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Post by JC on Apr 20, 2011 5:54:42 GMT -5
There's probably a thread about this somewhere but has anyone ever used lidocaine jelly vaginally for the pain?
Sometimes when we put foley cathetars in people we'd shoot them up with lidocaine jelly to numb them first. I'm wondering if it's an option for us too.
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Post by JC on Apr 20, 2011 10:30:21 GMT -5
Stand up and giggle? HAHA! That sounds so funny but I find it even funnier that it actually works! That's hilarious!
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Post by Karen on Apr 20, 2011 12:12:57 GMT -5
Giggle or jiggle? Either way, I'd die laughing if someone in the stall next to me had to resort to that tactic! Glad you're getting some relief, though!
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Post by Karen on Apr 20, 2011 12:20:09 GMT -5
Hahahahahahahaha, I wondered how giggling would have made it easier!
If it is any consolation, it sounds like a typo I would have made! But it still made me giggle!
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Post by pretty on Apr 20, 2011 13:38:38 GMT -5
ha ha ha actually 'stand up and giggle' made TOTAL sense to the pretty... lol
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Post by Karen on Apr 22, 2011 6:51:40 GMT -5
Ok, Nicole, time for a heart to heart... And please know that I have the best of intentions here, ok? I'd prefer to do this face to face over a cup of tea so you could see my intentions are pure and kind but since we can't, here goes... You're on a message board for endo. We pride ourselves with providing information and support, and when it comes to support, you're fantastic at giving it and we're more than happy to provide it when you need it. You've got a lot to offer here and we always appreciate that. You're a valued member as a result! But now it's time for some info... YOU HAVE ENDO! Endo is a serious disease and can cause lots and lots of complications to all sorts of your organs. From the sounds of it, it's quite involved and extensive, particularly near your backside. His first response when he read the 2002 report was WOW, you have alot of endo everywhere. The report didn't note the size of the largest mass but it's a LARGE BALL noted on the report. ... He did the rest of the exam and could feel the ball of endo that I have between my rectum/vagina ( pouch of douglas ). He said it's pretty big. He balled up a piece of kleenex and said that's how it feels, like a rock and all bumpy. He put the dreaded finger into the rectum while still in the vagina and said oh yeah, he could totally feel the endo like that. He was shocked that I am not writhing in pain all the time, with sex, with everything. He said I'm VERY LUCKY that I do not have pain and that it's only during my period. Yes, it's quite possible that a fall kind of 'awoke' something in you or caused some sort of damage, and yes, it's likely that something like coccydynia could contribute to your monthly pain, but as we all know, pain and complications with periods is NOT normal. AND YOU HAVE ENDO! Endo complicates periods for ALL of us! We have members that have pain all over the place, not just in their bellies. It can cause extensive damage and, as you hear from all of us, can make our lives completely miserable! I'm not suggesting you stop investigating coccydynia or something else that pertains to your fall. That could very well be a piece of the puzzle. But please be open to considering that it very well could be endo that's contributing to a significant amount of your pain and complications! I know you know this, and I know you have a bit, but learn as much as you can about the disease! We've all been told by doctors that endo couldn't possibly cause ___ but in the end, they were quite wrong. I'm not saying don't trust them, but take it all with a grain of salt. They're not living in your body and they don't know how it all feels. There are some very good books out there that paint a very good picture of all the possible complications. I just worry that you'll end up with further complications due to endo if you don't acknowledge the role that endo is playing in your body. Again, that's said with the best of intentions and I hope you don't take it the wrong way. I'm not trying to put you on the defensive, just asking that you open up to the possibility. That's why we're all here - to get help regarding endo!!! |
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Post by hellsbells on Apr 22, 2011 9:00:02 GMT -5
I'm kinda thinking if the pain was due to the fall, maybe it would be more persistent than flaring up at the time of your period? I've hurt my back a couple of times, including coccyx which landed me with an excruciatingly painful abcess a while back, but my back pain is always there, it just gets a bit worse around my period and ovulation. I know how difficult it is to try and work out what's causing your pain and how frustrating that is. Most of us have additional/linked health issues we're trying to get to the bottom of. Bear in mind also that endo can affect the nerves in lower back and pelvis, it's all about the inflammation. I don't think there's a true description for 'endo pain', we all get it differently, it's what's so damn frustrating about this disease. I hope you get some answers and some peace of mind soon x
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Post by Karen on Apr 22, 2011 16:39:39 GMT -5
I get it, and I get that you're trying to find answers. All of us know how discouraging it is to have all sorts of tests end up normal but we still don't feel right. While you're searching for answers, I just don't want you to dismiss endo for at least part of the blame for your monthly issues. It can cause a lot of damage and a lot of different types of pain. I would just encourage you to learn as much about endo and all its lovely facets - not just from your doctors and not just from us - so you feel more empowered in tackling it. You're off to a good start by seeking out PPT and you mentioned acupuncture, but with more info in your back pocket, you could seriously kick endo's ass!
