|
Post by butterfly80 on Feb 2, 2013 21:24:47 GMT -5
I almost went to the ER last night but talked myself out of it even called the health line and was advised to go but was almost in too much pain to go do I just laid and didn't move..
|
|
|
Post by MustangGtGirl on Feb 3, 2013 11:09:09 GMT -5
Do not second guess yourself if you feel you need to go to the hospital you should go. No one knows your body better than you.
|
|
|
Post by butterfly80 on Feb 3, 2013 14:51:26 GMT -5
Thanks!!
|
|
|
Post by butterfly80 on Feb 7, 2013 11:16:47 GMT -5
So I am generally a very positive person...I had my years of battling depression,.been hurt several times, betrayed, lonely, depressed, fought for life and have overcome so many obstacles...I traveled a rough road but I traveled a road that was for me and came out so much stronger I am proud of all that. And all the while I always lived got Hope...always had Hope!! But lately that Hope is being challenged...yes I was hit with wall after wall in my life but it never gets ready being hit with walls. I been doing so great..came off my medication for anxiety and depression just this past late fall and been doing good. The medication was not for this pain I been in so was coping well without the meds. But I guess between the meds getting out of my system, my pain increasing, my emotions and mentality working on its own with out the balance of meds,,.feeling defeated and not understood for the pain I am in, having pain all the time on some level, and waiting waiting waiting One is bound to start to feel sad, depressed, alone, and the list goes on...... I am one who believes in being positive and enjoys being active, smiling , and so forth but that is seeming to be clouded over. I do work but am on call so depends if I get called into work How my days go and lately work has been slow...well my place of work is busy but people not taking time off.. I do volunteer at a few different things but have not been having meetings with that or just taking time away from going into places as the pain is one thing but then the emotions is another.... Do I feel bad?? ABSOLUTELY!!!! I am worried where this may lead though...I guess I got to just get over the fact that my gynecologist appt is July,.and until then I Have to live in pain. I have tried 4 different types of meds for pain and none work, and the most recent ones are making me sick with side effects so and they do not relieve the pain any so think I will stop them. I feel bad posting here like this and telling friends and family I am in pain because I do not want to sound all negative, or like a complainer. And I definitely do not want to go on feeling like this. Got to try and shake it but keep saying"tomorrow" . I don't want to let go of my HOPE as I need to hold on to something that this will get better... I wake up in pain and go to sleep in pain. The pain I am coping with though I guess as have learned to cope with it...but am constantly reminded of the pain...and then on days when it is increases I worry more. Honestly I am a generally positive person...but this is certainly taking its tol on me:( The past few days I Wake up, shower, lay on couch with heating pad, bath, bed with heating pad, and do repeat the next day. I think the meds messed with me too big time! Think this was an extra rough week Does this speak to anyone?? Or make sense to anyone?? B
|
|
Wendy
Junior Member
Posts: 74
|
Post by Wendy on Feb 9, 2013 0:43:59 GMT -5
Yup, this speaks to me...to all of us, I'm sure. I too am an optimist at heart, so I can always see at least a faint light at the end of the tunnel...it's just that the tunnel sometimes seems overwhelmingly long.
|
|
|
Post by butterfly80 on Feb 9, 2013 13:00:51 GMT -5
yes I agree..very long tunnel!!!
|
|
|
Post by butterfly80 on Feb 12, 2013 1:47:36 GMT -5
I am so bloody annoyed right now yet another sleepless night due to pain..I toss and turn and toss and turn..I know another hour has gone by when my heating pad cools off as it shuts off after an hour.. So I turn it and and continue to toss and turn! Is it too much for a woman to ask for a bit of ******* shut eye??? I had regular pain today and even yesterday but nights hit me bad and I think I am moving into ovulation now which means the pain of course will increase. Feels like something is stabbing my right side and ovary and squeezing it inside right across low abdomen, all the while at the same time I get sharp piercing pain up through vagina or down through... Bad pressure there what is up with that?? the pain in low back I do not know if that is endo or if it is just low back pain.. Lie on stomach, side, back, curl in fetal position, lay straight, legs over bed, legs up, legs down, geeze feels like i'm doing the hokey pokey !!! 3:15am..maybe sleep will come soon, last night I got about 45mins before I had to get up for work. pain is like contractions that are 5 seconds apart....
|
|
|
Post by butterfly80 on Feb 15, 2013 14:43:54 GMT -5
Hi, I was unsure of where to post this..but feel free to move it..
Just wondering how serious pain with endo is viewed by Dr and ob/gyn..In hopes of finding yet another obgyn with a sooner appt I been calling around to different places, my Dr would still have to make the referral but figure if I someone sooner with earlier time then I will just get my Dr to make referral.. Do I called a place today and like most the response is roughly 5 months but today the receptionist said "unless it is serious then we get you in sooner" I was shocked to great that and am use to saying"ok thanks" after hearing at least 5 months and then end the call.. I then wondered does this mean by problems are not serious and that is why I haven't gotten in sooner with other ob//gyn's.. As to me this pain is serious, and reading everyone elses post here I think the pain is serious. But when referrals ate sent off are they considered not serious or urgent?? Frustrates me how that is. I won't type anything else as about to go into a rant and this isn't the rant section... But just wondering do others think enfo is serious, should I call back and ask if I be considered serious, should I go back to Dr again and ask it go in as serious or is thisnot serious ??I feel it is serious but am I just wishing it was??
Any thoughts, feed back be great! Thanks
|
|
|
Post by omaklackey on Feb 15, 2013 21:31:49 GMT -5
as much as we like to think it, pain really isn't going to bump you up. Pain is subjective like it or not. Its not supposed to be but it is.
