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Lupron
Apr 20, 2007 17:38:35 GMT -5
Post by twee217 on Apr 20, 2007 17:38:35 GMT -5
Well i decided to go ahead and get the Lupron shot because my pain is slowly coming back. I got it today and the only thing i've experienced so far is extreme tiredness and being lethargic. My dr. said to just rest this weekend and get a lot of rests. I was very excited when I got the shot becaue it didn't hurt! So we'll see how it goes I have 5 more shots to go.
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doll
Junior Member
Posts: 62
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Lupron
Apr 21, 2007 12:25:16 GMT -5
Post by doll on Apr 21, 2007 12:25:16 GMT -5
Hi all, I'm so happy for those of you that Lupron helped. I just wanted to share this email that a gal from another endo group I belong to posted for all of us! I thought it was insightful. ;D ;D
Most endo sufferers will be aware of the dangers of GnRH-agonists (for example Lupron) already, but I need to revise some statements I made long ago about the side effects of this type of medication: they CAN be permanent.
I've always been sceptical about irreversible side effects, after all, when the medication is no longer taken, the causative agent of the side effects is gone, right? But it's not that simple. Sometimes medication acts like a trigger that starts a process in the body, and the process can continue when the medication is no longer used. (I found no good quality scientific research backing this up, so no guarantee as to the correctness of my theory.) 18 months after only 2 months of Lucrin (Lupron) I still have all the issues that suddenly occurred during treatment:
Raynaud's phenomenon (http://en.wikipedia.org/wiki/Raynaud%27s_phenomenon), hot flashes, night sweats, pain in hands, arms and feet, and "shin splints" (http://en.wikipedia.org/wiki/Shin_splints).
The Raynaud's is mild but very easily triggered, so I have decreased sensation in my fingertips most of the day. Which is terrible when using a PC (which I do all day). The shin splints are a bugger since I'm a runner. The hot flashes occur exclusively while eating a hot meal or having sex. (No sex after dinner for me, it'll result in spontaneous self-combustion). The night sweats are infrequent but destroy a good night's sleep. The pain in arms and feet isn't bad but annoying, and worse, a constant remainder of a stupid decision to try Lucrin. So despite you are all bored to tears by my rants about this drug, I can't help myself to post yet another warning..
And I forgot to mention all the cost, time, worry and sleepless nights as a consequence of having to rule out serious disorders like rheumatoid arthritis, hypothyroidism or scleroderma, and constantly running to sports physicians to check for overuse injuries. One could go broke just by trying Lucrin for 2 months!
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Lupron
Apr 21, 2007 13:37:02 GMT -5
Post by ouchy on Apr 21, 2007 13:37:02 GMT -5
Posted by member stina in another thread. _____________________________________________ My question is, has anyone who has had a laparoscopy been put on Lupron first before the surgery? The reason I ask is that my DR has mentioned that she would want me to take lupron for a few months before hand to shrink down the implant size. Now, when my DR and I talked about this, we were talking about the mass in the pocket of douglas (which I have decided to leave there due to the risks). But in regards to adhesions (my left tube and uterus are attached to eachother), would being put on Lupron be important? I wonder if there is that option to say no to Lupron and still go in? Any thoughts? "
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Lupron
Apr 21, 2007 13:40:51 GMT -5
Post by ouchy on Apr 21, 2007 13:40:51 GMT -5
Hi, stina. I wasn't put on Lupron first, but I was on the pill. You ALWAYS have the option to say "No." In fact, since the Lupron shrinks the implants so much, if you weren't on Lupron or any other hormonal treatment, the implants would likely be more visible, so there might be a chance that there would be more endo the doc. could get, since more implants would be less microscopic/more visible.
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Lupron
Apr 21, 2007 14:15:37 GMT -5
Post by JackMcFarland on Apr 21, 2007 14:15:37 GMT -5
Actually, I saw a Dr that wanted me on Lupron prior to having surgery. I did not use him as a Dr because we didn't see eye to eye. For me, at this point, I'd rather come off treatment, wait a few months, then proceed with surgery. To know that the implants will be visable to my Dr is important to me so I know they will try and get it all.
Also, as a 'maybe' fix, Lurpon isn't worth it to me. Too much risk involved to maybe get relief in pain and a host of other side effects.
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Lupron
Apr 22, 2007 17:40:15 GMT -5
Post by Tiff on Apr 22, 2007 17:40:15 GMT -5
Yes I had a Dr. suggest Lupron even before I was officially diagnosed. She felt there was no reson for a lap. I felt there was no reason to take a medication like that unless I knew for sure if it was endo. I changed Dr. immediately and had a Lap performed before starting my round of Lupron!
