|
Post by Karen on Jan 10, 2012 20:48:37 GMT -5
Good new, Nicolle! How's the pain? Don't you wonder if some of the pain you've been having lately has more to do with the hernia than the endo? Whatever the case, fingers crossed the endo specialist can fit you in for a lap ASAP! Keep us posted, k?
|
|
|
Post by painttheseconds on Jan 10, 2012 21:08:58 GMT -5
The pain is still pretty bad. I've been taking a half a Percocet everyday since Friday to combat the pain. I hate taking narcs, but ibuprofen and tylenol just won't cut it. I've been running a low grade fever as well which I think has to do with the hernia.
I can't tell what pain is what to be honest. I've been in so much pain for so long that I really have no idea what to expect with my lap. My OBGYN thinks there's a big chance that I have a lot of adhesion's and scar tissue. Her hope is that Dr. Alvero will be able to help with that and clean things up if need be. I'm really interested to see what they find with my lap.
I'll post more after I meet with Dr. Alvero on Friday.
|
|
|
Post by painttheseconds on Jan 14, 2012 0:21:43 GMT -5
Well I met with Dr. Alvero today. I didn't get the answers I was wanting, but I did get some information. They did a vaginal ultrasound on me and my right ovary is stuck to my uterine wall and I also have a uterine fibroid. Dr. Alvero thinks that is where most of my discomfort and pain is coming from.
Unfortunately I'm not going to be able to have surgery until Feb. 7th. I know it's not that far away, but I was hoping to get in sooner. My Mom is leaving on Sunday and will return in a couple of weeks to help me before and after surgery. I'm grateful for the time she has spent with me I just know I'm going to be sad without her. I've been really emotional lately and I've really struggled lately with staying grounded and positive as you girls know.
On the positive side Dr. Alvero seems very confident that he can help me. He thinks my right ovary may be stuck to my uterine wall because of adhesion's or it could be endo. He mentioned using adhesion barriers during my surgery to prevent future adhesion's and scaring. He also has me on a waiting list to see a pelvic pain specialist. He is really concerned about all the pain I have been experiencing so he put me on a waiting list at the hospital. Hopefully I will be able to see the pelvic pain specialist shortly after surgery.
I got really emotional after my appointment. Both Dr. Alvero and another Dr. who was working with him made so many different comments and things they thought I should think about and consider. I was very adamant that I will not go on Lupron, but I would be willing to see a pain specialist. It went well, I've just realized that having Endo is still an emotionally painful experience for me. I feel like sometimes it's not something I've completely accepted. When I get a big dose of reality like I did today I realize how much endo has been affecting my quality of life.
I just hope that this is the right decision and that there is light at the endo of the tunnel. Dr. Alvero thinks he can also take care of my hernia at the same time which is good. For now I can't work so I'm just trying to find ways to fill my time and stay positive. I'm sorry if I don't sound super positive at the moment. I just feel really discouraged and sad. I'll probably be emptying the bucket for awhile. Thanks for listening ladies. I hope not to be a debbie downer forever.
|
|
|
Post by semicolon on Jan 14, 2012 8:49:49 GMT -5
It sounds like the appt felt like a mixed bag, but I often find meeting a new doc to be overwhelming and emotional. I hope after you sleep on it a couple times maybe you we feel a bit more settled about it. He sounds like a good advocate who is taking your pain very seriously, I like him for that and he found some things to look into.
My name actually is Deb and I have literally been a Debbie Downer more than I like to think about! The important people see through it and know its not who you really are, and here you can always be honest about how you're feeling. Hugs!
|
|
|
Post by JC on Jan 14, 2012 9:44:58 GMT -5
Even though this has been an emotional appointment, I can actually see some optimism coming through your post. These doctors sound really awesome and I think you are in good hands. You have so much going on inside and I think any one of those problems can be causing the pain you are having. I think no matter what happens in the operating room, you are going to feel so much better after. It may not fix everything to "normal" but anything to correct what is going on will be a huge relief for you. I think you might be able to at least find comfort in knowing that there will be a huge improvement for you after all of this.
|
|
|
Post by Karen on Jan 14, 2012 10:57:11 GMT -5
Well, I can completely understand why you're emotional - there's a lot of uncertainty right now, and that can be scary! I'm sure some of the options or things to think about probably scared you a bit, too. With any new doctor, you always have to wonder if they'll listen to you or push their own agenda, if they'll actually help, if they really care, etc. I hope the next few weeks between now and your surgery will allow you some time to regroup, think everything through, and get some calm. You go ahead and empty that bucket! Get it all out, hun!
|
|
|
Post by hellsbells on Jan 14, 2012 12:48:01 GMT -5
You're such a smilie girl I hate to think of you being so down. I hope you get loads of relief from this surgery and these docs xx
|
|
|
Post by 1234 on Jan 14, 2012 12:58:46 GMT -5
Feeling down right now is so natural, Nicolle--not just the pain and the hernia and everything else, but also the let down of having screwed up your determination and energy to go see this doctor, and then having to wait a couple weeks, so you have to let all that energy go for a bit. I know it's not long, but it's still a let down.
I am so glad that you will be able to have both surgeries at the same time. Good luck today, Nicolle. take it easy and don't beat up on yourself for feeling a bit down.
|
|
|
Post by painttheseconds on Jan 19, 2012 13:24:44 GMT -5
Well girls I've made a decision not to have surgery in Denver. I just haven't felt good about my impending surgery and I don't feel comfortable with the decision I had made. I had a long talk with my Mom and called Dr. Redwine's office and talked to the receptionist for a few minutes.
I'm going to get all of my records together and send them to Dr. Redwine. With all that's going on in my body I don't feel comfortable not having excision surgery. I don't want to keep having surgery every year and a half so I figure if I need surgery for my endo I might as well go to the best. My Mom feels confident with my decision and so do I. I just have to get everything mailed off to him and see how everything proceeds.
I have so much more peace with this decision and I'm willing to wait longer if I have to. If I'm going to have surgery again I might as well have it with the best.
|
|
|
Post by gemstone on Jan 19, 2012 14:02:44 GMT -5
I'm so glad you've made a decision that you're happy with It's really great how strong you are making that decision and knowing that whilst you may have to wait, you'll be getting the best. Go Nicolle!!
|
|
|
Post by Karen on Jan 19, 2012 20:17:17 GMT -5
Certainly wouldn't second-guess things after seeing Dr. Redwine! I hope he's able to get you in quickly. How far of a drive/flight is it?
|
|
|
Post by omaklackey on Jan 19, 2012 20:27:26 GMT -5
I know I had a hard time talking myself into going to the specialist but its worth it! And the emotional thing... OH MY GOSH, I so get it!
|
|
|
Post by painttheseconds on Jan 19, 2012 22:35:11 GMT -5
My Mom and I are going to fly. I think it's about 5 hours maybe longer. I have so many logistics to figure out, but this is what I feel like is best for me.
|
|
|
Post by 1234 on Jan 20, 2012 18:10:23 GMT -5
congratulations, Nicolle. I know that this decision is one you've been flirting with for a long time. Impressive decision to make!
|
|
|
Post by painttheseconds on Jan 26, 2012 19:25:44 GMT -5
I mailed all my medical records regarding my endo to Dr. Redwine today. He will be receiving everything on Monday. It sounds kind of silly, but I can't wait to hear back from him.
|
|