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Post by hellsbells on May 23, 2011 14:23:28 GMT -5
Glad the MRI is set hon x
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Post by Karen on May 23, 2011 17:20:25 GMT -5
Glad the MRI is set AND you'll get the results sooner!!! That's awesome that he has your back.
Wait, is that the guy that wrote nasty stuff in your letters??
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Post by cherry on May 25, 2011 14:36:49 GMT -5
No his letter to my gp was just really sloppy and missed out half of the stuff that I told him and I got so annoyed at him in addition to reading the weird and sh*tty letter that my pain doc had written. I noticed it was dictated and whoever wrote it for him has a bad notion of spelling and grammar so maybe that's connected. I think we're back to a level of understanding now and I feel happier about it all knowing that he's taking an active interest and not just leaving me to float about for 4 months.
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Post by hatten on Jun 24, 2011 10:56:18 GMT -5
oh boy, this is the topic i was searching for. I am always having left side pain like complete body pain. i thought it might just be me getting upset but it never goes away. sometimes its stabbing sometimes its just throbbing; other times it radiates (great word) from my uterus to the left side of my body. This is so rediculous, i wonder if i will ever be pain free
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Post by cherry on Aug 2, 2011 8:49:06 GMT -5
Hi hatten! I still get pain originating in my abdomen, thought to be caused by endo on ligaments etc. I try to do some yoga type stuff which really helps to settle it. At first it hurts like a bitch but over time your body seems to tune in to it and it can do the world of good. It's the meditation as well as the stretching I think, as I am an anxious person so I thought it was mental too. The anxiety of not knowing what it is, or how to control it or even when it will end, that makes it so much worse I know. I'm pretty much clued in to what was causing my pain now. I have scoliosis, an s-bend in my spine which is obviously very mild as you can't really tell to look at me. So I can be grateful that all it's done is cause me pain and not have me ending up like quasi-modo. I have some disc issues also but will find out more in October. I have been moved from my spine surgeon to a spine trauma consultant who apparently no long operates so this is good according to my friend in their dept, they're moving me to someone who will help me manage whatever is wrong with my back. I got the pain issues my lordosis (another curvature of the spine, means I stick my bottom out like a duck in a rap video) caused under control thanks to my physio Neil. I still get pain but not on the level it was before. I have become very active and have my new regime to thank for that I think.
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Post by cherry on Aug 2, 2011 8:52:45 GMT -5
In conclusion though, I won't be posting anything else about my spine in this thread. I certainly still have leg pain and nerve issues that have been down to endo from day one, so I know this thread will be useful to actual endo sufferers with these problems. I am picking up information as I trot along, so anything to alleviate pain and nerve issues, I will happily post here.
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Post by 1234 on Aug 2, 2011 10:03:50 GMT -5
Cherry, glad you've discovered the scoliosis. I have 55 degrees of scoliosis--it's actually what ended my dancing career and is VERY visible as you look at me. I could force myself past the pain, but not the limits to my flexibility--my left side arabesques (where you pick your leg up behind you) just couldn't measure up. I've had lots of pain, numbness, etc. and I definitely second teh yoga. I haven't been in a dance studio in 2.5 years and have been doing bikram yoga that whole time. My back has straightened so much, and the pain stemming from it is negligible, comparatively. I use yoga both to manage endo pain and to heal my body from the scoliosis.
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Post by Karen on Aug 2, 2011 18:33:11 GMT -5
I'm SO glad you got some info about your spine. Although I'm sure it's not a fun diagnosis, it at least explains your symptoms and isn't as severe as some of the other things that was being suggested to you! I hope you're able to get continued / more relief, hun!
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Post by abillings9 on Oct 22, 2011 11:15:32 GMT -5
I am glad I was directed to this thread! Cherry, reading your story at the beginning of this thread was like reading what happened to me. I am so glad (although sorry too) that I am not some weird anomaly! I have been seeing a chiropractor for 11 months now and had some curvature issues in my spine as well, but even adjustments have not fully helped the sciatic/numb stuff in my legs and feet. I can only hope that being seen by a doctor/surgery will get rid of the issue somehow.
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Post by 1234 on Oct 23, 2011 10:16:14 GMT -5
Hey, Amanda--just wanted to let you know that, although I've been to a chiropractor once (when I pulled 4 ribs out of my spine--NOT fun), I've found yoga is the best way to correct spine curvature. I have really chronic scoliosis. As I said above, it actually ended my dancing career--I couldn't get the necessary flexibility in my spine to have the positions in which you raise your left leg behind you (trying not to use technical dance terms). I could get my left leg to 95 - 100 degrees, but I really needed a minimum of 120. I could only get the full 180 - 190 split when my upper body was dropped lower and the spine flexibility wasn't as much of an issue. Anyway, probably too much, too detailed information, but I've now been doign bikram yoga almost 3 years (1 - 3 times a week). My spine is SOOOOO much straighter. I am in so much less pain, and can do so much more. For instance, until my back straightened some, I couldn't have been a bicycle mechanic--it would have crippled me. Yoga isn't fast and it's a lot of work, but it does actual correct the shape of your spine. If the surgery or some other avenue doesn't help, maybe look into it?
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