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Post by Karen on Apr 16, 2011 6:54:23 GMT -5
I think a lot of us can tell the difference between endo pain (throbbing, burning) and adhesion pain (tugging, pulling, hurt when moving). Where do you think/know your adhesions are, and how do they affect you?
I'll start... During my lap, they found my appendix adhered to my cecum (they removed the appendix), and my cecum was adhered to my pelvic sidewall. PT really helped with the adhesion pain - I assume it loosened them up - but the past 2 days I've been constipated and I just KNOW my cecum is adhered to something again. Any time I even TRY to push out a BM, I feel it. I also feel it when I walk - whenever I put my right leg forward there's that tugging. It's not bad, and it's not the end of the world, but it's so frustrating!! I hope it goes away when I'm not constipated anymore...
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Post by gemstone on Apr 16, 2011 7:18:50 GMT -5
I have no idea whether I have adhesions, but I do have different pains. The pains that I think are adhesion pains are mainly when I sit down and I get this pain that seems to shoot up and down what feels like about 5 inches on the left side of my belly button. It hurts to stand up and feels like my insides are encased in jelly (jello) if that makes sense. I tend to stretch which hurts in that place - I think where my ovary is - and it hurts but seems to 'unstick'. Like I said, I have no idea but I do have a lot if pain/problems with what I think is my left ovary. It will be interesting to find out when I have my lap if that is what is going on!
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Post by JC on Apr 16, 2011 14:44:20 GMT -5
It feels like I have adhesions in the posterior cul de sac. That's where all my pain is and it's that ripping pain. I never thought I'd say this but I really miss my nuva ring. I didn't have any endo when I was on it
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Post by chicagogal2 on Apr 16, 2011 15:04:04 GMT -5
I miss my birth control pills! I think I did have adhesions...is it possible that you can tear them yourself and release things? I used to notice alot of pulling when I'd stretch in bed getting up or if I'd go on my belly and lift my head up.....i'd get alot of pulling but I haven't felt that in along time. I'm wondering if I somehow released them on my own just over the years stretching in bed? Jenaya, if you are miserable maybe it's ok to go back on it and just use the blood thinners....is there any danger to taking blood thinners until you hit menopause?
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Post by rhodygirl on Apr 16, 2011 17:07:24 GMT -5
Well so far I've had 2 docs tell me my liver is attached to my intestines by adhesions. And...the funny thing is I knew EXACTLY where they were. Before I found that out I could literally point my finger on my upper right side and push in where it hurts on top of my shirt. If I were to lift my shirt and look to see where my finger was it was on top of one of my gallbladder scars EVERY time.
I also suspect something around the area of my left ovary. I have tugging there all the time.
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Post by Karen on Apr 16, 2011 17:19:22 GMT -5
OUCH!! Did they do anything about the liver and intestines, or just leave it be??
I can pinpoint exactly where mine are/is too! I was tempted before my lap to put a big black X there so they'd know to look there. Of course, at the time, I had no idea what was going on, I just knew it HURT! And my PT could find that very exact spot without me even saying a thing!
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Post by rhodygirl on Apr 16, 2011 18:32:32 GMT -5
OUCH!! Did they do anything about the liver and intestines, or just leave it be?? I can pinpoint exactly where mine are/is too! I was tempted before my lap to put a big black X there so they'd know to look there. Of course, at the time, I had no idea what was going on, I just knew it HURT! And my PT could find that very exact spot without me even saying a thing! They didn't do anything, but referred me to a gastro specialist. I have yet to call because I'm afraid this means another surgery. I was a little glad to find out they were there though because I've had pain there for a long time and the last time I mentioned it to my primary care doc a few years ago he tried to tell me I have having phantom pains. Hmm...yeah...dude...I don't think so. Isn't it amazing how you can tell where they are!! And for your PT to find it too is pretty impressive.
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Post by JC on Apr 17, 2011 8:44:41 GMT -5
Jenaya, if you are miserable maybe it's ok to go back on it and just use the blood thinners....is there any danger to taking blood thinners until you hit menopause? Eh, I'd rather not. LOL If I ever got injured in an accident I would just bleed to death. I literally drive with white knuckles cause I'm afraid to wreck and die. LOL I'll figure it out. I'm not done with the natural route yet.
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Post by omaklackey on Apr 17, 2011 16:53:16 GMT -5
I kind of feel like the Gallbladder surgery I had brought endo up into my tummy (or it was already there but it stirred it up) Thats where I feel the ahesions are the worst. Its all lumpy and sometimes massaging it makes if loosen a little bit. My pelvis is all frozen and nasty but I can't feel individual stuff in there, just one big ugly band of yuck.
