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Post by hellsbells on Mar 18, 2011 8:45:16 GMT -5
As of this morning it looks a little better. I have an iodine (inadine?) dressing for a few days, then I'll check in with doc again early next week before deciding whether or not to go back to work on Weds.
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Post by gemstone on Mar 18, 2011 9:55:25 GMT -5
I'm really not good today. The morphine hasn't worked - I'm still in stupid amounts of pain. I have a massive headache and feel constantly nauseous and am constipated with rectal bleeding. I know this is lame but this is the first time I've really let all of this get on top of me. I just feel like I've been left hanging with no hope of anything. I need a scan and have this possible colostomy bag hanging over me, except I can't get the scan, and am not on the lap waiting list. Sorry to rant, I'm just trying to keep it together but really falling apart now  |
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Post by hellsbells on Mar 18, 2011 10:47:03 GMT -5
Are you ready to start camping out at the hospital? Can you get your GP to ring up and push you forward? Does this damn consultant only do scans once a fvcking month? I'm so sorry you're hurting and I'm so sorry you can't get seen quicker. I'm anfry on your behalf x
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Post by gemstone on Mar 18, 2011 11:01:37 GMT -5
I've supposedly got an app with my consultant in which I will be kicking off about this and a friend's dad who is an anaesthetist is looking in to seeing if there if anyone else who can do the scan. It' so frustrating, I'm trying to just go with it but the pain is getting worse each month. My sister has offered me her BC because she hates seeing me like this and they won't put me on anything!! It's so ridiculous they have just left me! I've tried calling the hospital to chase my app and there is no-one there.
I know when the pain and nausea settles a little I'll be more rational, but I just feel so helpless now, even with a drawer full of drugs.
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Post by cherry on Mar 18, 2011 11:16:28 GMT -5
What, why won't they put you on anything?
Can you sneak to a family planning clinic and just ham up your need for contraception? Anything to keep you from these periods, it makes me sick to my stomach how you're being treated!
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Post by gemstone on Mar 18, 2011 11:33:44 GMT -5
They said they won't put me on BC until they know exactly what they're dealing with. I think I will go back to GP and speak to him about the morphine and ask for BC as they do know now it's endo and hopefully he will give me something. I just want to have something to stop it spreading now, as I know with each period it's spreading and the chances of me having a bag are getting more and more.
Still can't get through to the consultants secretary, I expect she's gone now, but I have an app with the doc Monday morning now (I just phoned) so fingers crossed for that.
Sorry for ranting girls, I'm a bit calmer now. I'll be fine, just got so bad these last few days I didn't have a coping plan like I usually do.
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Post by pretty on Mar 18, 2011 12:05:27 GMT -5
Gem! love you little Gem. Poor baby, you know what I think so I won't lecture you. I just feel so bad you have to go through this! P |
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Post by gemstone on Mar 18, 2011 13:05:09 GMT -5
Thanks guys  Love you all Pretty, you're not lecturing, I'm going to cause a fuss and get this sorted!!! I'm picking myself up and getting on with it, sh1tty feeling or not! xx |
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Post by Karen on Mar 18, 2011 19:08:29 GMT -5
You're more than entitled to get emotional about this and have a bad day/week. I mean, geez, it's like your body is under siege! Wishing you a good night's rest and quick action next week!
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Post by Karen on Mar 19, 2011 9:05:12 GMT -5
My bitch for the day: today is specimen collecting day...
Ladies, I have a jug of my piss in the fridge that I'll be adding to for 24 hours AND I'll have a few vials of my spit in the freezer. EW! Was supposed to do it last weekend but I had company in town and I didn't want to subject them to that!
And I know I'll have another piss test just as soon as my doc gets it in her office and I'm hoping it's just a one-time thing... Maybe I should just keep my jug of piss in case I can just take a sample out of it? Blech, don't know if I want that in my fridge that long!
Seriously, I totally envy people that are in perfect health and never have to do stuff like this just to get some answers...
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Post by gemstone on Mar 19, 2011 13:03:22 GMT -5
Karen, that's pretty sucky, and I know what you mean about people being in perfect health, they will never do stuff like that and go through anything like we do. This is good as I wouldn't wish ill health on anyone, but I sometimes wish those people would take better care of their perfect bodies Chica, I write down my toilet activities, it makes for a great read on the toilet!! My bitch is that I still feel so sh*tty, although not as bad as the last few days thank goodness, but the fatigue has really stepped up this month. I'm always tired but not like some of you girls, although recently I just feel totally exhausted. It's playing havoc with my mood! |
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Post by hellsbells on Mar 19, 2011 13:05:32 GMT -5
I'm with you there - and can usually put a smile on my face through pain but fatigue makes me really really narky.
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Post by Karen on Mar 19, 2011 13:37:32 GMT -5
Ditto. Fatigue sucks. I do hope you get some answers and relief SOON!
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Post by gemstone on Mar 19, 2011 15:27:13 GMT -5
Well, I think I've over done it - put away some washing, peeled some potatoes and not much else. Cramps are back and raging and feel like sh1t again. Must take it easy now!
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Post by JC on Mar 19, 2011 16:51:42 GMT -5
Karen it makes me giggle hearing you say "piss." hehe.
I sure hope this gives some insight into your health though! I'm really interested to see what the results are.
Oh the strange things we have to do.....
Hang in there Karen!
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Love you all 