|
Post by JC on Jul 15, 2012 10:13:32 GMT -5
That infection is so scary. I'm really happy to hear that the infectious disease doctor is doing the right thing. I remember you said your lawyer wanted a CT scan too. Good thing you have a doctor on top of it now! Can your infectious disease doctor recommend a good general surgeon for you? It would be perfect if you can get your infectious disease doctor and general surgeon all in the same place because then they can work as a team to fight this infection.
|
|
|
Post by MustangGtGirl on Jul 15, 2012 12:41:33 GMT -5
The blood culture did not come back yet and I am still waiting for clearance from my insurance co for the CT scan.. I was told it could take up to 7 days. The two new Dr's are both out of the same hospital but not the one I had the surgery out of. I am trying to stay far away from that hospital. The ID Dr did tell me they would recommend a surgeon if needed to for the lump in my stomach. I feel so much better knowing I have her and she is helping me but I am afraid of the test results. Jenaya you told me to listen to myself and I am so glad I did it was just real scary not knowing if I was making the right choices and now I know I did. Monday will be 9 wks since the surgery and this is all taking a toll on my emotionally. Some days I struggle not to cry all day long. I hope these new Dr's are a light at the end of the horrible tunnel.
Thank you all for your support
|
|
|
Post by DeAnna on Jul 17, 2012 22:27:02 GMT -5
How are you doing?
|
|
|
Post by MustangGtGirl on Jul 19, 2012 16:58:32 GMT -5
DeAnna,
Thank you for checking in. I appreciate it.
I went to the ID Dr. today and blood work was much better except platelet count was high 444. The culture was clean thank God.She is keeping me on the Levaqin for another wk.
The CT scan shows a follicular cyst in the left adnexa. Also shows a gas containing tract extending from the abdominal wall to the skin surface in the lower pelvis. She wants me to see a Surgeon. I have no clue to be honest with you what any of that is. She said the surgeon would be able to answer those questions she did not want to answer wrong it is not her specialty. She does think it is what is causing all the pain in my abdomen. I can respect that. I would rather be told I don't know than a wrong answer. I have an appointment on Tuesday with a new Gyno/Surgeon so I will be able to find out then.
Finally some answers and progress. I don't know if the CT is good news or bad. I guess I will just have to wait to find out
|
|
|
Post by MustangGtGirl on Jul 26, 2012 15:02:20 GMT -5
I went and saw my new GYNO/ surgeon. Wow what a difference. She spent 45 minutes with me. Checked the wound and said I was smart for not getting it stitched. She is going to wait until the wound is totally closed then do another CT to check the track in my stomach. Then do another Sono to monitor the Cyst. Once she knows everything is clear and no need for another Surgery she is going to start me on mirena. It was so nice to have things explained. She even called me today to check on me and see how my pain was. It feels so good to be getting the right help. Finally!!!!! ;D
|
|
|
Post by JC on Jul 26, 2012 18:51:57 GMT -5
SO happy to hear you had a good experience! Isn't it amazing how mind blowing it is when you finally get good care? I'm really happy for you. I hope you can start to put all of this behind you now
|
|
|
Post by semicolon on Jul 26, 2012 18:58:48 GMT -5
That's great news! How are you feeling?
|
|
|
Post by MustangGtGirl on Jul 27, 2012 17:36:23 GMT -5
I am feeling so so. I am still in alot of pain, But knowing I am with Dr's that care has helped my stress level so much. I am still really down but I am dealing best I can. Thank you for being here for me girls. You are the best.
|
|
|
Post by MustangGtGirl on Aug 6, 2012 18:18:50 GMT -5
Well not only is all the pain back worse then ever but the hard pack in my stomach is getting larger again. I am still open walking around with a packed hole in my stomach. I have to go back to the ID DR to see if it needs to be drained or what the next step is. I go back to the new GYNO/Surgeon next Tuesday. I feel like I am right back were I started. I have been in pain for so long it is becoming a part of me. I just want to feel normal again. Will that ever happen? I feel so useless because I can not do anything anymore. I just gone done working two weeks straight 12 hours a day their and 5 hrs from home. the longest days of my life. I have done it before with no problem but this time was human torture. I don't want to let on to my job that I am worse then before bc then I will have to go on medical leave so I keep on a happy face sooo hard to do but it's either that or loose my house and I will not let that happen. I worked to hard for it. I keep asking what did he do to me the surgery was supposed to help me not make me worse.
|
|
|
Post by semicolon on Aug 6, 2012 20:18:54 GMT -5
I had meant to ask if you were back to working with your previous hours. That is hard for anyone to do- with or without all that you've been through. Remember, you are more important than your job and you can fight to keep your house. Any progress with the lawyers? You prob shouldn't talk about it much, dont of you can't. Good luck with the new gyn, I am interested to hear what he/she has to say. Hugs & hang in there!
|
|
|
Post by MustangGtGirl on Aug 9, 2012 16:53:16 GMT -5
Semi,
the newGyno is so great so far. She calls me to check on me and explains things to me so I understand whats going on and what the next step is.
As for work yes I am back to my crazy hours and it is far from easy. Djing is on hold until I am better, the hole is closed and the pain is gone. Right now I am in so much pain I cant do more than I have to.
I keep getting a bad pinching this week right above the bikini line. This is a new pain. The pain by my belly button is the same but stronger than before the surgery. I just hope it's not back. I need a break.
|
|
|
Post by MustangGtGirl on Aug 15, 2012 16:31:30 GMT -5
I went to my new Gyno yesterday. She did a sono to check for cysts because the pain is getting worse every day it was clear so she thinks it is from the open surgery wound being that the fever is back, and the hard lump in my stomach is back as well as redness by the surgery hole that is still draining. she had me see a surgeon today about the hole from the infection. She felt it needed to be cut open drained and stitched..
I went to him today and he wants to wait a week before he makes any decisions. He thinks we should finish letting it close then if needed re-open it and drain it. I go back to him next week. I asked him if the fluid could be causing all the pain he said he did not know.
So I really got no answers but it was the first time I saw him. It's 3 months since the surgery I am fried girls I don't want to feel sick anymore.
|
|
|
Post by 1234 on Aug 15, 2012 17:39:00 GMT -5
I'm so sorry, Kimmie. The thought of leaving that infection in there seems so unwise and frightening to me--I'm clearly not an expert, though. I just worry about it.
I'm so sorry about all of this. I know you are exhausted with the struggle of it, not to mention the pain and the long fever. I hope you turn a corner soon.
|
|
|
Post by MustangGtGirl on Aug 15, 2012 18:02:56 GMT -5
Yea I am truly beside myself. He wants it to close before re -opening it ( if necessary) to see if the infections will go away on its own as it finishes closing. He is a very well known and highly rated and recommended surgeon. I did allot of reading up on him last night after she told me to see him and checked with my Aunt who works at one of the hospitals he is associated with. I know going into another Dr's mess up can not be easy and he is probably being cautious but I want to feel better soo bad. I was really praying for a better answer or any answer. When I left the office I just sat in my car crying. I need an end to this before I loose my mind. After calming down for a few hours I can understand why he doesn't want to make any quick decisions and do respect that. I have been going through it for 3 months not including the 5 months before surgery not him he has only seen me once I have to remember that.
|
|
|
Post by Karen on Aug 15, 2012 19:28:33 GMT -5
It's hard to be patient when you don't feel the best, particularly when you are in this situation because of poor care. If it helps for perspective, these past few months are just a blip in your entire life. It's short term. Hopefully, it'll be over soon. I have to remind myself of this all the time. Though sometimes it doesn't sink in, I have to keep believing it and I hope you can, too!
|
|