Anyway, I'll leave it at that. xx
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Post by painttheseconds on Apr 22, 2011 22:33:01 GMT -5
I think everyone deals with endo differently. We all have different way of approaching and dealing with our disease. From what I've seen on this site everyone seems to be nothing but supportive and respectful. It's your body and you have to do what feels right for you. Take care of yourself and I hope pelvic PT makes a difference for you.
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Post by chicagogal2 on Apr 27, 2011 21:14:43 GMT -5
I figured since this is a thread on my journey I'd post my gripe here. Today at work was sh*tty. I'm sure the girls mean well but they have now nick named me skeletor because they say I'm like a stick with hair. Lovely. Yeah, jerks, like I really wanted to loose almost 15 lbs in the 7 mths that I have been having issues during my period and at other times thru the month ( not nearly as bad though ). Yeah, I strive to look too thin, to have my size 0's be slightly loose on me standing 5'7" tall. sure. Lovely. What's next, rumors that I'm anorexic? I'm eating like crazy for the past week and a half. Eating sh*tty stuff like fries, cake, you name it to try to GAIN some weight back. My feelings are really hurt. They know I've had issues and I've been very open with what I'm going thru. Oh well. I think they are saying it with concern and trying to make me laugh but I'm also worried how I must look if people are saying stuff like that. I'm feeling really low - going to bed.
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Post by 1234 on Apr 27, 2011 22:41:45 GMT -5
hey--in a former life, I was a dancer and know it hurts to have comments like that. I'm sorry, really so sorry.
something that someone told me at one point made me feel better. We girls feel insecure around the whole issue of weight, and so we say lots of things that aren't very considerate, even if they mean it to be considerate/thoughtful/caring for you. It's a huge blind spot for women, and all sorts of crazy jealousies/insecurities come between the ability to be supportive in a sensitive way, on such an issue--even when we are trying to.
And I have to say, that picture of you looks really hot. And, I wish I were 5'7". I'm 5'2" , only when I round up.
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Post by cherry on Apr 28, 2011 4:58:54 GMT -5
CG I'm a veteran of the skinny comments. 5'9" through most of school and skinny as a whippet even when I got my lady bumps coming to fruition. I felt the looks when I lost weight due to illness 2 years ago, but I kept in mind that I was doing what I could to build myself back up and that it wasn't my fault. Not deliberate dieting and not (at that time) caused by mental illness like anorexia.
A lot of it is misplaced envy, sometimes concern. They literally don't know the hurt they're causing or even care about the deeper issues behind it, as you said, people just don't want to hear it, right?
Take photos and measurements to keep an eye on your weight loss, it's something your doctors will need to know about.
I found exercise got my weight shooting back up, my body naturally started accruing mass and a nice healthy layer of fat where I'd previously had none, and I was also building muscles. I found also that making a weird omelette/oatcake thing from 2 eggs (I used the whole egg, my ex used only the white) and a cup of oats put the weight on me nicely. Don't eat crap. It's not fueling your body right and will lead to more endo pain and health issues. Eat well, and eat good portions, your body will adjust. If not, see your doctor as it needs to be looked into. Oh yeah also I tried the fatty food thing once and a close friend at work quietly asked if I was bulimic.
Skinny comments aren't the end of the world, they're the point where people are getting so worried that they feel they HAVE to say something. Assure them that you understand and you're looking into it, but that they're being f**king rude and to stop it now.
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Post by hellsbells on Apr 28, 2011 7:11:29 GMT -5
I can only secons Cherry's comments. Tell them it makes you feel bad and ask them to stop.
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Post by JC on Apr 28, 2011 7:29:50 GMT -5
I agree. If they are good people then they will stop. Speaking from experience in this topic, sometimes people don't realize how your comments can make you feel. It may seem harmeless to them but to you it's a different story. They'll never know until you tell them.
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Post by JC on Apr 28, 2011 9:12:39 GMT -5
I have a friend with crohn's disease and she's extremely skinny because she's sick all the time. She doesn't tell people about her illness but one day a coworker asked her what her secret was to staying so skinny.
After being so sick of skinny comments she said, "I have crohn's disease. I can barely eat because I'm so sick."
The woman had the f**king nerve to say, "You're so lucky. I want crohn's disease so I can be skinny too."
Can you believe that idiot? Some people think skinny = perfect. STUPID ASS. I was pissed when she told me that story.
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