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Post by 1234 on Aug 3, 2011 19:38:20 GMT -5
THey are both adhesions . Adhesions develop from endometrial implants AND as scar tissue from surgery--particularly when lots of endo implants and adhesions have been cut off organs. There are a few products that surgeons are putting in to stop teh development of the surgical adhesions, but I don't know how widespread that is. Someone who knows more than I will have to answer!
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Post by jessabug on Aug 3, 2011 19:45:49 GMT -5
How interesting! Thanks for the tip myrtle!
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Post by jessabug on Aug 3, 2011 19:46:41 GMT -5
PS -- another question: are adhesions what hurts us all the time? Or is it the lesions that hurt so bad?
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Post by 1234 on Aug 3, 2011 19:50:11 GMT -5
I'm in a bad mood and a ton of pain right now so I'm just gonna say EVERYTHING hurts us. I think they all hurt in different ways. tugging/binding organs and pelvic walls hurts; implants/lesions hurt; endometrioma hurt; the internal swelling from all of this going on + hte internal bleeding hurts. However, I do have to say I myself don't even know what hurts for sure. We'll have to wait for a more knowledgeable person!
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Post by jessabug on Aug 3, 2011 19:54:54 GMT -5
Where's Karen?? Haha. I feel like she's the omnicient one I'm sorry you're hurting!!!
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Post by Karen on Aug 3, 2011 20:18:35 GMT -5
In my experience and from reading, adhesions pain is often a tugging sensation, and endo lesions are more burning. There are obviously different variations, but I think a lot of women can relate to those descriptions.
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Post by 1234 on Aug 3, 2011 20:22:33 GMT -5
Thank you, Ms. Omniscient!
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Post by Karen on Aug 3, 2011 20:26:02 GMT -5
Let's not go too far!!
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Post by Lady Tewlie :P on Aug 3, 2011 22:16:34 GMT -5
Hey Jess - when did you have your surgery? I'm just curious how long it has been for other people who are still feeling pain. I'm starting to suspect I might have some adhesions. Or something weird post surgical.
It is just 4 days short of 2 months since I had my surgery, and recovery has been up and down the whole time. I was feeling almost normal, then I think I got a cold or something from work, so I got really knocked out. The pain was getting better, but at the two week mark I had sudden pain at the spot they took stuff off from. It got better, but it's been a roller coaster, and this past week it got really bad. It felt like a burning, aching, tugging sensation, and I suddenly lost my appetite and felt like crap.
I called my doctor's office and got all kinds of idiocy from this stupid nurse there, but I finally got orders for a pelvic sonogram and transvag sonogram (fun), which I had done today. I have an upper ab scan tomorrow.
The weird thing is that after the tech did a lot of imaging in the main area of pain, it almost felt like whatever was tugging or spasming or whatever loosened up. I mean, she was pushing the spot relatively hard, and she was pushing the wand thing down into it a good bit. (The sonogram, not the transvag - ew!)It's not completely gone, but it really let up. And a couple hours later I felt like I could stand to eat for the first time in days. Like an actual appetite vs forcing food to keep from passing out.
I had carpal tunnel release surgery a few years ago, and afterward they had me get physical therapy and massage on my surgery site to loosen up the hard scar tissue. Do they do this or abdominal surgery?
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Post by jessabug on Aug 3, 2011 22:24:18 GMT -5
Oh no! Me too I had my surgery on I believe June 22, give or take a day. I began feeling post-surgery pain around the 4th of July, and it's escalated since. I feel crazy sometimes, but I seem to be re-developing more and more pain symptoms every day. It's not new pain -- it's all the same stuff it was before, which is why I worry that it's endo pain and not healing pain. When I went to a new gyno to be checked, she told me (based on my pelvic exam) that I am full of adhesions. If you're still in pain, it's possible that you may have developed some! I'd suggest visiting your OBGYN to get his or her opinion.
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Post by jessabug on Aug 3, 2011 22:24:52 GMT -5
Oh wooah! you edited your post! haha hang on let me re-read it and add my thoughts lol
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Post by jessabug on Aug 3, 2011 22:28:30 GMT -5
To my knowledge, both are options, but Pelvic PT is more highly recommended because it helps to loosen and break up adhesions so that they become less painful. The reason that surgery is regarded as less useful is because adhesions often grow back at the surgical site so if you have surgery done to remove them, there's a chance you'll only experience temporary relief -- until they grow back! Lucky for you I happen to have done research on this for myself only an hour ago because I too was curious about them! If you're interested in physical therapy, you should talk more about it with Karen or look up the threads on it which I'm sure we have! Karen is a strong advocate for PT, and the more I hear about it (and surgery) the more I'm beginning to consider it.
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Post by Lady Tewlie :P on Aug 3, 2011 22:30:26 GMT -5
Sorry...I'm an idiot! I didn't want to have 50 posts, and I was afraid my original post would get eaten going back and forth. It has happened before.
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Post by jessabug on Aug 3, 2011 22:34:23 GMT -5
Lol that happens to me all the time! I wish I had been clever enough to think to edit
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Post by Lady Tewlie :P on Aug 3, 2011 22:39:22 GMT -5
Thanks for the quick response! Sorry for the confusing edits.
Your situation sounds exactly like mine. It isn't new pain. It's definitely pain at the site where all the stuff was concentrated (endo and fibroid). The past few days it has been almost like a twinge or spasm. Sometimes it radiates a bit, and sometimes it seems to feel like a generalized ache or burning closer to the surface around the incisions.
I think the most distressing thing has been that the doctor said I should expect recovery to be 7-10 days. I get that not everyone is different, and a lot of people recover without problems, but I went back twice and he says everything is on track, and from what I can tell, there are tons of people out there who have taken much longer to recover. I just wish they would have been more straight with me from the beginning that 2 weeks is the norm but not to freak out if it takes longer. I think i wound up spending way too much time obsessing and scouring the internet trying to figure out what's wrong with me.
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