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Post by JC on Aug 23, 2010 14:51:39 GMT -5
I used to have tons of cramps after an orgasm. It's so sad! It happened every time, no matter how I achieved it. It gets really depressing because the cost almost outweighs the benefits. I just dealt with it because there was nothing I could do. The cramps weren't disabling but they did make me really depressed because you almost dread an orgasm. Isn't that awful? To dread an orgasm? My pain didn't go away until I got onto the nuva ring. Have you talked to your doctor about this? Do you take anything for it when you do get cramps like motrin?
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Post by Karen on Aug 23, 2010 17:09:58 GMT -5
Have you tried taking pain pills before sex, in an attempt to lessen the pain even before it starts?
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Post by helinor on Aug 23, 2010 17:13:32 GMT -5
Hi Jenaya, in a weird way I'm stoked to know I'm not the only one! I don't take anything beyond panadol and magphos salts, I've gone down the gnarly drug road and nothing works so I feel better psychologically if I take the kindest stuff and the magphos salts do help a lot. I take them as maintenance everyday as well as a double dose when I'm in extreme pain. I've never heard of a nuva ring before. I'll ask my specialist when I next see her.
Thanks for ideas about pelvic physio too, I made an appointment this morning for Friday and just being proactive helps my attitude a lot! Also my osteo discovered yesterday that my bladder was in completely the wrong place following the surgery and since that's been put back where it's meant to be I'm feeling loads better! I didn't realise how much the surgeons could manipulate your body.
Thanks again, so, so good to feel hopeful!
H.
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Post by helinor on Aug 23, 2010 17:14:25 GMT -5
Oh Karen, I hadn't even thought of that, so I'll try that too! Thanks for pelvic physio idea as well, see above, I got straight onto it!
H.
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Post by Karen on Aug 23, 2010 17:37:20 GMT -5
Good, glad you were able to get in right away! There's a whole thread on pelvic physical therapy in the Natural Treatments board that may be helpful for you to read about in advance.
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Post by amber84 on Sept 6, 2010 23:43:27 GMT -5
So I must say that after all the time I have spent reading through these threads, I have never seen this one. I am very sad to know that other women are experiencing the same thing as I am. I must say though that I thought I was the only one apologizing to my husband for not being able to have "normal sex". I have only ever had one partner- my husband- soon to be 5 years married. He is the most amazing, patient, loving man! He takes his time and he tries to take care of me....but there's nothing!!! I used to be able to enjoy clit stimulation but never an orgasm. Yes...N E V E R. Due to Stage IV Endo the only thing I can associate with sex is pain. I'm not interested and it doesn't feel good. At this point my pain is so out of control that if my DH touches my skin or kisses me I begin to cramp. Does that or has that ever happened to any of you?? We haven't had sex in 3 months! And although we have never had a very active sex life (because of the endo) I feel terrible for my hubby. I've even tried to take care of him -since intercourse is out of the question- and he refuses. If it isn't mutual and I can't enjoy it too then he doesn't want it. I love my husband and I love being intimate with him....BUT... I would really like to enjoy sex. I will be having TAH next month so from what I can tell this will only get worse. I think one thing I would like to share that I found was very important in my relationship was communicating to my DH that it wasn't him. It was already mentioned that many men equate sex with love. I had to be clear that I wasn't rejecting him. And the fact that I am unable to orgasm is not his fault. I can't imagine him being more loving and trying any more to please me....unfortunately I am sick. I have a disease. This really helped him not to be upset with me and to not be so hard on himself. NOW that being said....this line of reasoning of course doesn't apply to all men. Many of them wouldn't know what to do with "it" if we gave them a step-by-step pop-up book and put the instructions to music!! LOL Thanks for sharing all the great tips! Wish I would have found them years ago! First thing I will try when I can is the Olive Oil.....intriguing
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Post by helinor on Sept 7, 2010 20:05:59 GMT -5
Hi girlies,
After doing the tennis ball therapy that I wrote about in the 'how much pain is enough to go to hospital' thread I was able to be completely intimate with my partner and orgasm and HAD NO PAIN DURING, OR AFTER. It was amazing. We were both almost holding our breath in case I would feel pain and there hasn't been any. My libido is back because of it! Might be worth a read.
H.
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Post by hellsbells on Sept 27, 2010 13:17:27 GMT -5
Just saw this, nice one! That's so nice to know you've been able to have a good shag with no side effects! Woohoo!
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Post by gemstone on Sept 27, 2010 14:14:28 GMT -5
Yay for sex! It's such a good feeling being able to be intimate with someone you love - or as hellsbells put it, have a good shag!!!!!
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Post by katlit on Sept 30, 2010 21:43:25 GMT -5
in a werid way, im thankful that we can talk about painful sex because ive felt so bad and wrong because of it. I've always had painful sex and its not just the pain that hurts, its knowing that after sex i cant do anything. its hard to sit down, i can't even go the gym the next day sometimes. and i'm scared to have sex because its painful. my bf is so amazing and understanding. he makes the jokes hes too big thats why its hurting.. lol i let him think that.. I will try the olive oil next time and ill go and have a look at the tennis ball. 1 thing i also do is take painkillers before so its not that bad. and we do have sex toys so it makes it fun for me aswell. I feel so empowered finding this website and everyone.
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Post by Karen on Sept 30, 2010 22:32:06 GMT -5
he makes the jokes hes too big thats why its hurting.. lol i let him think that.. That's hilarious! We'll let him think that, too. Somewhere on here, a member mentioned that there's a whole group of women out there (endo) that are in search of a man with a small penis! I can say I wouldn't be disappointed...
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Post by gemstone on Oct 1, 2010 7:01:54 GMT -5
Nowadays I have to stop intercourse after about 5 mins which sucks, and I bleed almost every time Last time I didn't bleed which was great - this was on Sunday I think - but I have had pain and the usual brown coloured blood ever since. I love sex but this really does suck. Good job I like sucking (sorry, couldn't resist the crudeness!!!)
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Post by JC on Oct 1, 2010 7:08:46 GMT -5
in a werid way, im thankful that we can talk about painful sex because ive felt so bad and wrong because of it. Here's what frustrates me. How is this any different than a man experiencing sexual dysfunction? Here we're suffering, SUFFERING! Feeling like less of a woman, PAIN. And then you see all these drug treatments, commercials, and compassion for a man who can't achieve an erection. Why don't WE get help??? We just get told that it's girly pain, not a big deal, suck it up, blah blah blah. It infuriates me every time I see a erectile dysfunction commercial. Men aren't the only ones suffering out there but yet they're the only ones that get help!
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Post by Karen on Oct 1, 2010 11:18:26 GMT -5
I hear you, Jenaya. My lasted peeve are the commercials for low testosterone. they say it's a medical condition... That would be called AGING since levels decrease as men get older! And I think what they are selling is bio-identical!! Yet I'll be damned if there is anything being advertised to help women... Sex for women is very intrusuve, and if the shoe were on the other foot, men would NOT settle for the answers us women get, and science would be very swift to 'fix' it.
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Post by grneyes1281 on Oct 17, 2010 0:06:49 GMT -5
hi all.... totally suffering with sex!! it never bothered me before, but when my endo symptoms started to show, the sex started to hurt. i totally dread it. i don't feel any cramping but my vagina is sore...no matter how lubricated i am. it's painful and i dread it. are there any tips on any creams that may help after sex? it's awful for me now. it was never like this. i had a pap in sept and it came back normal, so everything else is normal. thanks for reading
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