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Post by DeAnna on Jul 20, 2012 20:07:06 GMT -5
I am trying to read through all 35 pages of this thread and am finding it a bit overwhelming. I have a decision to make and was wondering if a few of you could chime in. My surgeon did a lap last year and I have been pain free since, except for a brief period when I tried to come off BCP for a while (due to bleeding, stupid move). I am now on Loestrel 24 (changed from seasonique) and I am still bleeding. I have only been on the new BCP for a week and have been told by the doc that it could take a while for the bleeding to cease. In the meantime, they are now telling me that I need to get a biopsy done because of my age (and the persistent bleeding that has been going on for a while). They are concerned with endometrial cancer. If the biopsy shows precancerous cells then the treatment is Mirena. Also, they said that the Mirena might be a better treatment for endo vs the BCP I am currently pain free and dont want to change a thing but if I dont do the Mirena now, I will have to find a different doc to do it (due to insurance changing). Also, if I do the Mirena with the biopsy, I will be sedated. The ridiculous part of all of this is that I asked this jack*ss doc to do the Mirena with my last lap. He told me at the time that it wouldnt work for me because of the size of my uterus (never had kids). He says this is common in women who have never had children. Now, he's recommending it. I have a very narrow window to make this decision. The fellow says that most patients dont have pain after the insertion, but I am reading differently on here. Tough decision.......what do you guys think?
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Post by DeAnna on Jul 20, 2012 20:14:20 GMT -5
I am reading stuff posted form Myrtle, Karen, hannah and Cherry and Im thinking.......eff this, It doesnt sound like its been pleasant for any of you. My friend has done well with it, but she has also had 3 kids.
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Post by Karen on Jul 20, 2012 20:18:28 GMT -5
Yeah, it was a torture device for me... But, I'm kinda glad I tried it just so I could say with certainty that it wasn't for me. It's your call, and if you have a window of time where you can be sedated, that would be ideal! But if you're not feeling it, don't feel pressured.
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Post by crazycatlady on Jul 29, 2012 18:11:42 GMT -5
DeAnna, I just had a Mirena placed at the beginning of July. I also have not had kids. I think my sounding measurement was 6 or 6.5? So it fit. I haven't really had any problems except occasional crampyness. Not cramping like a period or regular endo pain but about half as strong. The day it was placed I had major cramping and lots of blood. But by the next day it was fine. I also read some studies that say that levonorgestrel releasing intrauterine devices work well to treat the pain of endo: www.ncbi.nlm.nih.gov/pubmed/22314873There are a bunch of other studies that show its effectiveness. So far I'm happy with it, but its too early to tell probably.
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Post by 1234 on Jul 30, 2012 10:24:53 GMT -5
You know Diana, the thing about it, is that if it's terrible, you can take it out. I'm with Karen: I'm glad I tried it too, just to confirm to myself that I'd tried everything. Never again though!!!
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Post by JC on Jul 30, 2012 18:55:05 GMT -5
I agree with Karen and Rustmyrtle. Even though it was hell for me, I am glad I tried it because you just never know what works for you until you try it. The best part of the IUD is you can easily have it removed. I would just recommend that you make it clear to your doctor that he/she must remove it on your request if you don't like it. I saw one girl on here who couldn't get her doctor to remove it so she had to go to someone else.
It really does work well for some women so it do think it's worth a try if your doctor suggests it.
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Post by MustangGtGirl on Jul 31, 2012 9:06:05 GMT -5
My new Dr wants me to try Mirena as well. I also have no children and have never been pregnant. I have heard both good and bad on it. I do not do well with the pill at all it always makes me sick. I have been thinking about it back and forth and just got the papers from my Dr to call my insurance co for coverage. I think I am going to give it a shot. I hope I am not making a bad decision. But I wont know unless I try right?
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Post by loveshoes on Jul 31, 2012 9:14:41 GMT -5
Everyone is different so you can give it a shot. After reading how the majority here hated it and that it caused further pain issues, I decided to not touch it with a 10 foot pole. You can always have it removed if it doesn't work out.
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Post by JC on Jul 31, 2012 9:32:05 GMT -5
Mustang, have you ever tried the nuva ring?
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Post by MustangGtGirl on Jul 31, 2012 11:34:22 GMT -5
Jenaya No I never tried Nuva ring only the different types of pills. But because my cholesterol is so high my new Dr felt this was the best one. It seems like everyone has had differentexperiences with it and after everything I am still going through I have to admit I am a little scared. I haven't called my insurance company yet though.
