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Post by Karen on Jan 19, 2010 18:09:20 GMT -5
I think I read a while back that one of our members was considering it, but after taking into consideration that it *might* also cause an irreversible loss of sensation elsewhere (if you know what I mean), she decided against it. Don't quote me on that, but just something to research if anyone is considering it.
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Post by Karen on Jan 19, 2010 20:23:09 GMT -5
Well, add me to this rant. It's been building for a few days now. A friend and I just got back from the gym and I'm having a good cry.
My legs are super tight from being on my feet all day Saturday and then going up and down a ladder to do some painting on Sunday. Oh, and a friend and I got a good run in on Sunday, too. To top it off, because I'm limiting my food intake to fruits, veggies, and lean proteins, I have energy to get through the day, but extra stuff just wears me out. Actually, even when I'm not on the diet, the extra stuff wears me out. So Monday I was all tired and worn out, could barely function it seemed. My body was just too tired.
Fast forward to today. I had some more energy, but not back to normal. And my legs (hamstrings in particular) were super tight yet. We did an hour of Pilates (which was fine, felt good) and then tried to get a 2 mile run in on the treadmill. Not even 5 minutes into it, I had to stop. And then the rest of the time while my friend ran the whole 2 miles, I walked at a slow pace and tried not to cry. I think that if I had more carbs today, I likely could have pushed through the tightness, but since I didn't, I couldn't. But then if I would have had more types of foods (don't get me wrong - I still eat a lot throughout the day - I'm not starving myself AT ALL!), I wouldn't have felt as good pain-wise. It's like I have to chose - having more energy to do all the things I want to do, or having more pain. And it's not fair! I know in a day or two I'll feel better about all this, but I haven't had a good break down in a while. I've felt it coming on the last few days, been a bit more weepy at stupid commercials and such (no, I'm not PMSing). Just need to let it out, I guess, and have a bit of a pity party for a bit. I just want to do everything that I used to be able to do and not even have to think about it!
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Post by cherry on Jan 20, 2010 6:55:18 GMT -5
That's one of the worst things about this, long term, the constant second guessing.
You might pull through some really bad moment and feel excited about getting back some sense of normalcy, but this disease just kinda jumps up and bites you on the bum and says 'nah, you're still gonna be limited to what I say'
It's like you have elastic bands on you and when you try to get too far ahead you get snapped back and it's almost like your body is humiliating you. Not so much embarrassing you, but telling you not to get so uppity. And again, it's even more frustrating when your doc has said there's nothing in your last lap to show that the pain you're feeling is directly linked to damage being done by your movement, but the pain can feelo scary sometimes.
A good cry is great Karen, I really hope it helped you to vent. You're doing amazingly well I think. Have you considered work-out shakes to give you the right balance of carbs so that you can push through?
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Post by cherry on Jan 20, 2010 6:57:58 GMT -5
I'm seriously reconsidering this surgery if that's a risk. I'd hate for my vagina to lose it's personality and ability to um, multi-task!
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Post by Karen on Jan 20, 2010 7:44:59 GMT -5
I think you hit the nail right on the head, Cherry. It's like my body is being a tease and it's frustrating! I'll take a look into a shake and see if that'll help out. Good idea. Or perhaps even something as basic as a banana right before my next run. Usually my running buddy is the first one to poop out and I'm the one encouraging her, but lately, it's been the other way around and it's really frustrating! We have a 5 mile run to train for!!
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Post by Karen on Jan 20, 2010 19:04:49 GMT -5
This is still really bothering me today. I woke up weepy and am still. Haven't been like this in a looooong time! It's just so frustrating - I feel like I have a grip on this disease and then I do something that reminds me that it's still in control. I hate that feeling! I'm still tired today, just limp, and I show up to work with my brave face on and don't want anyone to know, but it's all I can think about. This isn't the life I asked for, it's not the life I was supposed to have. And some days, I feel like I'm in the grieving process about it. I just want to be able to do everything I used to be able to do and not have to worry if it'll set me back, either physically or emotionally!
