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Post by kaitlynblunt on Sept 16, 2006 0:07:49 GMT -5
I guess what most doctors don't relise is that after being diagnosed and treated ur not just okay... ur pissed, angry, sad, upset, and need support. I was deprresed and pissed after being diagnosed. I think I went through every emotion. I hate sitting at home on weeknights b.c. i'm sick instead of being out partying or going to the movies or a dance with my friends. You definately learn not to take these moments for granted when you can hang out. I think now i'm finally learning to come to terms with it and talking about it without sounding like a robot and just repeating information. So if any teen out there just needs to talk to someone who understands message me back.
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Post by lindsey on Oct 9, 2006 14:20:03 GMT -5
thanks...none of my friends realize how crappy it is to have this...i was majorly deppressed last year. and i also missed alot of school dances. And i got tired doing the most simple things. I hate it, and i wish there was more i could do about it, but there really isnt.
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Post by kaitlynblunt on Oct 10, 2006 22:12:52 GMT -5
It's the worst to sit at home because you feel like crap. My friends are pretty social and so am i when i feel up to a night out. i was depressed after being diagnosed but after a while you stop and realise one day it will make you stronger but for now it'll suck for a bit lol. on top of school i also work about 20 hrs a week and it;s pretty labour intensive some nights but one thing you have to do is get 8 hrs of sleep every night or you'll pay for late nights in the morning. Learn how not to stress about the little things. I see my friends stress about there bf's or who dumped who and all sorts of drama when none of it fases me anymore. it's not worth it to me.
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raya
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Post by raya on Nov 16, 2006 23:25:24 GMT -5
Yeah, I am 18 and was diagnosed 7 years ago ( I was a youngy!) and I still go through emotional bouts with thinking about it. Tonight happens to be one of those times. I am going back to the doctor tomorrow cuz I have been on the patch to help for about 4 months and it has been making me uberly fatigued, which doesn't work when I am a full time college student, work full time in a cafe, and do tons of volunteer work. I have been having a hard time of it lately because I now have a really serious boyfriend and the issue of having kids has been brought up alot and ya....just kinda makes me a bit sad to think that might never happen for us. I feel bad for him cuz he is such a great guy
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Post by kaitlynblunt on Nov 27, 2006 22:53:04 GMT -5
i know what you mean. i may only be 17 almost 18 but the thought of not being able to have kids wears on me. especially after my best friend since gr 7 has a 6 month old baby and clearly since it wasn't planned and she wasn't in a good situation to means it was easy for her. i went to go see her baby two weeks before i had surgery and it really made me think about how much one day i will want that too but i might never get to. it was like we had taken totally different paths although not her fault it felt like the whole baby issue was just being rubbed in my face.
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Post by fairyone on Nov 30, 2006 11:01:39 GMT -5
I'm so glad I've found someone who feels like me. This whole endo thing (I'm newly diagnosed, still healing from the surgery) is wearing on my relationship with my boyfriend. While we don't want kids, I at least want the option and he wants me to be happy. It's just so stressful not being able to be intimate or anything!
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Post by kaitlynblunt on Dec 3, 2006 22:11:39 GMT -5
I was suppose to have my second surgery nov 10th but after spending the whole day in the hospital it got cancelled and now i'm chicken to schedule it again. I feel really bad after for like two weeks and the first week i'm in tears just to go from sitting to standing. I find it takes a long time before you can even come to terms with having this disease. Sometimes i'm just angry and for no reason just havin a bad day and will break down into tears while driving when it hits me this is all for real
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Post by Nicole M on May 31, 2007 16:05:39 GMT -5
Hi, I know how you guys feel. Im 19 and have had endo for years now, I just didnt know it, I was diagnosed about a year ago. I know wht you mean when you say you get all emotional. Im the same way. I wake up and Im so tired, I have Chronic Fatigue Syndrome which is caused by my endo. And most days im just so crabby and really emotional because you know noone canunderstand what its like to have endo no matter how you try to explain it. My boyfriend doesnt understand why i get so emotional and weepy all the time and when Im cramping or hurting it just me angry and short tempered. I do the best I can with my symptoms. And its hard but you kow what? We can get through it, we can learn to deal with this, look around for different herbs to take. B vitamins help with the emotional symptoms inwomen with endo. So try it. It might take a few months before you notice anything because herbs take longer. Give it a try. And be strong.
