|
Post by Tigerlilyb on Mar 25, 2011 17:39:59 GMT -5
Got to the doctor today and apparently my issues are all down to withdrawal of my antidepressant. Funny that I still have these awful symptoms even though I weaned myself off for 2 months and it's been 2 weeks since I stopped completely. I'd have thought I'd be home free I was given a higher dose of magnesium and told this feeling could stick around for another month - nooo! Shame that this doesn't help Cherry in any way, unless you've been taking any medication like that recently? I really hope you get it sorted soon.
|
|
|
Post by cherry on Apr 12, 2011 9:46:21 GMT -5
I finally saw someone in orthopaedics yesterday, a bloody gorgeous chartered physiotherapist with a soft Welsh accent. Swoon swoon swoon. Anyhoo! He did all of the assessments, stated I have weak reflexes in my ankles and a fairly curved spine, and I am due for an MRI in the next couple of weeks on an urgent basis, though the consultant radiologist gets final say on how I am prioritised (highly urgent, low urgency). We found that there are parts of my arms and legs where I'm getting the shooting pains that have actual loss of sensation. I feel no scratching or pinching (I pinched me, not the physio, haha!) And I have reduced feeling in my left leg as compared to my right. I have to mention that my symptoms have progressed, things that have gone on for months but because they are continuing, I am treating them as symptoms and not one-offs, which were brought up in the appointment yesterday. Pins and needles in my feet that wake me up, again I checked my circulation as my feet were bare in bed and they were a normal smooth colour. Also shooting pains and tingling down both arms, pins and needles in the end little finger and ring finger. No amount of rubbing of my arms or shoulders helps alleviate the pain or tingling. Both he and the PPT lady have expressed concern at my bowel issues and the fact that I am needing to pee more often than is necessarily normal, say, they expect you to pee every 3-4 hours but through the day I am going every 2 hours in some cases, and always waking at least once in the night. That never concerned me until I had to talk to the PPT physio about it. Also that I don't seem to know that I need the toilet until I am desperate to go. Well I have an MRI on my neck and my lower spine soon and get my sigmoidoscopy results next week. Hopefully some answers will come of it.
|
|
|
Post by JC on Apr 12, 2011 9:56:54 GMT -5
First things first, YAY FOR SWOOONNNN!!!! Second, I'm so glad to hear you're finally getting an MRI!! I am so scared that it will be MS I hope not but it would sure explain a lot. Looking forward to hearing results Cherry! I think you'll finally get some answers from this.
|
|
|
Post by Karen on Apr 12, 2011 17:36:04 GMT -5
No answers yet, but you're making good progress!
|
|
|
Post by chicagogal2 on Apr 12, 2011 17:39:09 GMT -5
I hope you get answers soon Cherry!!! It seems like getting to the bottom of our issues has been a long taxing journey on many of us lately. Very frustrating! And expensive!!
|
|
|
Post by cherry on Apr 13, 2011 7:09:36 GMT -5
I think after all this I'd like to know finally just what I'm facing. Because it's spinal I'm just scared of what comes next. I have started to wonder if it's adhesions because strangely (I eat well to avoid diarrhoea so this was a new thing that occurred before with my 'stop and dump' episode a few weeks before) when I had my enema for my sigmoidospcopy, I was in agony as my bowel just kills when I have GO spasms anyway, but horribly it was a lot of pain in my back and legs with tingling in my feet. I felt that 2 days before when my endo pain set off the puking and diarrhoea, oh I wanted to die that day, every pain hitting me at once and stuck on the toilet puking into my bath. I didn't want to tell the docs cos I thought it was me overreacting or it was literally psychosomatic? But I have good control of my mental state as regards my endo now, and I strongly suspect adhesions. Maybe to my spine, am I crazy? Anyway if this turns out to be purely spinal with no endo I'll of course move the topic. I really appreciate your thoughts ladies
|
|
|
Post by cherry on Apr 13, 2011 7:09:53 GMT -5
Oh the physio doesn't think it sounds like MS so here's hoping, but the newer arm symptoms have panicked the sh*t out of me!
|
|
|
Post by JC on Apr 13, 2011 7:53:51 GMT -5
I hope not But I would really like for you to finally know what you are dealing with. Those symptoms are scary! My poor Cherry bomb! I'll be anxiously waiting to hear what happens!
|
|
|
Post by cherry on Apr 13, 2011 8:18:48 GMT -5
Thanks, I should get my MRI appointment soon, hope they'd do both in one go? I'll be fascinated to see pictures, I love that stuff. I'm completely ok I think, I'm adjusting to the pain and am a bit out of it on the gab anyway so things float by me that normally would have me gripped in anxiety. That's not always good but I'm grateful. The gabapentin changed the pain in that it's different and still as intense but just somehow easier to deal with and work through.. Gotta be careful with keeping up the doses is all. Last total loss of power in legs was 2 weaks ago, but the feelings of it starting are pretty often. I forgot all of this at my appointment of course
|
|
|
Post by hellsbells on Apr 13, 2011 12:58:03 GMT -5
Write it down before you go!
|
|
|
Post by cherry on Apr 21, 2011 7:34:12 GMT -5
Good in theory but given my memory issues before we consider the loopy land I live in on the gabapentin, it's not quite as easy as that. I write things down and lose the BOOK I wrote it in. But hey ho.
I'm not a happy bunny. Been chasing up my MRI all morning, engaged lines, stupid or apathetic staff, unexpected disconnections and a pile of wrong numbers and people saying 'speak to them first' and some really bad 80s easy listening jazz making me want to rip my ears off and stuff them down the earholes. Well the skinny so far is that the consultant radiologist won't do my scans, he wants me to see a spine specialist first for further assessment. I don't get quite why. Just shine the magic torch and have a looksy! Anyway my physio has been instructed to call me this afternoon. Must not swoon or start crying or act all pissed off. Just finding out that orthopaedics were already told of the cancellation on the 11th of April and yet when I spoke to them before they seemed to have no clue and told me to try radiology.
|
|
|
Post by JC on Apr 21, 2011 9:22:19 GMT -5
Oh man, so now you have to see a spine specialist?
|
|
|
Post by cherry on Apr 21, 2011 9:43:22 GMT -5
I don't understand why, or whether it's a step up or down, whether it indicates how serious they think my symptoms are etc. I guess cos the MRI was just rejected that they mustn't think it as serious as needing an urgent scan. I wish I could ask why.
|
|
|
Post by JC on Apr 21, 2011 10:02:43 GMT -5
Either that or they see something that warrants a specialist? I just hope it points you in a direction toward some damn help, whatever it may be.
|
|
|
Post by hellsbells on Apr 21, 2011 14:40:22 GMT -5
I was gonna ask if you'd heard. Let us know when the next step is booked.
|
|