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Post by Karen on Apr 17, 2012 13:05:37 GMT -5
The US has a much longer review process for new drugs... Lots more red tape!
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Post by disturbedme on Apr 18, 2012 18:17:01 GMT -5
I've got to talk to my gyn.
I don't think I am liking Micronor anymore. It doesn't suppress ovulation at all.. at least for me. And then I ovulate sooner than I would without being on this BC. And now I'm having my regular cramping after ovulation, which usually lasts up until my period... which is like at least 12 days long!!!! The first month or two on Micronor, it got rid of all of that, but it's coming back again.
It has helped my menstrual cramps during my period BIG time, but doesn't seem to be helping the cramps I have during ovulation and before my period. :-\ Plus, I would love to not have a period for a while. Unfotunately, there's not a lot of choices for me being in the U.S. and wanting to do progestin-only. I suppose I could ask my doctor about taking TWO Micronor at a time, but doubt that will go over well. Visanne isn't an option in the U.S. unfortunately. That leaves me with the Provera tablet, which I don't think is for use long term? I would be fine to do Depo Provera, but Hubby and I do plan to have a baby in a couple of years. Same goes for the Implanon. I could do that, but then that lasts for three years. Would they let you get it out of your arm before the three years is up? And I don't want to do an IUD either.
I could do Lybrel, but I'm honestly afraid to do anything with estrogen. I have this crazy, paranoid fear of using estrogen and how it can cause stroke/heart attack/blood clots. Maybe an unreasonable fear, but a fear nonetheless, so I don't want to use anything with estrogen... but if worse comes to worse, I guess I will have to.
Augh, this is all so complicated.
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Post by Karen on Apr 18, 2012 18:22:31 GMT -5
If I recall, I've read that the mini-pill doses are lighter because protestin unchecked can cause some pretty nasty side effects. The combo pill is usually tolerated better because the estrogen in them helps buffer the side effects of progestin, and progestin-only pills can have stronger side effects. Perhaps your doctor may consider a stronger progestin-only pill for you (if it exists), but be aware that there may be a trade off!
If I recall, aren't you hypothyroid? That can affect ovulation and menstrual issues, including increased pain. If you're not currently addressing the thyroid, that may also be something to look into to see if it'll make a dent in the pelvic pain. Just a thought!
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Post by disturbedme on Apr 19, 2012 11:54:52 GMT -5
Karen, I was hypo and on meds but then when I went gluten free, it got better and my thyroid was good again. Just recently though, my thyroid is a little hypo, but I believe it's because I am on Camila. I think the Camila caused it becuase it was fine until then. My doctor wants to start me on a supplement for the thyroid, so we'll see about that.
I really don't know if I'd blame the pain on hypothyroidism though as I had this pain for years before I ever even knew I had endometriosis and at the time my thyroid was fine. Let's just blame it on the evil that it is: Endometriosis. :-(
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jtean
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Posts: 119
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Post by jtean on Apr 19, 2012 12:59:25 GMT -5
I have no thyroid problems, and I also am ovulating, and having lots of ovulation pain and random cramping on this pill. It seems like the crazy periods may have ended, but I don't want to speak too soon. It definitely hasn't helped my period pain AT ALL, and I can't say if it's helped my other pain and inflammation. The past few weeks have seemed a little better, but I don't know if it's just a coincidence or if the pill is actually doing something.
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Post by Karen on Apr 19, 2012 15:57:57 GMT -5
Ah, got it. I'm not implying that thyroid issues caused the ovulation pain, but if it's not corrected, it could prevent it from getting better. And, unfortunately, BC can reduces thyroid function in some people. Just something to keep in the back of your mind. I'm glad going GF helped!
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Post by JC on Apr 19, 2012 17:54:55 GMT -5
Let's just blame it on the evil that it is: Endometriosis. :-(
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Post by disturbedme on Apr 20, 2012 10:59:36 GMT -5
Thanks, Karen. Yeah, I'm pretty sure the BC is messing with my thyroid function. My thyroid has always been a little iffy. I was always a little hypothyroid until I got on meds and then until I went gluten free did it get better, so my thyroid seems to be kind of 'swayed' easily, if that makes sense... lol
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Post by disturbedme on Apr 22, 2012 14:39:26 GMT -5
My left ovary has been bothering me since I ovulated, which was around eight or nine days ago. It's getting on my nerves and of course worrrying me quite a bit. I have a supposed endometrioma on my RIGHT ovary, so why is my left ovary deciding to be a pain in the butt now? I haven't had pain on my right side for a couple of weeks! I am thinking and hoping that maybe I ovulated from my left ovary and that made it unhappy so that caused it to have some pain since ovulation? It's not really painful, but it's twinges here and there and just general not great feelings, kind of a dull ache off and on too. Though when I push on that side, it feels full. :-\ And when I BM I have pressure on the left side like I did when I had the huge ovary on that side before my laparoscopy.
