mean. It may not "cure" it but I'd hate to see it progress too far too. You'll know if/when it's time to have surgery  I just wish you could feel better. You seriously do everything right, take care of your health, eat right, and exercise. It's sad that you are having so much pain. My allergic rxn happened again last night. It's something in the room I study in. I took a benedryl and it went away pretty quickly. I just need to get through 1 more week! UGH! |
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Post by lilytoes on Dec 13, 2011 17:59:08 GMT -5
Jenaya - what terrible timing! poor thing, those welts must feel awful. Benadryl makes me soo tired I could never take it and try to be productive at the same time I am also in the middle of finals and it is really hard for me to balance everything right now.
My own rant:
I am having my first lap one week from wednesday, and I'm feeling really overwhelmed... I have a strong suspicion along with endometriosis I have pcos and celiac as well... I have felt that my pain has been increasing steadily over the last month or two - I don't go a day without lower back pain, and sex is unbearable. As I'm sure you all know it's just an awful feeling knowing something's not right. My friends and family are not being very understanding... my mom keeps comparing my surgery to her c-section and says I will be just fine. My friends keep commenting on my overwhelmingly negative attitude. My boyfriend is trying to understand why I am so upset but suggested that the pain may just SEEM worse now that I think I have endo... it's as though no one in my life can truly grasp how overwhelming it is to be 20 and in pain on top of everything else there is to worry about, like finals and law school applications and maintaining social relationships. I have several friends who are miffed at me for being so anti-social and withdrawn, but I can barely muster the energy to open a book let alone party with them. Also, it's so hard for everyone to grasp that my surgery is not a "cure" for endometriosis... they keep trying to pacify me by saying just one more week and you'll be fine! as though it is a magic bullet.
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Post by Karen on Dec 13, 2011 18:38:19 GMT -5
Jenaya, I hope you can pinpoint the welts! New detergent? Comfy study clothes? Perfume? Air freshener?
And Lily, I can totally relate. I felt the same way prior to my lap, and even after. Rest assured, we 'get' it. Your lap may not be your cure-all, but it's a step in the right direction. Once you have it, you can narrow in on what's going on, and more importantly, how to get better. It may not be perfect, and you may need to find a way to get that point across to your friends and family, but you'll get there!
If it makes you laugh, my dad compared my surgery to his gall-bladder removal (of which he was giving the nurses a hard time the day of, and out and about the next day!). He didn't give me a lot of sympathy and really pushed me the first few days to get moving and get out of the house. Totally backfired. Listen to your body, not your friends and family!
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Post by semicolon on Dec 13, 2011 20:17:00 GMT -5
Argh, really bad end to the day at work today. I hate being made to feel like a jerk and/or an idiot, but I know it will fade. I feel like so many of us are having a crappy go at life right now, I hope things get better soon.
RM- I'm worried about your bowels! Don't let it get too bad.
Jenaya & lilytoes- good luck with finals! It is tough when people just don't get it. I love the c-section comment, they are totally the same thing (because getting an endo diagnosis is totally like getting a bundle of joy you've been waiting 9 mos for!). Maybe each diagnosis of endo should come with a free puppy.
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I just wish you could feel better. You seriously do everything right, take care of your health, eat right, and exercise. It's sad that you are having so much pain.