|
Lupron
Mar 16, 2007 17:35:18 GMT -5
Post by roberta on Mar 16, 2007 17:35:18 GMT -5
I had a hysterectomy and kept the right ovary on Oct 31 2006 ,where my doctor found my endo i took my first shot of lupron 3 months in Dec 6 i still have all the side effects but the pain it's back and after the Hysterectomy one of my kidneys got blocked. when the pain it's bad i feel like going to the emergency it's anyone out there with similar symptoms?
|
|
|
Lupron
Mar 26, 2007 23:49:35 GMT -5
Post by Lisa on Mar 26, 2007 23:49:35 GMT -5
Hi Everyone, I am 41 years old and was diagnosed with endometriosis when I was 21 yrs old. It was a long battle for me but I have been very well for the past 12 years. I feel very fortunate to have had my three beautiful daughters (ages 11, 9, 7). I stumbled on this site quite by accident and am so saddened to see that not much has changed since I was suffering from this awful disease. For me, Lupron worked wonders. I was seeing a specialist at Yale and she prescribed me Lupron but at a little highter dosage than the norm. I was on it for a few years and then I started suffering some bone loss. Since I was feeling well, married and ready to start a family at age 27, we tried to conceive. It took exactly one year. I breastfed her for a year and then immediate became pregnant again (surprise, you can get pregnant while breastfeeding). I breastfed the second child for a year and then decided to try one more time for a third. I became pregnant and breastfed her for a year. It was a total of 6 years of continuous pregnancies and breastfeeding. I felt great during those 6 years. When my youngest daughter was 2 years old (a year without pregnancy or nursing), my endo symptoms slowly started to return. I quickly went on the birth control pill and have been on it ever since. I believe that I still have endometriosis. My body doesn't function at the same capacity as other women. I have to take care of myself, etc. I still get cramps sometimes and I am now thinking that I am sensitive to certain foods, such as soy. But my problems now are NOTHING like those awful days living with full blown endo. Lupron was the answer for me. If you are on Lupron and still not seeing results, I would suggest asking your doctor to up your dosage. And once you have the disease under control, IF you want to and are ready to conceive then I would waste no time in trying once you stop the Lupron. I had an awful case and this form of treatment worked for me. Lisa
|
|
doll
Junior Member
Posts: 62
|
Lupron
Mar 29, 2007 21:12:29 GMT -5
Post by doll on Mar 29, 2007 21:12:29 GMT -5
Hi everyone! I'm new as of today and REALLY wanted to post on this thread! PLEASE READ UP ON LUPRON BEFORE USING IT! I was on Lupron for 9 months straight, then took a break for about 4 months and started it for 3 more months. I WISH SO BADLY that I could turn back the clock and NOT have taken it! I wish I was as smart then as I am now. I became an Endo and Women HEALTH Advocate after that! I research the HELL out of everything everything everything now! Anyway, not only did I gain about 40 POUNDS while on Lupron, I also lost 2% bone density in my pelvic region alone. Yes, it did help wit the pain a bit, but the benefits were NOT WORTH IT! Now I do know that Lupron does work for some women (and I;m happy for you) and they find it to be the answer...it just was not the right thing for my body! Also, MY GOSH...please think about this. My 83 year old grandfather has prostate cancer and this is the SAME EXACT drug they give him. Yes, I'm 37 years old (took Lupron at the age of 32) and he is an 83 year old grandfather with prostate cancer. It just blows me outta the water that this is the SAME drug they offer and give GRANDPA'S with prostate cancer! I mean...Iknow gals who are 18 years old and taking Lupron now! Well...as you can see I'm pretty passionate about this. I can help answer any questions anyone would like! Going to lay down with heating pad ;D
|
|
|
Lupron
Mar 31, 2007 13:06:22 GMT -5
Post by Tiff on Mar 31, 2007 13:06:22 GMT -5
A agree with you doll, I took Lupron when I was 21 and had the worst luck with it. My endo had progressed so much since getting off the treatment and being on the treatment was just as much hell. I too gained a lot of wait, I gained aboiut 20 pounds.
After treatment the Dr. have been pushing pregnancy on me, which is fine since my husband and I are ready any way, but because of the treatment my hormone levels are still not normal even a year after treatment. So if anyone is trying this treatment in hopes to conceive right after, the chances are not very good. I was told the average time from discontinue of the treatment until your hormones are back is 1 year. Please Please do your research on this med. i wish I could go back and not have done it.
|
|
|
Lupron
Apr 2, 2007 13:18:34 GMT -5
Post by ouchy on Apr 2, 2007 13:18:34 GMT -5
I found this posted by guest poster "Jill" in another thread. _____________________________________________________ Hi Ladies, I posted on the medications board but I have not gotten a response. My doctor is suggesting Lupron treatments to increase my fertility. She has told me that the medication will get rid of the rest of the endo she was not able to get. Has anyone been on it and gotten pregnant after treatments? ________________________________________________________________ I found this posted in another thread by guest poster "alexsmom"
"My doctor is also recommending Lupron to increase my fertility, after having surgery to remove most of the endo. We've been trying to conceive for over a year. They are saying that my hormones are messed up because of the endo, and that the hormones will "reset" themselves after the shot wears off. Has anyone had this happen? I'm supposed to have the shot next Monday. Any help (soon) would be greatly appreciated. Thank you."
|
|
|
Lupron
Apr 2, 2007 14:01:22 GMT -5
Post by ouchy on Apr 2, 2007 14:01:22 GMT -5
Overall, I believe that it does more harm fertility-wise than good. Most women have horrible side effects from it, and it often delays fertility in women who take the drug (takes a while to get a cycle back).