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Post by KSA on Jan 21, 2010 0:20:24 GMT -5
I read up a little on LUNA today it looks like what they do is cut some of the nerves on the uterus that maybe causing the pelvic pain. Ok what if you have no uterus. So I do not qaulify. I mean its worth a try girls. I say if your willing to go into surgery knowing that its not gonna cure everything then sure go for it but it is unfortunate to say that it sounds a little silly to me to cut nerves on a uterus if you could loose feeling and like Cherry said personality with your special parts. Cherry I love the way you put things you crack me up! Hmmm it is interesting reading. Thanks artherhel for the info let us know what your specialist says about it.
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Post by hellsbells on Jan 21, 2010 14:16:14 GMT -5
Ah Keri will you call me Helen, please??
I didn't know about the 'side effects' of the LUNA procedure. I'd defnitely think twice! Karen I feel so bad I just caught up on this post and saw that you've been so down! You're entitled to the occasional pity party, we all are, but I know for sure you'll pull yourself out of it and make the most of it. Is there anything you've been doing differently recently? And a banana before a workout is a FAB idea!! A real quick, healthy and nutritious energy boost. I'm thinking about attempting the gym next week.
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Post by KSA on Jan 21, 2010 14:27:21 GMT -5
Sure I can call you Helen. I have such a horrible memory so I usually have to look up on the board when I am posting to see who I am talking to. LOL I will have to write Helen down next to artherhel so I remember your real name. Its hard to keep track of everyone by name for me I forget how how old I am and my name sometimes. lol I will try for you tho;) Sorry about that.
Karen a protien shake or bar may help before a work out. Good luck! I think your doing great:)
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Post by hellsbells on Jan 22, 2010 9:22:04 GMT -5
I'm giving you all advance warning - I intend to spend the weekend cleaning and tidying my house - it's been sorely neglected over the last year and I really want to have a cosy comfortable house instead of one with crap lying all over the place. Also need to seee if I can find a convenient yet not-on-display place to keep my little bag of medications!! I think I'll have a bat at the end of each day to try and ease out the stiffness that will inevitably arise, but it needs doing and I finally feel in the frame of mind to do it. Fingers crossed!
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Post by hellsbells on Jan 22, 2010 14:45:07 GMT -5
Christ all I wanna do is get a clean and tidy comfy cosy house!! Is that too much to ask?? (It's not mega dirty btw, just rather untidy). Spent about 4 hours doing downstairs, cleaned, tidied, dusted, vacuumed an cleaned floors. And it's really triggered off some back pain - the sciatic type that radiates down throug my arse and makes it difficult to walk without looking like John Wayne! I'd have to say it's just about worth it, I feel so much better without all the crap on the coffee table. I've had a hot bath, and hey, I have Tramadol and red wine so it's not all bad!!
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Post by cherry on Jan 22, 2010 17:19:59 GMT -5
I did half a circuit training class last night (I spent the other half vomiting cos I'm crap) and today I'm just achey with some mild abdominal pain on my left, score!
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Post by hellsbells on Jan 22, 2010 17:35:27 GMT -5
Yeah well let your body recover before trying something else........
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Post by Karen on Jan 22, 2010 18:17:47 GMT -5
Woo hoo - does this mean that you're off the hook from the bad pain for a bit now, Cherry??
I'm off to finish painting this weekend. I'm sure that's what kicked my butt last week, then set me up for failure elsewhere because my body was still trying to recover from that. Here's hoping it doesn't kick my butt as bad this time...
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Post by cherry on Jan 22, 2010 18:59:36 GMT -5
I think and hope I'm in the clear! It was very unpleasant at first, then some twinges, then I was sick cos I was pushing hard from the outset and my body is built from pizza.
I'm going to learn to ski next week but that's leaving a week between which I think should be gentle enough.
In the meantime I'm going to hula hoop to try to keep my middle 'soft'
Maybe it's all the stretching but painting kills me too. Helen I'm lucky I can tidy up a fair bit, but then I don't have a whole house to deal with, hugs.
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