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Post by Nicole M on May 31, 2007 16:13:02 GMT -5
Hi Kaytlinblunt. Dont worry about that. I get stressed about not being able to have kids too. Im 19 almost 20 and im about to et married. I get so jealous when I see my friends, most have kids already and I get so depressed thinking about it. I want have kids so bad. Having endo does mean you wont have kids. There IS a chance you wont, but you still may be able to. When your ready to have kids, the best time to try is right after having a laparoscopy. I have a friend whose 24 and she has endo really bad like I do. She has two kids. She got pregnant both times right after have surgery to remove her endo and clean out the area she had it in. Shes trying for a 3rd child and she just had surgery about a month ago. Dont lose hope. Ive been told by my doctor that the best time to try is after surgery, so when your ready for kids go in and schedule an appointment for a surgery if you need one. Dont worry, youll have kids when the time is right. I have to keep teling myself that cuz its my biggest dream to have a baby of my own. So dont lose hope.
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Post by kaitlynblunt on Jun 3, 2007 16:47:42 GMT -5
Hey Nicole, yeah i guess somedays it just weighs on your mind. I hate seeing these teenage girls having kids and don't even appreciate the beautiful gift they got. I've heard that about the laparoscopy can help too. The only problem I have is that i'm on continuous birth control so i only get my period once a year and when i do get it it's hell. I don't even want to know how bad it will be when i have to go completely off the bc to have kids. But i'll keep my mind open to adoption cuz there are tones of kids out there that need a family.
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Post by maliciousthecat on Jun 8, 2007 22:33:02 GMT -5
I'm sitting here just amazed. You guys have all described how I feel. I'm 18 and getting married this year on my 19th birthday. I'm weepy and emotional quite alot of the time, not just from the pain, but because I really want children and so does my partner, and I'm constantly thinking about the fact that it may never happen. It weighs on my mind constantly.
It's so good to find out that there are other people out there feeling this!!!
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Post by alex*xoxo on Sept 13, 2007 5:08:20 GMT -5
Yeah it's so nice coming in here knowing that everyone feels exactly the same as I do. I am 19 and I have been in a serious relationship for 2 years now. He is 23 and I absolutely with out a doubt think that he is the one im going to marry. And we have talked about kids and we both want them more than anything. My dream is to have a big family. And my boyfriend has 7 kids in his family so he wants a big one too. And its like.... I love him so much that it hurts me so bad to know that there is a possibility that I might not be able to give him what he wants in life. But he has told me that he is not against adopting and that he wants to be with me no matter what the situation is, which makes me feel alot better.
As well he is just sooo understanding about my endo sometimes it makes me want to cry. Which doesnt help because i cry very easily anyways haha. The smallest thing can make me break down in tears whether it be pain or just something sappy. At first he was a little confused i think, about why i was so emotional all the time. But the best thing I did was take him to the doctor with me. Because then he really got to see what it was like for me and my doctor explained to him alot about it. Also since joining this message board I have let him come on here and read it because I think it is really important that he understand every aspect of it. He is the most unbelievably caring person and even when I am doubled over in pain and wondering if this is all worth it. He always finds a way to put me at ease and make me smile. Even if it is through tears.
Anways Sorry this got so crazy long and off topic. I just started going and couldnt stop. Haha. But if you read all of it thanks for taking the time to do so.
Also maliciousthecat congrats on getting married!!
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cait
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Post by cait on Sept 26, 2007 15:23:04 GMT -5
hey girls! i'm 17, and i was diagnosed when i was 15 when the doctor did a laporoscopy (i think thats spelled wrong). when girls asked me at school why i had surgery or why i was always absent, i never really told them. i was too embarrassed to explain what happened. but now i finally want to talk about everything i had to go through, like different tests, surgery, and all kinds of medicines. i hate how this disease has made limits on my life and how i miss out on things because of pain. anyone like this? or want to talk and compare stories? thanks
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Post by white mexicana on Oct 2, 2007 18:29:11 GMT -5
I am 16 years old, i was diagnosed with endometriosis when i was 15. It's really hard to deal with at times. I am very emotional most of the time. It's very painful, and not only that, but just knowing that there is a chance of me not being able to have children when i get older devastates me. I have an opportunity to receive a shot monthly that will remiss my period, but i learned that it raises the chances of me being infertile. It crushes me because my mom had the shots done, and nothing happened to her, she had my little sister a year later. What should i do? Just deal with it and move on? or take a big risk and not be in pain..? HELP!
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cait
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Post by cait on Oct 2, 2007 22:15:10 GMT -5
this is cool! your the first person i met/talked to that is around my age with this disease. well, i would talk to your doctor and ask him/her what the chances of you being infertile after it would be. pain sucks! and if it's really bad, you wouldn't want to be living like that! see what your doctor has in mind.
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