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Post by ovarianmutiny on Jun 10, 2011 7:17:33 GMT -5
So I was wondering if anyone else experiences this, and what it could be from! I've actually only had a UTI one time, when I was much younger, but I remember the symptoms well - urgency and painful, burning urination. I almost wanted to hold an ice pack on my urethral meatus afterward!
However, what I have now is nothing like that UTI. That makes sense, because I've been tested for UTIs with a urine dip repeatedly (that seems to be the only thing that's been done at every doctor's visit!) and they have all come back negative. Also, although I haven't seen the results myself, at least one lab test for WBC levels (while I was having this problem) has come back negative as well.
Basically, what happens now is twofold - first, I notice that the pain I have (it's always in the same location, around my left ovary) begins to increase and cause sharp pangs when my bladder is full. I also get some general pelvic discomfort (2/10 pain) over my whole lower abdomen, but I think I usually discount it because the ovarian pain is so bad. Then, when I actually urinate, the ovarian pain is relieved until the END of the urination. At the end of the urination I get sharp pain over my ovary again, also, the urine stream stops, but I can start it again voluntarily. It seems like there is still urine left in the bladder, but I have to force it out or something. I thought maybe this was just an issue of compressing the ovary by "bearing down" with my abdominal muscles, but if I really focus on relaxing then and letting my bladder do all the work, it's still just as painful.
Does this sound like endo in/around/on the bladder if you had that? Anyone here have Internal Cystitis that presented this way? Should I talk to the specialist about this, or I am just being paranoid?
Thanks in advance!
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Post by omaklackey on Jun 10, 2011 12:12:25 GMT -5
of course you still need your lap ova, but I get the same thing (no ovary now but pain during urination) and my urologist tested and I was actually not emptying out my bladder. He said its due to the endo that is actually in and around the muscle of the bladder. Remember that bladder is a big bag of squeeze so having endo adhesions anywhere near it are going to get rubbed and tweaked every time you go. My biggest advice while your waiting for a lap is DRINK, DRINK, DRINK! The majority of my symptoms for my bladder ease when I'm drinking like I should and when I don't it feels very much like a UTI. Good clean water is the best!
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Post by gemstone on Jun 11, 2011 8:01:23 GMT -5
I've been getting urinary problems more and more recently. After I pee, I get a really sharp pain in what I assume is my urethra? It's really uncomfortable and takes ages to go away. Very annoying.
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Post by ovarianmutiny on Jun 11, 2011 14:38:22 GMT -5
So as I posted on my Intro Thread, today my bladder is apparently quite angry. I have very intense cramps over the left side of my mons pubis, sometimes shooting down into my groin. I'm hoping (in a weird way) that it's endo and not a bladder infection because I've had WAY too much of the doctor's lately. That being said, I am also holding out hope that something else is a source of my pain - something curable!
Until then, I'm just hanging out and living with the pain. I am still having trouble with BMs so I am avoiding painkillers. *sigh* Ain't life grand?
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Post by JC on Jun 12, 2011 15:24:33 GMT -5
Can't a girl just poop and pee? LOL that's what I always think to myself when I sit on the toilet only to have nothing come out. I feel your pain! How are you doing today?
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Post by ovarianmutiny on Jun 13, 2011 13:51:01 GMT -5
Thanks for asking, Jenaya! I think somewhere I read that you were/are in med school? I'm currently getting my doctorate in the allied health professions, so I can empathize with pain and a FULL course load/clinical load!
I'm actually doing better today. It still hurts when I urinate, but I'm not getting the "electric shocks" I was getting. So the good news is it's not a bladder infection (no cloudy urine, no burning urethra, no blood in the urine, no temperature). The bad news is - it's not a bladder infection. So WTF was it? No clue.
Anyway, I've had a couple of good BMs thanks to some Senna tea and that seems to have improved the situation. I rarely have pain in my GI tract - it's just that when it backs up I get pain on that durn left ovary! Waiting for my consult with a new RE...and trying to stay optimistic that THIS healthcare provider will be the one who can help me! ;-)
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Post by pretty on Jun 13, 2011 13:56:29 GMT -5
inflammation brought on by foods that irritate you can cause painful urination and hesitancy. The endo diet helped me with this but when I cheat on the diet I get mad pee issues. I know it may seem too simple and I can't remember where you are with diet - might be something to look into.
•DAIRY >(All pasteurized dairy products) - AVOID
•REFINED SUGARS (white sugar, brown sugar, confectioners sugar, corn syrup, processed corn fructose, turbinado sugar, etc) - AVOID
•CHEMICAL SUGAR SWEETENERS - AVOID
•MSG (Monosodium Glutamate or Hydrolyzed Vegetable Protein) - AVOID
•ALCOHOL - AVOID
•CAFFEINE - AVOID
•RED MEAT - Reduce or Avoid
•PROCESSED FOODS - Reduce or Avoid
•COMMON TABLE SALT - AVOID
I would add wheat to this list as well as any food that you are sensitive to.
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Post by gemstone on Jun 13, 2011 14:07:45 GMT -5
Actually, since I last posted in this thread, I have been 100% on the endo diet and my peeing issues have cleared up! I should have related them really! So Ova, definitely look into this.
