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Post by painpainpain on May 22, 2007 16:19:43 GMT -5
Well I can just hear him saying that that's what he's going to want me to do and I'm not doing that....I will finish with his theory just to prove him wrong I think!! hehe This guy is a real piece of work!!! It's funny cause I just can't be bothered...I have accepted the fact that I will have to deal with some degree of pain, not even a question, but when you are not functioning properly day to day there needs to be a plan for resolution to some degree. I think trying different meds are fine as long as you are comfy with them!! I'm done with the pill though...my tubes are tied, at least when I wasn't on it I could have sex with my hubby a couple times a month...seems like now we don't ever do it cause I bleed after and..... it's just not SEXY!!! I hate taking stuff if I don't have to...maybe just a little stubborn I don't know!!! I might think differently when I come off of though!!! Never know what's down the road!
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Post by ouchy on May 22, 2007 16:24:59 GMT -5
The pill does cause vaginal atrophy and kills cervical crypt cells (lubrication producers!), which can lead to vaginal bleeding after intercourse. I thought most of my pain with sex was from the endo--surprise! It was from the pill! I hope you find a lot of relief like I did after quitting the pill! Also remember that you don't have to wait until the pack is finished to quit (if you're not using it for contraception). You're bleeding more anyway while you're on it. And you already know what he's saying is quackery!
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Post by painpainpain on May 22, 2007 16:33:29 GMT -5
Very true, ouchy, very true!!! I have found so much info here to help me with diet and all sorts of things that maybe it's time for lifestyle changes and then look at where I'm at for pain. I really am against taking meds if I don't have too. Maybe that's cause my mom's a nurse and just always pounded it into us that drugs don't always make you better. Have to run though the kids are demanding dinner!!!
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Post by ouchy on May 22, 2007 16:41:52 GMT -5
Exactly, painpainpain! Drugs don't always make you better. Most of the time, drugs help by treating the symptoms and not the cause! Like how I took Metformin for my PCOS. It was lowering my blood sugar (which was the problem), but DIET was the underlying cause, causing my blood sugar to be out of whack. I guess the same thing went with treating my endo with birth control pills for soooooo long. I think I did more harm to my body than good. The only good thing, really, that came out of it was that I didn't get pregnant--but I could have achieved that by making my husband wear a condom!
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Post by fishguru on Dec 10, 2010 1:58:37 GMT -5
Aloha all,
I was diagnosed with endo a little over a week ago when I had a tubal ligation. I have my doctor follow-up on the 14th. Untill then, I am trying to read up on the subject so I can go into the follow-up with my head on straight.
I'm not sure what treatment options my doctor will suggest to me. I see where BC pills are used a lot, but I am very afraid of going on them. Breast cancer and blood clots runs *VERY* strongly in my family (mother, grandmother, aunts, cousins, etc).
I was on BC (pills and Depo shot) when I was in my late teens and into my 20's. I stopped when I got married in '94. I finally got pregnant and had my daughter in '98 and a son in '01. I have not been on *any* BC since my daughter was born.
I'm not quite sure what to think. The side-effects of so many of the endo treatment options sound really awful. I'm not sure what to do.
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Post by hellsbells on Dec 10, 2010 7:14:36 GMT -5
Hi fishguru -I moved your post over here to this thread, and I think you'll find a lot of useful info in it. Please also take a look at the first thread on this board - there are loads of threads about birth control. There are alternatives so if you're afraid of the side effects please don't feel pressured into taking it.
Helen
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Post by Karen on Dec 10, 2010 7:38:52 GMT -5
I agree with Helen - although hormonal options are typically the 'first' line of treatment for endo, they certainly aren't the only options by any means! Tell your doc your concerns - if he knows of your family history and still only suggests something that you're not comfortable, you still don't have to agree with him!!
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Post by fishguru on Dec 10, 2010 12:01:31 GMT -5
Thanks hellsbells and Karen --
Years ago, I had voiced some concern with my increasing period pains and the gyno I saw at that time suggested BC pills. I told her of my specials concerns and she just said that the pills are such lose dose now days that I wouldn't have to worry about the breast cancer concern.
Well!!! I *DO* worry! My mom was on BC pills for years and ended up with breast cancer at 45. What I'm afraid of is that all will be fine right now, but then in 5 yrs, I'll hear from the doctor..... "Ooops! You have breast cancer. Yeah, I guess we shouldn't have put you on those BC pills."
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Post by JC on Dec 21, 2010 7:49:57 GMT -5
Yeah I hear ya on those breast cancer concerns!
I took a women's health class and we talked about how much higher hormonal doses were back a long time ago. They really are MUCH lower than they used to be. But I don't blame you. That is a scary thought and I wouldn't want to play with fire. Have you read up on the nuva ring at all? I swear by it. I still get side effects but it has basically rid me of all my endo symptoms. I still get pains and cramps here and there but nothing close to what it used to be. It's still a hormonal contraceptive but from what I understand, the fact that it diffuses at a steady rate is what makes is so much easier for the body to handle.
Pills, on the other hand, cause daily spikes in your hormone levels. You take the pill, digest it, and temporarily your horomone levels spike and slowly taper off until you take a new one. Every single day you're putting your body through that spike, then low, spike low spike low spike low ahhhhhh angry ovaries!!!!!! LOL
Get my drift? lol
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Post by Heather on Dec 21, 2010 19:06:51 GMT -5
After reading that BC actually caused pain for some of you guys, I'm wondering if I should stop taking mine. I have a Mirena, so pregnancy is not a concern. I've been wanting to come off of as many as my synthetic drugs as I can for a long time, but I was afraid of what coming off of BC would do to me. I was always told that BC is required to slow the growth of endometriosis. Since I've been on it for the past 10 years, I really have no idea how it affects my disease. I run out of Lybrel after Monday, so maybe I just won't refill it.
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Post by hellsbells on Dec 22, 2010 11:56:10 GMT -5
You're on BC aswell as Mirena? How come?
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Post by JC on Dec 22, 2010 13:25:58 GMT -5
Oh please talk to your doctor about that before you stop your birth control.
Personally, birth control is managing my symptoms and I hear more stories of people getting relief from being on BCs than not being on anything at all. It's a personal decision and everyone is different. I'm also curious why you have both the IUD and birth control.
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Post by Heather on Dec 22, 2010 13:59:20 GMT -5
I wanted the IUD put in during my surgery, so she did. At the post-op, she told me I have endo and said BC is a good way to slow the progression, so I went on Lybrel as well. She said Mirena is kind of iffy as far as slowing progression, so it would be best to be on a pill. I guess I'll make an appointment for after the holidays.
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Post by JC on Dec 22, 2010 14:09:48 GMT -5
Crazy! I'm not sure I've heard of that before. I learned something new! How do you feel?
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Post by hellsbells on Dec 22, 2010 15:59:05 GMT -5
I guess it's like my doc doubling up on Mirena and Provera. I swear, things started coming back after the Mirena came out, even though I was still on Mirena. I think if your body can handle the Mirena, it's probably as good if not better than BC for handling it without the side effects of BC.
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