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Post by Karen on Apr 17, 2011 17:14:27 GMT -5
You can get adhesions from any type of surgery, so I wouldn't be surprised if some formed after your gallbladder surgery. My dad described how his felt, and when he was at work one day contorting himself into a weird position to fix a machine, he said he felt it snap! Didn't hurt, but he said it felt better after that.
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cassia
Junior Member
Posts: 89
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Post by cassia on May 2, 2011 2:46:23 GMT -5
Anytime I stretch in the morning, I can feel pulling on my right side near the ovary. I wonder if this is related to adhesions.
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Post by jessabug on Jul 28, 2011 2:27:32 GMT -5
Ever since the week before my lap (all the way up until exactly this moment) I feel a weird pain similar to a pinched nerve right where my left ovary is. I described it once to my boyfriend like a little gnome is inside me, squeezing the head of the ovary and mischievously squeaking, "tee-hee-hee!" ... Sometimes this gives me the urge to stretch, and that can help it... but if I hunch up the left side of my body (sitting cross-legged with my elbow on my left knee and my chin in my hand, for example) it feels even worse. Sometimes it will throb a little if I'm just laying on the couch, but it tends to have a radiating/tugging feeling when I'm moving around. So now I'm confused! Endo or adhesion pain? Ho-hum. Maybe my little gnome will tell me
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Post by Lady Tewlie :P on Jul 29, 2011 21:40:42 GMT -5
That's funny about your little gnome. I think I may have used a similar analogy with my post-lap healing pain, swelling, and nerve regeneration twinges. Except I referred to mine as a gremlin. I've had all kinds of weird stuff happen since my lap surgery to remove fibroids and endo. Apparently what was causing the most problems was the golfball-sized subserous fibroid on the outside of my uterus. It was tucked up under the utero-sacral ligament, and when I would have my period it would push on my intestines and a nerve that pinched up in my neck and shoulder. They cut the fibroid off and cauterized it, and it looked like something took a big ol' bite out of it. They also removed a bunch of small, almost proto-fibroids from all over the outside of the uterus. After the second week post-op I got a sudden sharp pain in the removal site, and I got really scared. It calmed down but stayed a while as a dull ache that lasted on and off for a couple more weeks. It was like someone was taking a dull spoon and jabbing it into the crook there where the fibroid was removed. I've been feeling nerve-regeneration twinges in the abdomen, but over the past week I've been feeling nerve twinges in my legs and sometimes my arms, just like carpal tunnel. I'm afraid there is nerve compression going on, and I'm afraid it won't go away. I'm still wondering if I didn't start developing a post-op adhesion, which has started compressing a nerve. The past two days it has been really bad, and I can't get comfortable, no matter what. The surgeon used Interceed, but one thing I was reading was that you have to make sure to lay it very flat on a surgical site, and there shouldn't be multiple layers. Studies seemed to indicate that multiple layers or bunches of Interceed could even cause adhesions. I have pictures from the surgery, and it looks like there was a little bunching of Interceed on the fibroid site (they practically wrapped the entire uterus), and then there was a bunch over the endo that almost looked tied in a bow. And double whammy, the endo was very concentrated in the area with the giant fibroid, so there is all kinds of trauma there, and there appear to be two sets of Interceed very close together, possibly pressed together. I can almost deal with pain, but this electrical shooting-tingling sensation is driving me absolutely insane. I can't find a position where it isn't bothering me. I'm driving my husband nuts fidgeting for a comfy position while we're sitting watching tv or lying in bed. He never complains, though, although he kindly offers to move to an adjacent recliner so I can stretch out. And probably stop making him seasick! On a positive note, though, I've had a lot less digestive trouble since they took all that stuff out. While I was healing I could tell exactly where in the "process" the growths were, and it was clear it was contributing to my ibs problems.
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Post by JC on Aug 2, 2011 17:11:36 GMT -5
You can get adhesions from any type of surgery, so I wouldn't be surprised if some formed after your gallbladder surgery. My dad described how his felt, and when he was at work one day contorting himself into a weird position to fix a machine, he said he felt it snap! Didn't hurt, but he said it felt better after that. I think I felt exactly what your dad described! There have been a few times where I have taken a deep breath and have felt a snap inside. It doesn't hurt, it's just a freaky feeling. I hope I'm not snapping stitches!
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Post by jessabug on Aug 3, 2011 19:25:00 GMT -5
Hey girls I have a question!
I've started to get a little confused about all of this adhesion talk. What is the difference between adhesions and endo that glues your organs together? Like I've heard stories from other girls on the forum whose endo was advanced and had gotten organs tangled up and stuck together, etc.... and I always thought THOSE were adhesions... but then I'm also hearing things about how adhesions form after surgery, and that they are a pretty normal thing? I think I've gotten myself confused.. and was hoping that maybe someone could iron this out for me so that I can better understand!
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