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Post by cherry on Apr 22, 2011 0:47:53 GMT -5
I think I'm a bit shocked that it was cancelled altogether as it was only given the question of being brought forward or put back in accordance with the urgency that the consultant radiologist assigned to it. I didn't hear back from the physio so that won't be until Tuesday now. They'll have to book me into the spinal clinic and move my other appt back. It's insane how many different specialities can get involved in a back pain issue, I was trying to shed some light for myself yesterday and found a list.
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Post by cherry on Apr 23, 2011 7:17:56 GMT -5
I got a letter this morning telling me to speak to my GP as I'd not attended an appointment on the 18th of April. This is code for 'you didn't come when beckoned, so we've chucked you out, please go through the whole rigmarole again, come back soon why doncha' Nobody told me about this when I called repeatedly last Thursday? I was made an appointment to come back for my MRI results, which is now not happening but that was made for May. When I called the hospital not one person told me about that and it took 3 hours of making phone calls to even find out that my MRI had been cancelled. I'm just really annoyed I expected that we were going to make progress and instead I'm going backwards. I'm literally going into that clinic on Tuesday, f**k making phonecalls again. I need help and I need to know what's going on, appointment-wise, clinic-wise and health-wise. Ok, thanks, bye. Oh and you know that there's all kinds of crap all over the internet about the differing effects that endo has on our bodies, because the medical establishment is so organised and clued up, well apparently paraesthsia in the lower abdomen (tingling, 'limb asleep' feeling and pins and needles) is an accepted symptom of endo. I'd love for someone to confirm why. I think my womb slept funny on it's fallopian tube and woke up to find it had fallen asleep so it's waiting for the feeling to come back. Joking aside, in my humble opinion it's definitely to do with endo's freaky habit of growing it's own blood supply and messing with our nerves in various ways.
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Post by Karen on Apr 23, 2011 7:25:26 GMT -5
Sorry for the setback, hun! Hope you're able to kick some ass and get some answers on Tuesday!
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Post by cherry on Apr 23, 2011 7:45:27 GMT -5
Ah me too I know they'll ask me to leave and just call but I'll refuse to leave I'm scared sh*tless and this is the first time that I'm actively freaking out. I didn't let it get to me til now, not properly, the symptoms and the messing around in their entirety. I could cry out of self-pity and frustration. So I'm gonna wash my hair and backcomb the daylights out of it and slap some liquid eyeliner on and go out with my sh*tty back and legs and tingly dead arms.
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Post by JC on Apr 23, 2011 7:53:15 GMT -5
What the hell? I don't understand! Why are they giving you such a run-around for some results? Why do you have to go through all of this? It makes no sense!
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Post by cherry on Apr 23, 2011 8:03:20 GMT -5
Me either J. I will certainly have to camp out in order to have things sorted out. Oh and the cherry on the cake, last weekend a manager of mine who's like my cute nana, she confided to me that she's pissed off that I have to be drugged up to get through a day and it can't go on. She broke my heart though she told me her daughter has MS, is the functional type who has blips. But she watches me and said I'm just like her daughter. The clumsiness, the pains and paraesthsia in my arms and legs, the fatigue. She just thinks I have MS too. I've told her the fatigue and back pain is easily attributable to endo. But she said to prepare myself anyway. I was just gobsmacked and had to walk away. This sh*t isn't fair.
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Post by hellsbells on Apr 23, 2011 14:36:54 GMT -5
Please try it the calm way before you go in all guns blazing. It might just take a phone call to the right person to explain that you weren't clearly told about the appt on the 18th. Either way, hope you get it sorted and let me know how you get on x
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Post by cherry on Apr 23, 2011 15:43:05 GMT -5
There's no clearly, they made a referral to the radiology department and a follow up appointment for results and physio in May. And I can assure you I had no intention of, nor did I indicate I would be doing anything of that sort.
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Post by KSA on Apr 23, 2011 18:48:41 GMT -5
awww honey I hope you get your answers soon....MS wow let's hope its not that. I would be irrate too enough of the run around a answer is all you want.
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Post by cherry on Apr 26, 2011 5:56:58 GMT -5
Thanks Keri. I appreciate the love and concern from all of you. I can come here and speak and be understood. I had so much fun with my gays over the weekend but they don't begin to fathom what I mean when I say 'it hurts' and the same goes for my friend who asked why I might not be doing a charity run. I had an annoying conversation with another friend today but I'll put that elsewhere. I spoke to Neil my physio today. He said after the radiologist had sent it back (I had been put forward for an MRI of my whole spine and they are very picky about who gets them) and advised he wanted me to see the surgeon first, the surgeon Mr M reviewed my case on Friday and wanted me in urgently so I was booked in for the following Monday. So they tried to call me on the wrong number (which I had corrected with them 3 times in the clinic including when they booked my follow up appointment) and the appointment unfortunately went unattended. So following my call last week they had the right number, called me to give me the rundown of goings on, and will rebook me so I'm hoping for this week sometime. I worry that they're pulling me in so quick but I'm grateful that it will be soon. I've had a horrendous week with my back I want to cry with the pain when I wake up, then I get myself together and push through like an endo girl knows how.
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Post by KSA on Apr 26, 2011 6:06:30 GMT -5
"I get myself together and push through like an endo girl knows how." this a qoute I thinkk all of us go thru on a daily basis at times. Sorry your in so much pain dear I hope it ends soon or you get a answer to why this is all happening. Stay strong like a endo girl we can get thru anything!
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Post by Karen on Apr 26, 2011 6:14:26 GMT -5
Phew, glad you got that sorted. And shame on them for not correcting your phone number! I've had that happen before... Sucks!
Let us know when you're able to get in, k? I can imagine you have a lot on your mind regarding this... Hope you get some answers soon, and I hope they're not too scary hun!
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Post by JC on Apr 26, 2011 6:25:35 GMT -5
Cherry I'm freaking out for you. If you want to take the calm approach then I'll take all the stress! I'm worried. I feel like this is going to be the answer to all of your problems. I just hope it's something treatable. It really does sound a lot like MS. My neurologist MRI'd my entire spine too because of suspected MS. They look for the characteristic MS lesions that appear in the brain and spine. Please keep me updated Cherry! I'm thinking about you!
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Post by cherry on Apr 26, 2011 7:38:24 GMT -5
Don't worry about this guys. Each little thing comes up and I adapt to it, I try not to worry at all now it's only the messing around that riles me, and my fuse is already short with the back pain. When we know, we'll know. I think just knowing what it is is the most important thing, like when some of you ladies have fought long and hard to be diagnosed with endo. I hope so much that it's just something I can correct.
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Post by JC on Apr 26, 2011 8:34:43 GMT -5
That's the worst part! Not knowing!
ugh. I know you're strong enough to handle this but I hate seeing everyone so sick. My poor Cherry bomb!
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