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Lupron
Jun 7, 2013 13:34:29 GMT -5
Post by smithbr1118 on Jun 7, 2013 13:34:29 GMT -5
So I got my second injection on May 28th, a three month dosage this time. I was also prescribed 2.5 mh Medroxyprogesterone, 20 mg Celexa, and 600 mg Calcium Carb/400 mg Vitamin D. I feel good so far. I am so so sooo glad I did not have to go through the monthly period pain as there was not period. Woo-hoo!! The hot flashes are driving me nuts though, especially in the evenings and at night while I'm trying to sleep. The temp this weekend is supposed to reach 95 this weekend here in New Mexico so I won't be surprised to be experiencing hot flashes more during the day. Anyone have experience with black cohosh to relieve hot flashes? I haven't searched it yet on this board but I will. Other than that, I'm getting to sleep easier, continuing to lose weight and not weepy. Oh, and less brain fog. I have about one headache per week but it's relieved with 400mg ibuprofen. I'm really liking this Lupron stuff.
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Lupron
Jun 12, 2013 19:06:27 GMT -5
Post by willow82 on Jun 12, 2013 19:06:27 GMT -5
The progesterone should help with the hot flashes, but 2.5mg might be a little low. The standard addback for Lupron for Medroxyprogesterone (Provera) and Norethindrone is 5mg.
I'm really sad and scared I'm on my final month of the shot, I meet with my endo specialist next week to decide where we are going from here.
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Lupron
Dec 19, 2013 16:47:31 GMT -5
Post by princessbritain on Dec 19, 2013 16:47:31 GMT -5
Has anyone had any hair loss? xx
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Lupron
Dec 23, 2013 13:50:25 GMT -5
Post by smithbr1118 on Dec 23, 2013 13:50:25 GMT -5
So the Lupron (six month treatment) started wearing off in October; I had a short, light period in October and a heavier one in November (right on time, my periods were always 29.5 days apart). But, I havent had a period since the one in November and I'm now three weeks late. I peed on a stick two weeks ago when I was a week late, results were negative. I'm also having hot flashes like crazy, just like when I was a month into the Lupron treatment. I'm not currently on any medications. Anyone heard of a delayed period or hot-flashes after the Lupron has worn off?? Should I pee on a stick again? Keep in mind, I'm only 33 years old and have never been pregnant due to the Stage IV endo. Could I be starting menopause at this age? I'm so confused. Princessbritain -> I dealt with hair loss throughout the six-month Lupron treatment. It happens.
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Lupron
Dec 25, 2013 16:31:35 GMT -5
Post by princessbritain on Dec 25, 2013 16:31:35 GMT -5
Hopefully I'm lucky and don't get that since my dosage is pretty small, plus my hair is super thick so maybe I will be fin :/ will have to see in a couple of weeks hey! xxx
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Lupron
Jan 17, 2014 21:08:53 GMT -5
via mobile
Post by princessbritain on Jan 17, 2014 21:08:53 GMT -5
I had my first shot of Lupron today.
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Lupron
Jan 26, 2014 22:42:51 GMT -5
via mobile
Post by princessbritain on Jan 26, 2014 22:42:51 GMT -5
So far I'm pretty emotional, I have hot flashes and trouble sleeping sometimes? Also very tired, feel sick sometimes and pains still here. Can anyone remember when the hair loss started? It's been just over a week since my first injection.
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Lupron
Feb 16, 2014 19:50:21 GMT -5
via mobile
Post by littlemiss on Feb 16, 2014 19:50:21 GMT -5
Hey ladies, Be careful on Lupron it's a nasty one (side effects wise). It definitely got the job done for me and I was on it for 6 months. I experienced hair loss, night sweats, nausea, mood swings, softer bones, and weight gain. Basically makes you feel like you're in menopause!! If you can stick through all this madness your pain should be significantly less, or totally gone! Good luck girlies. Thank goodness for this forum! Sometimes I feel like the only one who has to put up with this crap!
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Lupron
Mar 12, 2014 16:36:25 GMT -5
Post by princessbritain on Mar 12, 2014 16:36:25 GMT -5
Currently I am on my 2nd shot of Lupron but due for my 3rd injection a week today (19th)
My first shot I experienced very bad ribcage pain that I could barely walk or breath for a couple of days, and now during my second I have pain in my neck and shoulders and at times I can barely move or turn my head. Throughout the duration of my injections I have also experienced the "normal" side effects such as hot flashes/sweats, nausea, forgetfulness, foggy minded and I'm emotional but for some reason I struggle to cry. I'm still getting very bad pain
I went to my Dr today and Mr Dr has said that if I am not better by the end of my 3rd shot then it's a bit of a dilemma but that I'm not to worry and it isn't my fault and that we will sort it. I am stage 1 endo currently, I am wondering maybe my endo is else where? they only made two incisions so I dunno maybe they need to look more?