The only advice I can give you is to start at page 1 of this thread and read each post. If you are looking at fertility benefits, there are lots of other drugs touted for fertility rather than Lupron, which does some serious things to your body, including bone loss!
You can also balance your hormones through diet.
|
|
doll
Junior Member
Posts: 62
|
Lupron
Apr 3, 2007 12:30:25 GMT -5
Post by doll on Apr 3, 2007 12:30:25 GMT -5
AMEN!
|
|
|
Lupron
Apr 4, 2007 23:41:09 GMT -5
Post by Susan on Apr 4, 2007 23:41:09 GMT -5
Roberta,
I am also having kidney/GU problems with my endometriosis. Actually, it all started with a blocked ureter 11/1/06, thought to be caused by a large hemorrhagic ovarian cyst. I had a stent placed in my ureter, and we waited for the cyst to go down. It didn't, and I had a laparotomy (my CA 125 came back elevated, and they had to do the laparotomy in case it was cancer). I have severe endometriosis, but no cancer (thank goodness!), and that is what is blocking my ureter. I had my stent changed on 3/12, and I started Lupron on 2/28. The hope is that the Lupron is going to shrink the endometriosis on my ureter-it could not be removed for fear of damaging my ureter. If the Lupron does not work, I have to have a ureteral re-implant, as for some reason I have lots of calcifications on my stents. I am also going through a kidney stone work up. The really odd thing is, the only symptoms of endometriosis I had was bad cramping with periods. My doc says I have had it for so long, the adhesions are pretty bad (she removed what she could, but adhesions and endometriosis could not be removed from my bowel or bladder, or the ureter), and my fallopian tubes are blocked, so my chance of conceiving naturally are very slim. Also, I am a registered nurse, so that has been very helpful through all of this. My advice to you would be to see a urologist. If you have problems with that area, it should be treated by someone who specializes in that area. I have been very lucky to get wonderful docs, since all I did was walk into the ER thinking I had a bad UTI. To everyone about Lupron: medications work differently for everyone. I worked in a GYN office for over four years, and those docs did not receive kick backs for prescribing Lupron. In fact, they recommended quite a few patients for the patient assistance program, which either gives you the Lupron for free, or at a discount price. It is illegal for MDs to receive any payment for prescribing drugs. Even taking MDs out to dinner is closely monitored. As far as prescribing it to men for prostate cancer, many drugs have multiple uses. There is a medication that is a blood pressure medication that is given to children to prevent bed wetting. At one point, Lupron could only be used for a maximum of six months in a lifetime, and now that is no longer a restriction. Sorry this is so long...I am doing the monthly shots of Lupron, because I am afraid to have that much hormone in my body, and for some bizarre reason my insurance company covers more of the monthly shots. I have had some bloating and weight gain, a little spotting, and some moodiness, but it feels like it is tapering off now that I am in my second month. I have a friend who LOVED Lupron. She said she felt the most normal she has ever felt on it. I think everyone should do research before trying Lupron, but for some people it may be the best treatment. When choosing between my ureter or Lupron, I am picking Lupron.
|
|
|
Lupron
Apr 7, 2007 0:48:11 GMT -5
Post by twee217 on Apr 7, 2007 0:48:11 GMT -5
I was supposed to get my first lupron shot today, but i just couldn't do it yet. I put it off for another two weeks. i've read so many posts and i'm still unsure and concerned. i guess now it's a matter of choosing to deal with the pain or choosing to deal with the side effects. i'm a preschool teacher and i don't know which to choose.
|
|
|
Lupron
Apr 7, 2007 9:45:58 GMT -5
Post by Tiff on Apr 7, 2007 9:45:58 GMT -5
I think you made a good choice, if you are not sure about it than it is wise to wait until you are. Lupron is a big decision and if you are confused and unsure then you shouldn't do it.
|
|
doll
Junior Member
Posts: 62
|
Lupron
Apr 7, 2007 10:47:13 GMT -5
Post by doll on Apr 7, 2007 10:47:13 GMT -5
Sorry to be repetative, but AMEN again!
|
|
|
Lupron
Apr 12, 2007 8:39:42 GMT -5
Post by bandwidow on Apr 12, 2007 8:39:42 GMT -5
I was supposed to have my first Lupron shot on Monday (4/9), but I also couldn't do it yet after doing a lot of reading over the weekend. I'm going to try some natural things first, and see if that helps. Does anyone know how long you can wait after surgery before Lupron won't do you any good - or can you take the Lupron at any point? My doctor said I shouldn't wait any longer than a few months.
|
|
|
Lupron
Apr 12, 2007 9:08:03 GMT -5
Post by lyndsey on Apr 12, 2007 9:08:03 GMT -5
After getting a second opinion I decided to go ahead with the Lupron shot. I got my first injection yesterday afternoon. I have a headache this morning but have no clue if it is due to the Lupron or not. I'm praying I made the right decision......
|
|
|
Lupron
Apr 12, 2007 9:16:15 GMT -5
Post by ouchy on Apr 12, 2007 9:16:15 GMT -5
bandwidow, my friend took Lupron without even having a lap. So, you can actually take it any time (if you decide to do that). lyndsey, wow! Hope your headache isn't from the Lupron and that you don't experience any of the horrible side effects! I hope you'll be one of the few who love Lupron! Best wishes Keep us posted!
|
|
|
Lupron
Apr 18, 2007 8:50:02 GMT -5
Post by lyndsey on Apr 18, 2007 8:50:02 GMT -5
Currently have been on Lupron a full week and haven't experienced ANY side effects ....yet! I think the headache I had on day 1 was due lack of caffeine . I never had any pain with my endo before Lupron, so I can't judge whether it helps in that sense. I'm trying not to get my hopes up though, because I have 3 more shots to go!!
|
|