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Post by sunshine78 on Dec 20, 2010 18:56:49 GMT -5
Sweet! I like the idea of home care for her.
Keri, please rest, and take care of you. Also, enjoy your murse... especially if he wears scrubs. And ask for lots of baths, lol.
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Post by KSA on Dec 21, 2010 7:50:39 GMT -5
Things are hectic here and in the middle of it all I broke my power cord to the laptop and my desk top gets a virus. Droid wont let me log in here so I have been out of touch. I miss everyone and am thinking of all of you and wishing all a HAPPY HOLIDAY. I am adjusting to this new bag of mine and have set up our family good like a hospital room only cleaner lol~ I did pick up a bug the flu slight fever and diarehha for a few days. I have my colonoscopy on Dec 28th:) Yes I am excited I want answers. I see ob on thursday and he is pulling the results for us on the biopsy. No news is good news right? That is how I have thought about it so far it has worked. I am so happy to be home and Seth is learning every day new medical terms and how to flush IVs and all that good stuff. He is lawyer/nurse now. My sister comes over to and helps and my neighbor and friends are always on call. My mom is always on the phone checking on me so I have so much support. I just miss all of you so I have to get this computer fixed soon. Its been a crazy trip....Thanks everyone for all the thoughts and prayers. I am sending them to you as we speak. Health and Happiness for the all~ love ya!
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Post by pretty on Dec 21, 2010 8:23:19 GMT -5
Keri, having you on the mend is one of the best holiday gifts your friends can receive. We are very happy to have you back. Thanks for posting, and wishing you and yours a wonderful healing time together. Did you peek at the eclipse? Love, Lisa
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Post by cherry on Dec 21, 2010 10:25:56 GMT -5
Being cared for by family and friends sounds like just what you need right now Keri! So nice of you to pop in and glad to hear there's finally a date for that scope! Are you able to eat yet? Glad you kicked that bug too, shows your body is gaining strength by the day, big hugs xx
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Post by chicagogal2 on Dec 21, 2010 13:40:46 GMT -5
Keri - that is wonderful news! Stay positive and we are praying for you! Happy holidays incase I don't get to sent out a note before I leave for my mini trip home to Canada! I'm thinking of you!
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Post by hellsbells on Dec 21, 2010 13:54:33 GMT -5
Sending lots of love and positive vibes your way babe x
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Post by italialynn on Dec 21, 2010 13:56:05 GMT -5
Thinking of you girly girl!!! Here's to having a great Christmas despite all this nonsense
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Post by omaklackey on Dec 23, 2010 14:41:54 GMT -5
sorry about the computer troubles! I miss you Keri and I hope your holidays will be extra special!
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Post by KSA on Dec 24, 2010 17:57:35 GMT -5
My husband orderd the power cord and it came today just in time for Christmas~ I am back now and hope to be posting with support, fashion tips and whatever else anyone needs of me. I picked up another cold so I have been down a little today. I also did not take it easy as I should have and strained today to get my table cloth from a antique chest of mine WOW I had now idea how heavy a early 1900's trunk is and had to move it a little. Ya the pain brought me to my knees. I have laid down the rest of the day.
I saw my ob yesterday he is awesome I got my biopsy results from surgery it was clear. Of course GI has to release the endo scope results to me and I see him monday for my colonscopy they moved it up a day:) I am overall in good spirits I LOVE Christmas! My OB wants to see me in 2 weeks he is concerned about my not knowing the word RELAX! LOL~ My sugar is a little concern as of right now I still can not get much down then a cup of soup thru the day or a jello or juice for my meds. My sugar goes into the low 70's by the time Seth takes my TPN down at 7 to change my bag. It shows that if it continues to do this I may have became more then borderline diabetic and may need insulin. We really wont know til I have a normal diet and am off the bag.
I named the bag little guy. LOL and I can not wait for little guy to go bye bye. I may need to change the companys backpack they give us we need a little more than a black plain pack. Two things I have learned in regards to fashion the bag is horrible and the gowns at the hospital need to be changed. I know does it matter? Well I think yes we could all use a cute gown in the hospital we feel bad enough right? A little pink or a few emblishments to make us ladies happy couldnt hurt all my nurses agree I need to go in business. If only I could sew!