Just wondering if anyone has been in a similar position?
XOXO
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Lupron
Apr 1, 2014 10:36:43 GMT -5
Post by princessbritain on Apr 1, 2014 10:36:43 GMT -5
Well, I am not a happy Princess.
After 3 months of this damn injection, hot flashes and all the other stupid side effects, I am still in pain so my Dr has taken me off it as it isn't working personally for me.
I have piled on weight like around 10 lbs. I'm so upset that I went through 3 months of crap for absolutely nothing.
So I have now been told to go to a specialist.
Oh and if I read another person say "it is possible for you to not gain weight with Lupron" I will Hi5 them in the face with a chair, People annoy me because they think because they are lucky enough to not have gained must mean that everyone can be that lucky.
ugh
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Lupron
Jun 12, 2014 23:43:53 GMT -5
Post by nic321 on Jun 12, 2014 23:43:53 GMT -5
So I got my first lupron injection on June 2. The first 3-4 days were rough. I was so nauseous, no appetite, pelvic/ back pain, my mood was crazy, and I would cry over anything. By the weekend I was feeling great! I had a great week. The pain was less severe, improved mood, appetite returned, and have lost 9 lbs. Day 11 was like starting day 1 all over. So sick. Head pain, bone pain. Nausea. A complete wreck. Day 12 minor improvement. Going into day 13.... Has anyone experienced this while on the monthly dose of Lupron?
-Nicole.
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Lupron
Jun 20, 2014 16:53:28 GMT -5
Post by nic321 on Jun 20, 2014 16:53:28 GMT -5
OMG!! I'm almost sure I have posted about my lupron experience before, but right now I'm not completely sure. So I'm wondering if anyone else out here has experienced this from lupron? I got my first injection on June 2nd. about the second week i began having a severe headache. I do have chronic migraine and pseudo tumor, but have been stable on meds for over a year. My head pain wasn't like a migraine, but rather like major pressure in the front part of my head, behind my eyes and and at times feels like someone drilling into my temples. with this i have nausea, light and sound sensitive (its actually hurting me to type this post, but I'm desperate for help). my fist thought was the return of papillidema, i went to eye dr, and optic nerves looked fine. i went to neurologist for a followup. and he suggested a hight dose of prednisone, and pain meds around the clock to break the "status migraine. (note he is retiring, and, well you get where I'm going with that). GYN suggest i call Neurologist, Neurologist told me he didn't know much about lupron to call GYN. I call Gyn back and they tell me they couldn't undo the shot to call neurologist, that headaches wasn't a GYN issue. (what a bitch- sorry, the prednisone my be making me a little ill) The only one with any sense is my optometrist, God bless her, and she can't order MRI's etc. LIKE WHO KNOWS ANYTHING ABOUT WHAT IS GOING ON? AND WHY DO THEY CALL THEMSELVES DR'S? IM GETTING SO FED UP. I'm laying in the bed for a week now in a dark room, hot flashes from lupron starting to take effect, and here are my symptoms again..
-Pain/Pressure in front of head/behind eyes. -Nausea -ear whooshing/pain neck pian
Im on 20mg 3x day prednisone and Norco every 4 hours and nothing relieves this pain.
Does anyone ahave any advice or experience with this?