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Lupron
Apr 26, 2007 7:59:45 GMT -5
Post by Mamedarling on Apr 26, 2007 7:59:45 GMT -5
Hi, everyone. I'm feeling really torn and discouraged. I've been trying to get pregnant through donor insemination for four months. Had a lap week before last, and my doc found stage 4 endometriosis along with an ovarian cyst and uterine polys. I'm still in shock. She said she wasn't able to get everything (some endo is on a blood vessel and some is on a fallopian tube). She's recommending lupron for 6 months, followed by clomid and trigger shots for future AI attempts. Has anyone been through this?
I'm freaked out. The one thing I've had going for me is that my cycles are pretty regular. I hate the idea of messing them up. On the other hand, the doctor sounded really pessimistic about my chances of getting pg with this level of endo...unless I go on the lupron.
Also, I'm cutting and pasting a post from someone else that talks about other drugs that support fertility more. Could someone point me in the direction of those? I'd be really grateful.
Previous post: Overall, I believe that it does more harm fertility-wise than good. Most women have horrible side effects from it, and it often delays fertility in women who take the drug (takes a while to get a cycle back).
The only advice I can give you is to start at page 1 of this thread and read each post. If you are looking at fertility benefits, there are lots of other drugs touted for fertility rather than Lupron, which does some serious things to your body, including bone loss!
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Lupron
Apr 26, 2007 9:38:00 GMT -5
Post by lyndsey on Apr 26, 2007 9:38:00 GMT -5
Mamedarling, I was diagnosed with Stage 2 endo and am currently on Lupron. My husband and I had not ttc before but are going to start after I finish 3 months of Lupron. I did much research on Lupron and read horrible stories about it, I was terrified to get my first injection. However, I got my first injection 3 weeks ago and have not had any side effects whatsoever. Also, I found two woman in my hometown that have taken Lupron and had good experiences with it. I think it is important to keep in mind that people are more likely to post their experiences with Lupron (or any drug) if they are negative rather than positive. I know I still have 2 more shots to go but I am very optimistic. I believe a positive frame of mind is a very powerful thing.
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Lupron
May 4, 2007 18:52:39 GMT -5
Post by Tiff on May 4, 2007 18:52:39 GMT -5
Are you taking your lupron shots every month Lyndsay? I had a bad experience with lupron but I took a 3 month dose not a month dose so this may be why we experince things different as well.
Mamedarling- It does take a while for your body to get back to normal, it could take up up to a year. The longer you are on it the longer it usually take to get your cycles and ovulation back to normal. But if a Dr. is wanting to start you on clomid immediately following the lupron treatment that will help to get your ovulation back on track faster! I have taken Lupron and Clomid so if you need any information just PM me!
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Lupron
May 6, 2007 19:51:50 GMT -5
Post by lyndsey on May 6, 2007 19:51:50 GMT -5
Tiff - I am on monthly doses of Lupron. I'm scheduled to get my second dose on Thursday.
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Lupron
May 8, 2007 13:35:00 GMT -5
Post by Tiff on May 8, 2007 13:35:00 GMT -5
Dr. Perscribe Lupron in different doses. I took one shot with a three month amount of Lupron. I only took one shot in my round of Lupron but since the dose was such a high amount 11.5 mg per injection and if you take it monthly it is about 3.3 mg per injection. If you are concidering taking this medication you should consult your Dr. of the side effects of each dose. I had horrible problems with the meds, I did not sleep, I could not focus, I sweat profoundly through out the day. I was miserable! But this may be due to the high amount taken at one time. So this too could make a difference on how you may experince the drug.
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Lupron
May 8, 2007 14:20:52 GMT -5
Post by zzerebecki on May 8, 2007 14:20:52 GMT -5
hi maybe im just being thick but being english is 'lupron' an injection than puts you through the temp menopause? because if it is then i have been given a 3 month injection called prostap which does this. sorry.
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Lupron
May 8, 2007 14:52:26 GMT -5
Post by ouchy on May 8, 2007 14:52:26 GMT -5
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Lupron
May 9, 2007 14:17:46 GMT -5
Post by zzerebecki on May 9, 2007 14:17:46 GMT -5
thanks for clearing that one up for me.
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Lupron
May 9, 2007 14:41:37 GMT -5
Post by ouchy on May 9, 2007 14:41:37 GMT -5
No prob.
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