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Post by omaklackey on Aug 24, 2012 18:48:51 GMT -5
that sounds really good! I hope she has the answer!
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Post by 1234 on Aug 24, 2012 20:18:51 GMT -5
I'm so glad, Kimmie. Take care of yourself these next few days. Sending hugs.
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Post by semicolon on Aug 25, 2012 7:47:40 GMT -5
Great, Kimmie, I'm so relieved for you! Good luck at the appt, keep us updated hon.
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Post by MustangGtGirl on Aug 25, 2012 14:10:32 GMT -5
I can't thank you all enough for your support. I am so lucky to have you guys. My support system is not that great I have a few family members by phone, my close family moved out of state in November and the family I have here well IDK. The thing I need most is a hug and the words you will be ok. I don't have that. My husband has been great but as hard as he tried he doesn't understand fully he is not a women how could he. I have totally shut down but am trying to keep pushing for help. I am scared about Wednesday but happy at the same time. I think I finally might get some help. You can not imagine how much your support means to me. Thank you so much from the bottom of my heart.
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Post by MustangGtGirl on Aug 30, 2012 15:14:39 GMT -5
I spent almost the whole day at the hospital ER yesterday. They ran a Ct did blood work, and urine test. the surgeon met me there and was considering doing surgery last night but then decided I am better off with a surgeon who specializes in this. The hard pack above the hole in my stomach is all scar tissue and she wants to make a 4 to 5 inch incision to clean it out. The CT shows the surgery track still open, and a small cyst on the left ovary. Also found blood in urine and wbc is high. She thinks my intestines may be stuck again but the only way to know is a lap. I am a little stuck here. I am in a ton of pain up by my belly button on both sides its a pulling and tugging pain and sometimes feels like a crab claw just bit me. I am so new to endo I don't know could it have re attached so quick. Any advise would be appreciated.
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Post by JC on Aug 30, 2012 18:11:37 GMT -5
Oh wow that's really scary! I think your new doctors have been treating you really well and I'm sure they will take good care of you. What made you go to the ER? What happened???
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Post by semicolon on Aug 30, 2012 20:05:30 GMT -5
Hey Kimmie, I'm so sorry for this. My bowel got restuck to my uterus pretty quickly but it was not the same really thick bands of adhesions like I had before (I've seen loads of pics from my surgeries). The difference is if you have pain or not, and since you definitely have pain you want it addressed. Adhesions can feel a lot like a pulling pain. Did you meet the new surgeon you were going to? Can you get in touch with her? How are you feeling now?
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Post by loveshoes on Aug 30, 2012 20:33:33 GMT -5
Hang in there Kimmie, you're in my thoughts!
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Post by Karen on Aug 30, 2012 21:27:56 GMT -5
Unfortunately, adhesions typically start forming within the first few days after surgery, and then over time, they get tougher and tougher. I wouldn't be surprised if that's the case with you, sadly. I hope the new surgeon can help out!
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Post by MustangGtGirl on Aug 31, 2012 16:07:20 GMT -5
Wow I have a lot to learn about Endo. I had no clue they could connect again so fast. I got an appointment with the next surgeon for Thursday. He actulally did surgery on my step mother and my Aunt so I feel comfortable going in to see him.
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Post by semicolon on Aug 31, 2012 16:50:54 GMT -5
There are many types of adhesions that can form, some hard and fibrous, some thin and sticky. It is part of the body's natural healing, it's just that when it goes a bit too far it can be painful and damaging. I work in orthopedics, if you've heard of a frozen shoulder the true name is adhesive capsulitis (adhesions in the capsule). When you have a shoulder injury or surgery, the body wants to hold things together while healing, but sometimes it does too good a job and it affects function, like lifting your arm comfortably. That's why adhesions can't necessarily be prevented (the body's just going to do it) but can be minimized by careful surgery, not damaging tissue unnecessarily, and minimizing inflammation (yeah diet if it works for you!).
Sorry for the divergence. Kimmie, good luck with the appt, sending you good thoughts.
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Post by MustangGtGirl on Sept 7, 2012 15:49:04 GMT -5
I went to the second surgeon yesterday. He feels the same way that the adhesion's are back. You were right. I have to get together with my GYNO who he said was amazing (Great to hear) and see if she wants to schedule another LAP. Do you guys advise I do this. The pain is unbearable but is it too soon?
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Post by Karen on Sept 7, 2012 17:55:04 GMT -5
It's your call on another surgery... But, something to consider with that as well is pelvic physical therapy. Surgery may create more adhesions, and PPT w/visceral or fascia release can do wonders to break those adhesions apart without opening you up again! May 7-8 sessions with a PT and I felt 10x better. It may be something to consider and discuss with your doc. Food for thought.
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Post by MustangGtGirl on Sept 7, 2012 18:59:30 GMT -5
Wow. I told you I have a lot to learn. I would have never thought adhesions could be broke apart. I am going to see if I can schedule an appointment just to discuss options. Thank you Karen.
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Post by MustangGtGirl on Sept 10, 2012 17:54:02 GMT -5
My Gyno called this morning. She is speaking with the Surgeon I saw last week. They are going to schedule a surgery together so he can fix the surgery track from my surgery in May that the CT scan showed open and filled with gas and she is going to do the lap to clean out any endo and adhesion's they both feel the colon and uterus re attached but you all know there is no way to know for sure except lap. She said its best to clean out all endo and then implant the mirena. I finally got answers ;D they are going to let me know when they can do the surgery together.
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