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Lupron
Sept 22, 2014 23:09:13 GMT -5
Post by krista on Sept 22, 2014 23:09:13 GMT -5
Hi honey I am on Lupron now, and it has done wonders for me. For me personally, I can't say I've had terrible side effects. I have my last shot next week. Surgery didn't work for me so I'm just glad that I have something that does. I hope everything works out.X
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Lupron
Apr 2, 2015 3:13:05 GMT -5
Post by marleybee on Apr 2, 2015 3:13:05 GMT -5
Hello ladies, I have just started my first month of Lupron injections. I am doing the once a month for six months course. The day I got my shot I experienced extreme pain at the injection site (a symptom I was fully expecting) as well as feeling dizzy and disoriented and having terrible body aches. The body aches have persisted this whole week as well as consistent nausea, vomiting and diarrhea. I don't feel like myself at all and have been so emotional. Sleeping constantly when I am not sick at my stomach. I called the doctor after a couple of days and I went in to be checked out. I was given an anti-nausea prescription and told that it probably isn't the lupron making me sick because they had never heard of these side effects. I have had no menopausal side effects so far one week in... just the terrible stomach problems. I don't know what to do at this point. I think the only way to convince my doctor that it is the lupron is to continue the injections and see if this happens again or not. I am afraid to continue thought because I can't handle staying sick like this. My doctor has given me lupron or a hysterectomy as a choice of treatment and I am far more inclined to just do the hysterectomy because my endo specialist has told me that he is almost certain that I have adenomyosis as well as endo and that no matter what I would not be pain free unless I had the hysterectomy. I do realize that a hysterectomy is not a cure by any means but my husband and I have decided not to have children for many reasons completely unrelated to my endo but my GYN continues to try and steer me away from it because of my age (22). I am going to be going back to school in the fall and am desperate for some kind of relief before I am committed to class. I am so frustrated with this pain and the limited options I am given. Any advice would be so very appreciated. Should I stick out the Lupron, push for the surgery or just find another way to cope? Sigh... Thanks for listening!
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Lupron
Jun 2, 2015 12:21:47 GMT -5
Post by nccoffeebean on Jun 2, 2015 12:21:47 GMT -5
I had Lupron 8 years Ago:
This post is very late in sending, as I received Lupron about 8 years ago. It was a terrible time in my life and I had searched this very site to understand if this was the best course of action for me. In some ways, maybe this will be helpful as I can give a post experience of how it has impacted me down the road. Forgive me if my facts are not spot on-I'm only going by memory and the suggested course of treatment may have changed since then.
My basic history is disabling menstrual cramping from my mid teens through to 40. Never on a schedule. Could go 30 days or 65 days for all of my adult life, I could never track when to expect my period, except
I had a baby at 22 and another at 24. Both pregnancies were very difficult. In retrospect, my doctors have told me I was probably infertile shortly after that and was a miracle I could conceive at all. I was told my pain would probably improve after having children. This never happened. I had laproscopic surgery for endo when I was 26 yrs old. Nothing helped. I have and still have ovarian cysts that come and go.
So...I managed, like my mother had before me. The only thing that helped was 5 Aleve tablets at onset of my period and 3 tablets every 2 hrs for the next 48 hrs in order to function. Like many of you, a heating pad and lying prone were my only source of comfort.
So in 2007, on the advice of my physician, I decided Lupron was my only chance. My doctor had recommended this drug treatment to buy as much time as possible before doing a hysterectomy. After much debate and very good advisement from a woman physician who is a great friend, I decided my quality of life was more important than the potential long term ramifications of taking this drug. A hysterectomy was so permanent, and of course has it's own potentials for major side effects-ones I couldn't reverse.
I seem to remember being told it was monthly shots for 6 months. In the end, I was only able to complete 4. The side effects were just too terrible. What I really didn't get was that your body is put completely into menopause...but instead of it happening over a few years, it happens in a month. The worst symptoms for me were the hot flashes, not sleeping and trembling and shakiness. I felt like I was carrying a heavy backpack everywhere I went. I couldn't concentrate and I cried all the time (not me at all). It was debilitating.
So I completed 4 of the 6 treatments and felt defeated I couldn't tough it out.
Once I discontinued the Lupron, I returned to normal...and still had menstrual cramps. But then, somehow, they were a little bit more manageable. And then more manageable again... So fast forward 8 years....at 48 years old, my periods have been "regular" for the last 5-6 years (every 28-35 days) I had been told Lupron had a lifespan of about 3-5 years of assisting with the pain. In my case, I would say I am pain free. There are many months that I don't take anything at all. Every 3-4 months, I'll feel a "twinge" and take 3 Aleve and then I'm fine. It's quite remarkable when I look back and realize how much management it would take to accomodate my cycles. I still have ovarian cysts and still ovulate and have occasional discomfort then. It passes. I can honestly say it's like being a different person. For me, the results have continued on long past the timeframe I had been told.
Of course, I don't know if there will be long term ramifications from receiving this treatment. All I can say, is that for me, in spite of the rabid side effects, it was DEFINITELY worth doing. My life is 100% better and I'm grateful. I hope that helps. Remember, you have to make the best educated decision for YOU.
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