I hope all of you have a wonderful holiday filled with smiles and laughter:) "Too often we underestimate the power of a touch, a smile, a kind word, a listening ear, an honest compliment, or the smallest act of caring, all of which have the potential to turn a life around.”~Leo F. Buscaglia~
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Post by KSA on Dec 27, 2010 13:36:40 GMT -5
Colonscopy was today. I am still very drugged up from it. While I was in this procefure I could feel some of it and see it too. That has never happend. Doc was worried tho with PIK line and heprin. I got a small dose of the versed I think for that reason. It hurt this time my other procedures never felt a thing. GI doc found nothing wrong said colonscopy was clear he does think a issue is going one but it could be a rare disorder and the Clinic is the place to go for the more complex problems. How is it that he could feel the mass from the outside it sticks out now so I can see it. When he goes in with the scope he cant see it? So what is the mass playing hide and seek. I am wondering if the mesenteric lymph nodes problem I had before. The symptoms are similar not exactly the same but close. I had issues about 5 years ago with a 30 day couldnt keep anything down and severe diarehha. My doc said it was my mesenteric gland. I had to wait on it to stop swelling. It was so rare that my doc had only a few patents with it. I could be that again I would like a indepth discussion about that at the clinic.
He is sending me up to the Clevleand Clinic with the head of Gastro and his mentor who trained him. A team of docs will work with me there. GI, endocrionologis, ob, neurologist. My husbands principal at hebrew school offered us her bro inlaw who is GI up there too. So much is going on with my body being in one place with docs that communicate with eachother will help me. So girls what do you think? I am ready for this to be all over but looks like I am at the start line again. Im confused I got to get the bottom of this mystery. I am not giving up~
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Post by omaklackey on Dec 27, 2010 15:20:35 GMT -5
I'm sorry about the colonoscopy. I could feel mine and woke up in the middle of it as well. Its super frustrating waiting for a test you think is going to show something and then it doesn't! As much as I hate bad news sometimes I would rather have it then the doc say "sorry I didn't see anything, I don't know what's wrong with you". I think a team of doctors that will work together would be a very good idea. Here is hoping for answers for you soon Keri!
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Post by Karen on Dec 27, 2010 15:23:54 GMT -5
Have you considered the Mayo Clinic in Minnesota at all? Perhaps the Cleveland Clinic is similar. At Mayo, you go there for a few days and get every test under the sun by every specialty imaginable, then they all sit down and talk about what they found, what's going on, etc. My dad went there twice when no one could tell him what was going on and he eventually had surgery there. A good friend's husband went there, too. No finger pointing, no 'I don't know', it's the best of the best. I just wish you'd get some answers, and fast!
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Post by KSA on Dec 27, 2010 18:36:55 GMT -5
If Cleveland Clinic can not figure it out Mayo Clinic is the next stop Thanks for the suggestion Karen. My family and I discussed the Mayo Clinic yesterday. Its worth it to me. I have to get a answer at some point. I cant live on this bag forever. I am willing to go anywhere. The GI doc suggested this maybe some sort of metabolic disorder. Its all so confusing to me. I got really down today over it. Gotta find something do that can keep my mind off all of this. I am wondering if it may be related to my gastritis and it caused the mesenteric glands to become swollen much larger then they should and that is why I can see the mass maybe it is a gland? I looked at a picture of where these are in relation to my mass and pain and it is in the same area that the gland is. I would love a doctor to listen to my theory but i have a feeling I will get blown off if I share it with them. I have to find a way to make the docs think it is their idea lol sometimes docs are like that.
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Post by pretty on Dec 27, 2010 20:56:05 GMT -5
LOL keri! I do the same thing.... as long as it is THEIR idea, they will pursue it....
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Post by hellsbells on Dec 28, 2010 7:28:52 GMT -5
You owe it to yourself to tell them your theories hun, hopefully at this stage they'll pursue all possibilities!
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