Good grief, this is no fun. And I really don't want to have to go BACK to my gyno to have another ultrasound. I feel like a hypochondriac. I've been to his office now three times in a couple of months just because of pain in my ovaries and him finding a cyst on my right ovary. I will be embarrassed to go AGAIN. Why can't I just be one of those healthy people that only go once a year?!?!!
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Post by MustangGtGirl on Apr 22, 2012 15:30:09 GMT -5
Hi,
I do not have experience with Endo but cysts I do. I had a cyst the size of a grapefruit removed on my left side and actually the pain was on my right side but there was nothing on my right side except a small 2cm cyst. My Dr explained that sometimes the smaller cysts cause more pain but the 2cm is normal around ovulation and would go away in its own which it did. I would give it a few more days.
Best of luck Kimmie
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jtean
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Post by jtean on Apr 26, 2012 14:12:38 GMT -5
Try not to get too worried about that, especially since this pill causes functional cysts. I've been getting them on both ovaries, and I know they're functional, because the pain seems to only last a week or so. Obviously you are going to be scared because of the endometrioma, but ovary pain can be caused by other more temporary things, so maybe that will ease your anxiety a little. One huge problem I am having with this pill, is that right BEFORE my period starts, I get HORRRRRIBLE cramps. Like, really really really bad, with really bad inflammation, and this is before any bleeding starts. I never had this before. Period is definitely lighter than my normal no pill period, but the cramps are awful. I'm actually considering going back to nuvaring even though it made me sick. I feel like it helped my pain way more. Very scared about taking estrogen though, because of my family history of breast cancer
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jtean
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Posts: 119
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Post by jtean on Apr 26, 2012 14:15:03 GMT -5
Also this is kind of crazy, but I knew I was about to get my period because one of the many constantly swollen lymph nodes in my joints swelled up even more and started hurting REALLLLY bad, and then the cramps came. And then a day later my period started. So weird.
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Post by disturbedme on Apr 27, 2012 20:39:21 GMT -5
jtean, I am sorry Micronor is giving you so much trouble with pain. I wish it wasn't. For the most part, I am happy with Micronor, but for some reason I've been spotting for a week and a half and have no idea why. Just aggravating. I also thought I ovulated 13 days ago, but I am pretty sure I didn't. I thought I had because whenever I ovulate my boobs start hurting/get very sore and tender. And mine did, but my basal temp in the morning really didn't raise like it is supposed to when you ovulate. Sooooo... not sure what is going on, but that's okay. I would welcome not having a period for a few months or longer. Some people who take Micronor get lucky and don't have periods, but that's only for about 50% of people and I doubt I'd be so lucky. So we'll see. My temp did go up yesterday in the morning, but I forgot to take it this morning, so I am not sure what my temp was this morning. I will have to remember to check it tomorrow morning and see if it is still raised (maybe then I ovulated a few days ago if it's still raised) or if it is down again.
I do have cramps before my period too, so I know how you feel, but I've had that even before going on the pill. I usually have cramps a week or so before my period. What a pain in the butt this disease is. :-(
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Post by disturbedme on Apr 27, 2012 20:46:07 GMT -5
And I just wanted to say thank you for reassuring me about my ovary pain. My left ovary has quieted down and gone back to my right one giving me hell. lol. They like to take turns, it seems. How about they both shut up and be happy? :-)
But you are right. I am thinking my left ovary was trying to ovulate and because of that it was causing me pain for about a week and now that I've possibly ovulated, the pain stopped on that side. I did have surgery on that ovary last August... maybe ovulating for it is still hard to do, etc. Who knows.
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jtean
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Post by jtean on May 9, 2012 16:43:41 GMT -5
Okay, so this is really weird...
As annoying as having an almost constant period has been, it has been MUCH lighter than my regular period, and in the past month things had started normalizing so my period was only lasting 5 days.
Then I had to refill my prescription and they gave me a different generic...
My period immediately came back, and this morning I woke up, got up to go to the bathroom, and a HUGE amount of blood just poured down my leg (I had a tampon in).
I'm wondering if different generics can be...different? They both have the same amount of the same drug in them, so i don't see how that could be the case, but this bleeding is crazy, and just as much or slightly more than I had before going on this pill. It seems weird that it started as soon as I started this new pack...
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