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Post by ccincurak on Oct 16, 2012 9:00:20 GMT -5
I have a question about removing Mirena. My husband and I are finally ready to start TTC. I've had the Mirena IUD since July 2010 and am ready to get rid of it! It hasn't been that bad but it's a lot harder to lose weight with it and I feel like I've been in a bit of a "cloud" since the first week. I have an important exam at the end of November and I'm wondering if anyone has had bad side effects from the removal? I've heard of the Mirena Crash?? I am debating whether to have it removed early Nov or wait until after my exam. Advice??
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Post by hellsbells on Oct 17, 2012 7:02:38 GMT -5
I practically begged my gynae to take mine out after around 4 months. The actual removal was relatively painless. In the stirrups, a quick cough and it was out. I bled like a stuck pig starting the following day and had to go to hossie to see emergency doc who gave me tablets to slow the bleeding and they worked. The bleeding wiped me out and I had to eat some liver and steak! But after a week or so I was fine and quite frankly loved not having it in! If you have it out soon-ish I'd say you'd be ok within a couple of weeks.
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Post by crazycatlady on Nov 18, 2012 19:08:14 GMT -5
Ok, so I am going on almost 4 months with my Mirena IUD. I have to say that I am rapidly not impressed. I had high hopes but this past period was miserable. I am back to 95% of the pain level that I was at before. Then if you add in the never ending spotting, cramping, and major skin problems, and some weight gain, I'm not impressed. But I'm wondering if it will get better? I'd be able to stick it out to about 6 months but I'm concerned that it won't get better. I don't think that Lupron is a fantastic option so I'm thinking about having a hysterectomy next year.
Has anyone lasted past 6 months that can let me know if it gets better?
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Emily
Full Member
Posts: 148
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Post by Emily on Apr 1, 2013 18:21:55 GMT -5
I am about 2 months post-lap and am still experiencing pain at near the same level as before. My new gyno has given me some options and we have tried a few (pelvic exercises, diet mods, Celebrex, taking pain meds on a schedule) and I am not really seeing an improvement other than the pain getting masked by meds.
I have had the Paragard IUD for about a year and she is wanting me to have it removed and replaced with a Mirena as our next step. I've already experienced the insertion and "settling" pain, so I know what to expect from that standpoint, just not the hormones. At least I will have T3 this time and not just ibuprofen to help with the pain!
Reading through here, it seems like most of you have had bad experiences with the Mirena, I believe the words "torture device" has been used to describe it! I feel like I should at least give it a try, if anything to cross it off of the list of things I have tried. It's also comforting that it can easily be removed if I hate it. I have a blood mutation and have to be really careful about hormones, on top of them making me feel wonky, so I would rather try this than Lupron, which my gyno has mentioned.
In my teens, I had AWFUL migraines. They caused my throat to swell shut, temporary blindness, confusion, aura, the works. As I've gotten older, they've gotten milder, but are still unpleasant. Since getting off of hormones, they have been the best they've been since I can remember. I'm worried that even with the little bit of hormones I will be back in the ER both from a pain/bleeding out/fainting standpoint and from a neuro standpoint. My gyno and neurologist seem to think that the lack of estrogen in the Mirena will not cause problems, but I am still sceptical. On top of the migraines, I also have anxiety/depression, so that is another factor with the hormones.
As I said, I've read through these threads and already know the opinion of those who have tried it, but I am just wondering if it is even worth trying. Kinda on the fence about this :/
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Post by Karen on Apr 1, 2013 19:02:55 GMT -5
Yup, I had an awful experience (cramping the entire time, 8 pound weight gain the first week - no lie! - oily skin, lots of sobbing, no pain relief, etc.). BUT, I'm glad I tried it so I could cross it off the list. I'd never, ever, ever do it again, though.
Question for you - do you tolerate the Paragard? I've read in multiple places that women with endo shouldn't get Paragard because it can actually increase bleeding and/or cycle length. Any chance some of your symptoms got worse after it was inserted? Any chance your pain is related to Paragard? Maybe not, but if there's a slight chance that they did, consider having a week or two in between removal of Paragard and insertion of Mirena.
At the end of the day, it's your call if you want to go ahead with it or not. If you think the potential benefits outweigh the potential risks, go for it. If you don't, maybe not.
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