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Post by JC on Jun 16, 2011 5:52:29 GMT -5
Thanks for asking, Jenaya! I think somewhere I read that you were/are in med school? I'm currently getting my doctorate in the allied health professions, so I can empathize with pain and a FULL course load/clinical load! I'm actually doing better today. It still hurts when I urinate, but I'm not getting the "electric shocks" I was getting. So the good news is it's not a bladder infection (no cloudy urine, no burning urethra, no blood in the urine, no temperature). The bad news is - it's not a bladder infection. So WTF was it? No clue. Anyway, I've had a couple of good BMs thanks to some Senna tea and that seems to have improved the situation. I rarely have pain in my GI tract - it's just that when it backs up I get pain on that durn left ovary! Waiting for my consult with a new RE...and trying to stay optimistic that THIS healthcare provider will be the one who can help me! ;-) HI! I don't know how I missed this post. I'm sorry! I'm actually still doing my bachelors. I plan on going to medical school. I'm actually studying for the MCAT this summer. Congrats on the pursuit of the doctorate! That's awesome! I was going to mention that I get almost the exact same symptoms you describe with funky urine. When I get the symptoms I always think I have a bladder infection but then it seems to go away. I have noticed that if I haven't had enough water then I'll get the symptoms back. That's a big one for me. If I am dehydrated my urine gets really gross and peeing actually burns. When you get these symptoms, it would be interesting to see what would happen if you drank enough water to get your urine to run clear. Then see if your symptoms get better. I read somewhere that when your urine becomes concentrated some of the by products of waste that your body tries to get rid of can cause these types of symptoms, particularly by products of bacteria that your body destroyed and is now trying to excrete through the urine. That ovary pulling pain really does sound like adhesions, kind of what I mentioned in the other thread. When your emptying your bladder it can cause some pulling on those adhesions which could explain the pain. I don't remember what thread it's in but someone said that when you have a bowel movement, a more natural postition for your legs is with something under your feet to being your legs up closer to your chest, especially when you're straining hard. I wonder if you put something under your feet when you try to urinate, it might help with these pains you feel and help you empty your bladder easier without having to strain so hard. It might also help with that pulling pain in the ovary. I'll have to dig for that thread. It was really interesting and it works for me when I have my fun little constipation issues. BTW, love senna tea. It's my savior.
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Post by ovarianmutiny on Jul 31, 2011 13:22:00 GMT -5
Thinking about the endo diet, because nothing else is helping and its getting worse. :-(
So if you guys have been following my intro thread, things are getting pretty nasty in my neck of the woods. I've developed increased pain with a full bladder, and very painful urination (feels like my bladder is having bad cramps). As my bladder contracts to push out urine, I get a burning pain in my low abdomen. My urine does not burn as it exits, and it is clear (not cloudy, concentrated, bloody, or funny-smelling). No fever - other than pelvic pain, I have no issues.
Additionally, I've started to have urge incontinence. Without warning (perhaps when my bladder reaches a "full" point?) I have a sudden, UNCONTROLLABLE urge to pee. I can usually still hold it to get to a bathroom, but it HURTS. Notice I said usually....I've now had 3 "leakage" episodes. I feel like an old lady!
Today I drank coffee for the first time in months, then went for a walk. WOW was that a bad idea. I almost didn't make it back to the house (had slight leakage in my underwear) and was in 6/10 pain. When I voided urine I also had diarrhea and was just about crying from the pain of having a bowel/bladder void. I hadn't taken any painkiller today because I was trying to see if I could go without it, but my bladder hurts SO MUCH that I finally gave in and took ibuprofen. 15mins later and I'm already starting to feel a LOT better.
Doesn't sound like a bladder infection to me - ibuprofen helps, no bleeding/cloudy urine/fever. I'm worried that I might have kidney problems because I do get left sided back pain all the way up to just below my shoulder blade, which has started since I had this urine problem.
I'm coping by not drinking much while I'm at my clinical placement - if I don't have a full bladder, I do better. I KNOW that's awful for me, but otherwise I'm running to the bathroom in the middle of treating patients (a MAJOR no-no). Any advice, endo sages?!
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Post by Karen on Jul 31, 2011 14:26:19 GMT -5
Have you had a urine test or any kidney tests? When I've had bladder infections, I haven't always had the 'typical' symptoms at all and despite being told I had a lot of blood in my urine, I couldn't see a thing. It'd be an easy thing to at least rule out if you haven't already.
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Post by ovarianmutiny on Jul 31, 2011 18:33:01 GMT -5
HA. Well, that mystery is solved. Today was so horrible with bladder/urination because I started my period today! *rolls eyes*
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Post by semicolon on Oct 5, 2011 7:42:18 GMT -5
I'll add to this thread (painful urination, a classic!). My surgeon took a lot of endo off the outside of the bladder and checked & said the inside looked good. But I still seem to be getting pain when urinating during my period. Other times of the month it is okay (so far). Is this true for anyone else? I really want my "good days" stay good! The bladder flap was adhered to the uterus and is likely to get re-stuck a bit, I wonder if that would be why it is more noticeable at that time of the month??
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Post by omaklackey on Oct 5, 2011 10:38:50 GMT -5
It was definitely true for me, horrible pain when peeing. I went to a Urologist and he blew me off. Then when I to Dr. Mosbrucker she did a hydrodistention and found a severe case of Intersitital cystitis. There are two threads about it. Please see a urogynecologist and tell them what is happening and ask for a hydrodistention with cystoscopy. In my research of what IC is I have found so many people who were told they were fine until they had the hydro!! I had endo on the muscle wall of the bladder that was removed as well as a large tear in the muscle was fixed but the real pain was from the IC which was most likely caused by the bladder endometriosis!
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Post by semicolon on Oct 5, 2011 13:23:58 GMT -5
Was your pain all the time, or moreso during your period? I've looked into the symptoms for IC and they don't seem to match, but maybe I am in the early stages. I'm definitely frustrated!
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