Serious is: history of small bowel obstructions partial or complete, urinary obstruction, hemorrhage, or ovarian cysts. If you can't wait five months you may want to consider getting your PCP to work with you and get you into a pain clinic or on a pain contract instead. Its frustrating to treat pain without knowing the cause but in the medical system we have, that is often what we are stuck with.
I would also consider alternative treatments first though. Diet, exercise, massage therapy, heat therapy, TENS units. I struggled with that impatience when I finally decided to go to a specialist and I knew it was going to be a very long wait, I realized I had to take a step back and get it out of my head. focus on something else. Start talking short walks every time it gets bad, or my favorite, I clean house. LOL Just getting my focus on something else can make a huge difference.
|
|
|
Post by butterfly80 on Feb 15, 2013 22:05:27 GMT -5
Thanks...yeah I have cyst on ovaries and one on uterus or just behind. But yeah pain is not serious, I would actually need my vagina to fall out as opposed too feeling like it is falling out I exercise a fair bit, love to Workout, keeps me sane lol. I do the heat therapy and just started massage again a few Weeks ago, so far had two and going next week, love massage!!! Starting back on birth control this month too as much as I don't want too I agree with the focus..I get stabbing pain though so am reminded of it but usually try to keep going. The worst is when pain is intense but on regular pain days I cope and do much better. I am going to suck it up and wait for June as realize I am not getting no where...maybe a cancellation will come up..if not so be it! Cant wait for my massage
|
|
|
Post by marleybee on Feb 17, 2013 10:07:47 GMT -5
Hello, I was reading about your struggle in finding an appt. I understand the way you feel. Have you thought about looking into another gyn in a different area. I had a similar problem with my gyn. After having an ultrasound and getting the info reviewed she told me that I should try some stool softeners because I was having lots of pain and difficulty with my bowels and see if that did not relieve my pain. If I was still hurting 2 weeks later then I should call her and we would decide how to proceed from there. After one week and getting my bowels regulated my pain got much worse instead of better. I was laying in bed in tears every night. I decided to call my gyn early because I could not take the pain anymore. When I called I was told that my gyn would have no available appts for at least 2 months even to see me for 20 minutes at either of her offices. I was hurt and confused. I did not understand why she wouldn't have just made me an appt when she told me to call back. I gave the nurse my number and told her to call me if anything came available. I called my mom (who is an RN) and she told me that she would be calling the gyn and making sure that I would be seen because waiting until April with such pain (like you, I almost went to the ER several times but was so embarrassed that I would not bring myself to actually go) otherwise we would be going to St. Louis to see her friend's gyn. Her friend had been diagnosed with endo about a year earlier. After that phone call with my mom I got a call from my gyn the next day to schedule a laparoscopy. If they realize that you and your support system are serious and you make yourself known results can happen. I wish you the very best of luck and I hope that you get answers to your pain as soon as possible. I'm glad that you have your massage to look forward to! Let us know if you find anything out!
|
|
|
Post by butterfly80 on Feb 17, 2013 22:08:31 GMT -5
Hi, I am trying to explore options yeah and make calls to no real avail yet. I would have to travel by plane to in order to see another gyn anytime sooner. I am going to call my gyn office on a regular basis though to see if their are cancelations or anything...even though I am on the list i will call too and just see if it helps any. I will keep you posted for sure and thanks for the message.
|
|
|
Post by butterfly80 on Feb 19, 2013 16:03:38 GMT -5
I think I have become a gyne stalker lol. I have exasperated all possible solutions...can't say i didn't fight or try. I am a naturally determined person..ok determined and stuboorn but the two together go great lol. I had a few days of regular pain which was tolerable..annoying but i mean i coped then last night BOOM intense pain and took forever to fall asleep as i rolled and tossed that much in the bed i am surprised i didn't give myself whiplash...in the end i found myself curled in a ball also known as fetal position I am thinking i stayed that way all night as i woke sore , stiff, pain, and had a moment of oh sh*t can i move..I did and it hurt lol..Today pain is there with a pressure down there and a sharp twinging in my ovaries. But i cope It was good to have a few days of regular pain i forget how much i can take that pain until i get bad pain.. I am at day 19 in my cycle..thinking ovulation ran a little late for me and maybe that is what the pain last night was...But i know my period is just around the corner and i am dreading that..they continue to get worse and worse ... I stay positive though and think maybe i will get a break this month and it won't be as bad as really could it get worse..we shall see. But i doubt i will ever have a "Happy Period" as always like to advertise...i feel like writing them a letter hahah. But i guess as you can ssee i am still in somewhat good humor. a little crooked but i try to remain positive I had a thought today...and this is how it went "hmmmm...maybe i can go to the gyne office and pay people to have their appt , of course only if theres is not a matter or life or death.." Then i told myself to get it together haha
|
|
|
Post by marleybee on Feb 19, 2013 16:10:25 GMT -5
Keep in good spirits You are such a brave woman. A sense of humor can make everything better. I hope that you can get the help you need soon. I only suffered the sharp pain for a couple of months and even then it was enough to completely rock my world. I admire you for being able to keep a smile on your face. Best of luck and hopefully a few pain free moments!!!
|
|
Emily
Full Member
Posts: 148
|
Post by Emily on Feb 19, 2013 16:53:55 GMT -5
You are so strong and determined, you can do this! You're right, the "have a happy period" campaign always drove me crazy, you know it had to be written by men or women you have never experienced endo!
|
|