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Post by cherry on Nov 20, 2010 13:26:25 GMT -5
I know this can be a horrible but non-urgent little side effect with endo, the feeling of weight and numbness (like a limb waking up after you've leaned on it, ie sleeping on your arm funny) that is central in the abdomen. It's one thing I've have come back time and again and I don't know the exact cause. I thought to start this topic because I've had this feeling spread down my left leg, and with it being the same way that I can get really bad pain that goes through my hip and down to my knee, I wonder if it's endo messing with my sciatic nerve? Just lately I'm a bit worried by it as I find myself unable to walk on occasions. The first few times it was very distressing but I've sorta acclimatised. Just earlier I felt like I had a complete loss of power to my lower half which was preceded by some lower back/lower abdomen pain that I deal with as standard these days. I'm in work so I tried not panic but I knew I couldn't stand up and I looked weird sat here on my dinner hour. I had to sit for 20 minutes and move my legs under the desk in an effort to 'wake' up my lower half and gather the guts to try and stand, which was wobbly but I was ok. It was sluggish getting my legs to move at first and the weakness terrifies me. I'm hoping that any of you ladies who've had weakness or numbness/tingling in your abdomen can share your stories, I'm interested to know whether it progressively got worse too. This has never happened to me before, I always had the weird heavy 'sleepy' feeling round my womb area but this is new and scary. My sitting posture is good, I try to be careful of that due to the pain recently, I don't want to make it worse or to sit funny because I'm in pain. I feel like I should keep standing up to ward off any further episodes. I'll see my GP Monday.
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Post by hellsbells on Nov 20, 2010 14:00:36 GMT -5
Sounds very unpleasant cherry. I get the the same feelings but it's never really made me unable to walk. Update on Monday please!
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Post by cherry on Nov 20, 2010 16:29:48 GMT -5
Definitely will. It's freaking horrible
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Post by chicagogal2 on Nov 20, 2010 16:34:06 GMT -5
Cherry, I wonder if you also need to see a chiropractor for an adjustment? I would look into it if I were you, it might be something is out of alignment and on a nerve causing this.
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Post by Karen on Nov 20, 2010 17:04:58 GMT -5
I get that numb feeling in my pelvic area when my pain is at my worst. It's like I don't even feel the pain, but just the heavy numb feeling. It's when it's like that that I can't even think straight, get worried to drive because I'm so out of it. I can't figure out why it gets that way. I find that when I insert a tampon, it's super sensitive, too, like it's numb but like it's super tingly and sensitive and NOT in a good way!
I also find that when my pain is at its worst, my back gets so screwed up, like I can't support my own weight. I remember years ago going to the chiropractor when it was really bad (this is before I had pain, just back problems) and she'd hold up my legs and then let go and expect me to keep them raised, but I had absolutely no strength at the time to hold them up. My pelvis kept getting pulled out of alignment, and there was nothing to do to stop it, only put it back in it's place again and again. It's better now, but my last period brought with it the back pain and instability.
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Post by cherry on Nov 20, 2010 18:13:59 GMT -5
CG I did wonder if it was something my doc would suggest, to see someone about my back because I agree it sounds like my nerves are getting danced on right now! Oh mama if they could fix this with some nice 5 minute procedure I'd be a happy bunny indeed. I do sleep in an array of strange positions with pillows supporting because of the pain I get in my hip and back, that could be a confirmation of the alignment theory or maybe I'm making it worse Karen what you're describing is so familiar to me with the instability and the nervousness about what your body will do. If that was caused by issues with pelvic alignment then it confirms CGs theory I think. And what you say about feeling out of it? So true for me too. Because I was in work and being so careful of showing any distress I literally stopped to look at myself and realised that I was breathing in that deep rhythmic way you do when you're falling asleep and that I was woozy and felt like throwing up. I feel like I wanna take off my lower half like a Barbie doll and shake it awake. If I get up after this has started, my legs move automatically but it doesn't feel like I'm in full control, and though I'm stable enough on my feet there's this worry that they may just go out from under me because they don't feel 'all there'. My left side and my back is killing and the feeling's kicked up again, glad I'm home and ready for bed.
