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Post by hellsbells on Jan 16, 2010 7:36:07 GMT -5
Funnily enough, I've not been anywhere near as irritable as I used to be, I'm not as snappy as I used to be. I used to get MEGA MEGA irritated by someone doing something as harmless as eating a packet of crisps to the point I'd want to bang their head repeatedly of the desk. I still get mildly irritated by such things but can deal with it so much easier (thank goodness!). But I feel like my body is really letting me down, especially a work. I can't have discussions with my boss about things that are bothering me without bubbling away and it's so embarrassing and frustrating.
I expect my gynae wouldn't just prescribe it like this for 6 months without a good reason. Hopefully it will settle down soon. I see him in March so I'l discuss it then.
Thanks girls xx
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Post by KSA on Jan 16, 2010 15:47:27 GMT -5
I can understand your irritated mood. If may not be the meds at all maybe just the stress of work and your boss? I am sure your doc perscribed it for the a good reason and when you see him in March discuss with him how your feel. Is it helping with the bleeding and cycles that is the important part as long as it is doing what it is suppose to sometimes the side effects are worth it. I would take a crabby day over bleeding any day:)
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Post by hellsbells on Jan 17, 2010 4:15:16 GMT -5
Keri luckily for me my bleeding whilst occasionally heavier than it ideally should be has never been what you've been through, the Provera is to stop my cycle altogether to 'kill off' the rest of the endo. Today is pretty much when my period would be due, so I'll see what happens over the next couple of days. I've recently learned to spot the difference between normal irritation and mood swing irritation. The mood swing makes me feel like there's a burning pit of fury in my tummy and I feel like I could be violent (which of course I never am because I know that's not the way to act!) whereas with the normal stuff I just maybe want to shout. I haven't had that kind of mood swing for a few weeks now, it's more the weepiness which while embarrassing in some situations is preferable to wanting to beat the crap out of someone :-)
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Post by hellsbells on Jan 19, 2010 14:27:00 GMT -5
I think I'm having some kind of period - it's heavier than the spotting but still next to nothing in comparison to a normal period. Can't wait for these 6 months to be over!!
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Post by uncomfortable on Jan 19, 2010 18:58:16 GMT -5
I am having hot flashes/cold sweats every single night from 7-10pm like clockwork. Its driving me nuts! I HATE being on this, and I can't wait to get off of it.
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Post by hellsbells on Jan 20, 2010 13:44:03 GMT -5
Bleeding is back to light spotting - don't know what's going on. I expect in another couple of months things'll be different. On the plus side, I'm enjoying food properly for the first time in months and don't feel I'm overeating. Moods seemed to have balanced out over the last few days and work is going better because of it. Early days, and I've just got to wait and see. Did you know this stuff comes in doses of 100, 200 and 400 mg?? It's used in certain cancer treatments too that are based on oestrogen dominance such as breast cancer. Sorry about the temperature issues! It might settle down soon xx
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Post by KSA on Jan 20, 2010 13:53:04 GMT -5
Next time I see my doctor I am going to ask him a few questions about provera you girls have me curious now why he would only give me small doses and would not keep me on for that long. I wonder if it is because of all these side effects you girls have and he knew at that time my body had already had enough. Sorry that you are feeling like that uncomfortable and artherhel where did you get the info on the cancer treatment. It is so interesting to me how drugs are used for so many different problems. I love to research these types of things let me know where you read that I would like to read it too. Thanks:)
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Post by hellsbells on Jan 20, 2010 13:57:48 GMT -5
Here you go Keri: www.cancernet.co.uk/provera.htmGot quite a lot of info. I'm also on Amitriptyline - which is used as an anti-depressant in higher doses, it can be used with children for bedwetting (!) and for me it's to help with IBS symptoms. I saw a gastro doc pre-lap/diagnosis and he said I have 'visceral hypersensitivity' meaning my insides hurt more than they should do. YA THINK?!?!
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Post by uncomfortable on Jan 20, 2010 16:10:41 GMT -5
I was also on Amitriptyline, but I weaned myself off of it because I didn't find it much use. I was on it for 4 or 5 months. it was supposed to help with nausea, and calm my stomach down. I didn't find it helpful at all though, just an added medication. I also read about Provera being used in high doses for cancer patients. Apparently it was originally developed to help shrink prostate cancers. Go figure, developed for a man, but decided to give it a go on women too. I can't say its not helping, but it certainly isn't a awesome drug to be on. I would rather not have to be on anything, especially since I seem to be getting side effects. I am on a very low dose of it too.
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Post by hellsbells on Jan 20, 2010 16:30:01 GMT -5
The main reason the doc put me on Ami was for anal pain after going to loo, and it's definitely worked!! After about 4 weeks I had really good bowel movements/stools for about a week, then went back to difficulties. But it does make me a little drowsy at bedtime which is nice!
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Post by hellsbells on Feb 24, 2010 16:04:00 GMT -5
Well, just a quick update. As of about the last two weeks, I've had no rectal bleeding - I can only assume it's the Provera doing its thing. Still spotting vaginally, but putting that down to the Mirena for now. Only a few weeks til I see gynae again.
Have gained over a stone since the end of November. I am eating anything and everything I want, so between stuffing my face, and water retention.......things are not good. My appetite has gone berserk since I had the op.
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Post by Karen on Feb 24, 2010 18:26:05 GMT -5
Yeah for no rectal bleeding!
In regards to weight gain, although Mirena is not supposed to cause that as it doesn't have estrogen, there's research out there that suggests that progestin (synthetic progesterone) can cause some women to produce more insulin than they need, which in turn causes insulin crashes, with in turn causes one to eat more, which causes your body to produce more insulin than it needs, etc etc etc. Keep an eye on it, k? When I was on Mirena, my weight fluctuated horribly. I remember in 1 week, I gained 8 pounds (while watching every single thing that went into my mouth)! I think I wrote something about that in the mirena thread - might be worth checking out!
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Post by hellsbells on Feb 26, 2010 12:45:40 GMT -5
Cheers Karen. I had some blood tests last week, I ate really well that week knowing I was having them done, and my glucose was 6.1 - have to repeat in 2 weeks and in the meantime I need 'dietary advice'. No, I don't, I need help to put my body right and have the energy and motivation to cook proper decent food all of the time. I know precisely what I should and shouldn't be eating. I rang up today to get the results, the receptionist giving me them was really crap and confusing, so I asked for a printout and went down and collected them after work. Shall be researching results.........nearly all the extra weight feels like it's aroud my belly and hips, but most of my clothes still fit, they just don't look as nice!
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Post by hellsbells on Feb 26, 2010 12:46:33 GMT -5
So with Mirena and Provera, both synthetic progesterone, my insulin levels could be WAY out whack?
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Post by Karen on Feb 26, 2010 18:24:04 GMT -5
There's a section in Endo: The complete reference for taking charge of your health about Insulin & Endo (it's on page 129-131 for me). The theory is that more insulin = more prostaglandins. And, according to the Insulin Resistance Diet Book (page 22), "Certain medications can increase the amount of insulin your pancreas secretes. ... Synthetic progesterone-only birth control pills, injections, or implants worsen insulin resistance." It's something that likely needs some more research, but it certainly can't help to try whatever you can to keep insulin levels in check!
It's NOT just about what you eat - it's about how your body REACTS to what you eat!
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