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Lupron
Apr 3, 2013 6:30:11 GMT -5
Post by nibletz on Apr 3, 2013 6:30:11 GMT -5
Is lupron similar to zoladex?
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Lupron
Apr 3, 2013 17:16:13 GMT -5
Post by willow82 on Apr 3, 2013 17:16:13 GMT -5
Yes, they are both GnRH Agonists.
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Lupron
Apr 4, 2013 15:04:30 GMT -5
Post by megan77 on Apr 4, 2013 15:04:30 GMT -5
I have not posted in a long time. After my lap in 2011 my endo was quiet for a while. It started creeping back this past summer and my dr suggested we give the one month of Lupron a try. The side effects were noticeable, but manageable. I did have an extremely painful period mid month. I was supposed to get my second shot today , but have had a migraine for 5 days. It is more like a headach now, but my vision seems a little off. Anyway the doctor said we should wait and see what happens with the headaches before continuing with the second shot. I was just wondering if anyone ever had a similar situation?
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lipps
New Member
Posts: 9
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Lupron
Apr 6, 2013 13:26:24 GMT -5
Post by lipps on Apr 6, 2013 13:26:24 GMT -5
Something interesting happened to me while on The Lupron shot: I was okay first 3 weeks, then the 4th week I started to have some pain and it was so bad I passed out. Went to the doctor and he said it could be that there are patches of endo that are embedded in parts of organs and they are dieing off, which is why I'm in extreme pain. He said it should only last a couple of days, but since I'm an extreme case couple be a couple of weeks. He put me on Celebrex and Valium also. It is really making a difference now!
Just a thought on what a lot of people are saying they get extreme pain for a bit while on the Lupron shot. I thought that was interesting and I hadn't heard that anywhere else.
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Lupron
Apr 7, 2013 12:29:37 GMT -5
Post by nibletz on Apr 7, 2013 12:29:37 GMT -5
Thanks willow :-) I'm contemplating what my next 'step' is....but Lipps glad it working for u hun....whilst on zoladex I suffered a lot as was given no hrt I believe that's suppose to help side effect plus I was only 23 at the time hey ho its life xxx
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Lupron
Apr 12, 2013 21:37:54 GMT -5
Post by MustangGtGirl on Apr 12, 2013 21:37:54 GMT -5
Lupron has many side effects. Blured vision being one of them. Please read up on it more before you continue with it.
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Lupron
May 6, 2013 16:53:59 GMT -5
Post by smithbr1118 on May 6, 2013 16:53:59 GMT -5
I just got my first one-month shot last week on April 30th. I listened to you gals; I was told last month after the stomach acid vomiting and non-eating for three days that I should've just gone to the doctor. This time, I did. I went to OB/GYN and I was a mess. I couldn't stop crying almost the whole time I was there. As usual, I had been vomiting stomach acid (because I had nothing in my tummy to vomit) because of the pain my period was causing. I also can't eat during that time (for three whole days at the beginning of AF) because digesting hurts too darn much. After 1 3/4 days of this, I went in. I told her I'm still open to a complete hysterectomy, she advised against it since my adhesions were so dense from growing for so long and likely wouldn't provide much relief and I have to agree with her. My last option before that was Lupron. I've followed the threads here for years so I never wanted to try Lupron. After both my laparoscopies, the surgeons were trying to push Lupron on me, I refused outright. This time, I was in such misery that I had to give it a shot (pun). My OB/GYN did not order a bone density scan nor Add-Back.
My side effects 6 days post-shot so far: days 1, 3 and 6, i've had a minor headache; a tiny bit of caffeine helps (I mostly quit caffeine about four years ago, so a cup of decaf coffee provides enough caffeine to sort the headache). On day 3, I was so friggin weepy, I think I cried four times that day (but I'm also going through alot in life right now, I read the 'depressed' thread last week but didn't post). Right now, I have minor pain around my right ovary/uterus as if my period is starting soon but it started last week. I also have irritating middle back pain.
I'm afraid of what's to come (hot flashes, possible hair loss, osteoperosis, mood swings, etc.) but I'm also staying positive in regard to any relief the Lupron may provide, even if temporary. I'm also wary about it; the last few times I tried continuous BCP and mirena to stop my periods, I still had periods regularly. Granted, the pain was reduced slightly, but, they still came.
For now, I'll be receiving montly injections in case I want to stop. Next stop: hysterectomy.
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Lupron
May 6, 2013 19:31:33 GMT -5
Post by willow82 on May 6, 2013 19:31:33 GMT -5
smithbr, once I started progesterone replacement most of the menopause like side effects disappeared. Also remember with Lupron the pain gets worse before it gets better, it can take up to 6 weeks for the clinical flare to fully pass and the production of gnrh to shut down.
I am in my 5 month and Lupron has been a lifesaver. It's allowed me to have the time to give my body some time to recover, get started in pelvic physical therapy, get an awesome treatment team together, and sort out what of my pelvic/colon issues are endo related and what are not.
Full endo removal via laproscopy is a necessity though, also if you form adhesions easily pelvic pt can help break them up, and pelvic pt and related exercises can prevent adhesion formation if started right after surgery.
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Lupron
May 7, 2013 9:49:57 GMT -5
Post by smithbr1118 on May 7, 2013 9:49:57 GMT -5
OH MY GAWD!!! THE PAIN!!!
