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Post by cherry on Apr 26, 2011 8:45:35 GMT -5
Haha I don't think it's strength getting me through, more like pure fear and frustration. Ugh I finally got through to a lady who books the first appointment for the spine consultant that I will see, she saw that I got an appointment for the next day last time, my physiotherapist still hasn't called me back or made the appointment but he'll obviously be busy. But they booked me an appointment for May 9th. Erm no thanks I'll throw myself off a cliff before then. I've messaged a friend who can maybe bring my appointment forward. Unfortunately he's one who doesn't get the pain I'm in or why I go blank when it's bad (they thought I was being all 'solitary' whereas I just wanted to er, suffer in silence so to speak) so he may not be convinced that I need an appointment quickly but hopefully he can help. I'm not demonstrative with my pain at all so I always stand in my own way and then cry about it later.
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Post by JC on Apr 26, 2011 8:47:12 GMT -5
May 9th................................ I hope you can get something worked out to get in sooner.
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Post by cherry on Apr 26, 2011 15:55:55 GMT -5
My friend thinks that's good? Neil didn't call me back. Bit annoyed that it got done because I made it so. Oh well.
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Post by cherry on Apr 27, 2011 2:47:01 GMT -5
Oh just thought too, irony of having MS and endo.
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Post by JC on Apr 27, 2011 13:53:50 GMT -5
oh GOD I hope not. MS scares me. I really don't want you to have it. About May 9th, I'll be getting my second opinion that day about George. We can help each other through that day! I love you Cherry. I don't know why but I feel like some weird over protective, mama lion feelings when I think about you being sick.
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Post by cherry on Apr 27, 2011 18:12:00 GMT -5
Oh no sorry I didn't mean to bring it back to that but I remember I joined the Spoons theory site forum and there was a lady or 2 there with endo and MS, oh the irony. Aw I love you too! You can totally be my mama lion J, I can be your crazy ass cub. My appointment is 8:30am your time so I will post here when I find out what the doc thinks. Text me if you can about your appointment. I'm going to see my GP as I'm getting a lot of nausea and some vomiting with this back pain that I feel is happening all too often. Probably the painkillers. I feel like we do the hokey cokey with our health and medical treatment.
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Post by JC on Apr 27, 2011 18:19:11 GMT -5
RAWR, that's mama talking. lol I would really love to hear how your appointment goes. And I hear you about the hokey cokey crap. I'm so exhausted! I just want to finish this damn semester and focus on my health already!
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Post by cherry on May 9, 2011 19:04:53 GMT -5
My appointment with the spine surgeon was today, and my god, I had my appointment for 1:30 and got to work (10 minutes away) at 5:00. They are that late-running and slow moving. I fell asleep twice, once when they showed me to my own exam room and instructed me to wait for the doctor, and then when the doctor gave me a gown to change into... and took half an hour to come back. I couldn't text as there was no signal at all there and was late for work. Anyway (whingey pants) he examined me like the physio did but was less thorough, made me start at the beginning and describe my symptoms etc. He was patient with my foggy brain. He has authorised an MRI for the whole of my spine, ordered 'more tests' and my follow up is in 4 months. I feel somewhat let down by the ridiculous waiting time, even if it is for tests results to come through, and I suspect it's because he's oversubscribed with patients. His board said 'running 30 minutes late due to many patients'. Now I finally get to see, face-to-face, the failings of the NHS. 2 hour wait to see my doc and then 4 month wait for a follow-up. Luckily I start physio next Friday so I hope it will sort out my curved lower back (now affectionately known as Duck Bum, as if my arse wasn't big enough thanks) and my ankle reflexes. I plan to keep exercising and trying to strengthen myself one way or the other in the meantime. I also can't complain cos my physio is geeky hot with a lovely Welsh accent. But yeah, consultant doesn't know what it could be and will be bringing in another specialist. He was rather mysterious about it all.
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Post by JC on May 9, 2011 19:39:49 GMT -5
Two hour wait and a 4 month follow up.... I wish there was something I could do! Is private healthcare really expensive over there? Aw cherry I was really hoping that you would get some answers. When is your MRI? Maybe if something shows up that's severe they'll call you sooner?
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Post by cherry on May 9, 2011 19:49:06 GMT -5
He said they would call me in on an emergency appointment if they found anything worrying. I'll try not to worry too much as the physio will look after me, which is better than being left to my own devices. I honestly trust him to take care of me as he listened intently... physios are wonderful for that. They ask and they answer and they listen, they're my new favourite health professionals. The MRI they said I would get the appointment for within a month, and the annoying thing is with him being vague, I don't know what letters to expect... remember I missed one because they hadn't updated my records to call me in! Mr DeMatas is from now on known as Mysterion. I mean, I must sound nuts to those who ask 'I'm having tests, I don't know what, and I'll possibly see and at least be reviewed by a consultant, but who and from what department, is a secret' Unfortunately private care is well out of my financial scope. I can barely afford to live.
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Post by pretty on May 9, 2011 19:59:15 GMT -5
Love you Cherry! Hang in there. Glad the Phys is cute, I'll have faith for you k. All progress is good right? Thus all forward movement however vague the direction = also good. Confusion = normal. Your life as an exercise in zen. You got this. x
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Post by JC on May 10, 2011 5:53:24 GMT -5
I think this process would be a lot easier if they would just tell you what's going on. Sitting around wondering what's happening, not knowing the next step, that just makes everything harder. I hope you can get through this Cherry. It sounds so difficult but I believe you are an amazing person and will come out on top no matter what.
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Post by KSA on May 10, 2011 6:42:45 GMT -5
WoW what a looong wait. It happens here tho too. Mri is the right thing and look at it like this could me as strength builiding for your muscles. MS I am hoping is what they say it is NOT. Do you feel confident with the doc atleast? I wait on my gyn been with him for ever and he is worth eveyr second. Happy to know you have some eye candy to look at in the meantime and if you get any ER results please let us know. Love ya
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Post by gemstone on May 10, 2011 6:50:39 GMT -5
Sorry about the long wait, I know it feels sooooo sucky. Hope you're feeling ok today xx
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Post by hannahjex on May 10, 2011 9:49:26 GMT -5
Gosh, sorry you have to wait that long for the follow up, that sucks. At least you've got the cute physio looking after you in the meantime. Silver linings and all that jazz. xx
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