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Post by Karen on Nov 20, 2010 19:33:17 GMT -5
I used to go to the chiropractor all the time before I had pain, I just had back pain all the time. It'd be awful, then it would be fine, then it would be awful again. I vividly remember my chiro saying that something kept pulling it out of alignment, but she couldn't figure out what. The adhesions found during my lap make so much sense of it all now. I've been able to use pilates to strengthen my core so my back isn't as much of an issue these days, but I haven't been to the chiro in 4 years now and feel like I'm due for an adjustment. So, yeah, I do think that would help for the back pain.
But the numbness doesn't seem all that connected to me. I can't figure it out. Perhaps it's the body's way of protecting us from awful pain? I swear, when it gets that bad, it's like there's a fog that I can feel rolling in over my entire body, I'm conscious of when it begins. And when it's like that, my entire body gets so tense, I have a hard time relaxing my muscles.
Hope it's passed for you now!
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Post by cherry on Nov 20, 2010 20:05:48 GMT -5
A hot water bottle seems to keep it feeling normal, that's very good to know!
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Post by Shannon Elizabeth on Nov 20, 2010 22:37:17 GMT -5
A week ago I had a similar experience. I had a particularly rough day...more activity than I've had in a month, but that night I woke up after being asleep about 2-3 hours and I couldn't move. I was literally stuck in bed. I had to get up and pee, but I had no control over any of my body. I started to really freak out, but it was late and I was in my room alone with my door shut, so I couldn't really call for help either. It took about half an hour before my body unfroze, and the rest of the night and they day that followed I hurt really badly and had bad nausea. I haven't had it happen again, but all week I've been pretty much laying it low (except for helping mom pain the dining room yesterday).
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Post by cherry on Nov 21, 2010 18:17:27 GMT -5
I'm glad to hear other experiences definitely makes me feel like I'm not having some weird episode on my own. I had cause to think about poops being difficult... like fully formed, and the urge is there... but having talked about another problem I realised I have one of my own. This weakness is possibly affecting my BMs. I thought it was just a temp glitch seeing as I've have endo mangling my rectum before but thinking back now, it's going on rather long. like 3 weeks. I have to work so hard even though I realise I need the loo and I have to go right then, and it's taking a lot longer than it used to, and coming out in small parts. Sometimes I'm tired out or it won't come... but generally I can feel a bit like I haven't finished and my body is like 'meh, try again later' I'm so sorry if this is TMI. It's just like I had a flash of realisation that my BMs are a little weird atm. I am always having to draw my knees up to my chin to poop properly. I am seeing the doc with this too I am ery wary of changes in pooping.
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Post by Karen on Nov 21, 2010 18:36:44 GMT -5
How's your diet been lately, Cherry? I find if I don't eat well enough, my poop suffers! I realize there may be more going on in there, but might be an easy thing to rule out?
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Post by chicagogal2 on Nov 21, 2010 18:48:05 GMT -5
I don't know why but this morning I was thinking about this - have you looked up a self disgnosis survey for MS symptoms? I know that can come upon us with endo, as well as lupus - it's worth a shot to check into it.
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Post by cherry on Nov 21, 2010 18:57:47 GMT -5
I don't know if there's a hereditary link with MS but if so, my mother's older sister has it, the same lady who had uterine cancer. Ladies in my family are well connected in the gynae world wow I feel bad for her, she appeared as a long lost aunt then disappeared again after a family row or I'd ask her advice. I will certainly look that up too CG. I can't believe I haven't googled my symptoms or really talked to my doctor about it properly, I'm that absent minded and so determined to get on with things. Oh dear. Karen I have been careful about my diet in that I eat less crap now but I do now make sure to eat breakfast etc, so I think I'm actually eating more and still getting a good amount of fibre in. I should have mentioned that cos I agree, a bad diet leaves me sluggish and not going to the toilet properly. I'm like the queen of poo, my sis has always had a weird bowel so I check in with her and keep an eye on my own with the endo. I get worried if I haven't gone once in a day. Even last week when I was vomiting loads and taking tramadol, I still went poopies.
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Post by cherry on Nov 21, 2010 19:36:56 GMT -5
Googling symptoms is not good. Even trying to be very sensible in what I read and believed, I've scared myself now
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Post by chicagogal2 on Nov 21, 2010 19:47:57 GMT -5
yeah, googling symptoms is not good. I just checked up on my yellow runs and it says gall bladder disorders and all sorts of stuff - I hope it's just an IBS day because of my period.
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