I've posted in the 'Decisions are Hard' thread about the blood in my BM's and it's at its worst right now. The only time I've had this much blood in my BM's was during my 1st period after the 2nd lap. It is soooo painful. I know it's caused by the surge of estrogen due to the recent Lupron injection, I just hope it doesn't last much longer. I could hardly sleep last night because I took the hydromorphone that was prescribed to me and it makes my brain work overtime, it probably also was a combo of the insomnia Lupron may cause. I woke up once an hour from 11pm to 3am and from 3am to about 4:20 am I didn't get a wink of sleep. But, this too shall pass, right?
Willow, thank you for the encouraging words. I've schedule my first pelvic PT appointment for May 14th, I just hope the phys therapist is knowledgeable in regard to endo adhesions.
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Lupron
May 15, 2013 11:36:27 GMT -5
Post by smithbr1118 on May 15, 2013 11:36:27 GMT -5
Beginning of week 3 (post Lupron injection): I had my first hot flash this past Saturday at midnight while I was driving so I just rolled the window down. It wasn't horrible, but, it was noticeable; I've only had one other hot flash since then so I just stepped outside (in the evening). I have acne forming on my forehead but it isn't noticeable to others. I'm more tired than normal in the mornings and right after work but I can handle it. It's a little hard to get to sleep at night so I've been taking a small dose of nighttime cold medicine to help. I'm newly-single and living alone (with my cat) for the past four weeks so there's really no reason for me to have mood swings. I understand many women also experience deflating of the boobies; I hope mine don't totally deflate since I inherited my dad's boobies. L. The positive? NO PAIN!! Yayyy!! My pain during ovulation is usually about a 7 or 8 and my pain was about a 3 last night (which I'm associating with ovulation just because it's two weeks after my cycle began) for only about an hour compared to a day and a half pre-injection. Yippeee! I'll be getting my next shot on May 28th. Here's to being pain free!
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Lupron
May 17, 2013 9:57:24 GMT -5
Post by smithbr1118 on May 17, 2013 9:57:24 GMT -5
I'm only in my third week of Lupron treatment and I already have fuzzy brain. I thought my memory might worsen after a couple months but it's so soon already. I developed a slight stutter about 7 years ago and it went away on its own after about six months, my stutter is developing again. Can this be attributed to the Lupron? I haven't been taking a multivitamin for a month a half, I think I'll start taking them again.
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Lupron
May 17, 2013 16:26:54 GMT -5
Post by Karen on May 17, 2013 16:26:54 GMT -5
Your symptoms could potentially point to low estrogen, which is essentially the purpose of Lupron. Unfortunately, estrogen is critical to so many things - there are hundreds of estrogen receptors in the body - so a drop in estrogen can potentially affect so many things. The brain fog is a common one, but I haven't heard of the stuttering. That's not to say they're not related. I tend to stutter when my thyroid levels are low, so it's not absurd to think the stutter is somehow related to hormone levels.
If you're concerned, I'd discuss it with your doctor.
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Lupron
May 17, 2013 16:45:23 GMT -5
Post by willow82 on May 17, 2013 16:45:23 GMT -5
Are you taking any form of Progesterone? The recommended add back is Norethindrone. Progestins help with all of these Lupron side effects. Also DEFINITELY take a multivitamin, especially one that includes plenty of calcium and Vitamin D for bone health. Lupron reduces bone density, so vitamins related to bone health are a necessity. Also if the low moods continue, as well as brain fog, an SSRI can also be really helpful. A lot of people on Lupron really like Cymbalta which is a SSNRI, it just wasn't a good choice for me. My medication regimen is as follows: Lupron 3.75 once a month Provera 5mg daily (I am allergic to Norethindrone, so I take Provera as my progestin) Lexapro 10mg daily (it's a basic SSRI like Prozac, Paxil, Celexa, Zoloft, etc) Multivitamin with 1000 D3 daily This kind of med regimen is HIGHLY recommended with Lupron. Other than the occasional hot flash, and very occasional forgetfulness I have no side effects from Lupron. Other than less pain, no horrific bleeding, and I don't look pregnant half the month Here is an article I wrote spelling all this out, along with my story, and my research on treatment with Lurpon: expiation.org/blog/?p=412 I hope it helps.
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Lupron
May 22, 2013 9:22:06 GMT -5
Post by MustangGtGirl on May 22, 2013 9:22:06 GMT -5
I did have Fog Brain and Willow is right about the add back as well as an antidepressant. I did not have luck on Lupron but many have had luck with it. Try talking with your Dr about what willow said you may see a difference.
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Lupron
May 24, 2013 10:06:41 GMT -5
Post by smithbr1118 on May 24, 2013 10:06:41 GMT -5
Thank you ladies for all your input. I'm comforted communicating with others who have experience with this junk. The stutter seems to have disappeared, but man, the hot flashes when I'm trying to sleep. . . sheesh. I have to sleep with a piece of mail next to me on my bed to use to fan myself off each time the sweating wakes me. I'm getting my second shot on Tuesday so I'll be asking the administering person about progesterone add-back among other things. I have minor mood swings but I think they're called for when they do happen. LOL. A positive for me is that I'm not having weight gain issues, I've actually lost 5 pounds since I started the Lupron; then again, I was on a weight loss kick before I started the Lupron (especially since the depression kick-started it and I lost 9 pounds the first week things went downhill). I'm doing so much better though and I plan to lost another 20 pounds if I can, despite the bad rap Lupron gives. Like everyone says, Lupron is for some but not for most, you just gotta try it if you get to that awful point. I like what it's doing for me so far, just gotta get the right supplements. Maybe it's premature to be saying that since I'm only in the first month of therapy. Thanks again ladies!! I'm thankful for you all.
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