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Post by 1234 on Feb 28, 2012 15:54:41 GMT -5
Jess, it was quite a letter to receive, and particularly when you've invested so much in this surgery, emotionally particularly, and are trying to hard to put your life back together on your own terms. You'll still be able to do that! But, hysterectomy or not--all of that aside--being told that you're not fixed when you were so invested in being fixed is such an emotional blow, just in itself. The hysterectomy language is on top of that.
I'm glad you cried. We're here for you.
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Post by jessabug on Mar 1, 2012 13:25:53 GMT -5
Thanks girls. I really love you both. My period is creeping around for its monthly visit.. I am less than excited, but, I have some good news! It's so much less painful (so far) this go around than the last couple! Granted, it hasn't actually STARTED, and I'm not sure when it will, but I think that being back on the Nuvaring and (possibly?) the acupuncture have helped to considerably reduce my discomfort. I'm crossing my fingers that I'll be able to actually get through this entire period without any prescription drugs! Cross yours for me too!
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Post by hellsbells on Mar 1, 2012 14:44:06 GMT -5
:-)
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Post by 1234 on Mar 1, 2012 16:32:43 GMT -5
Crossing, Jess, very hard!
I can see that acupuncture could have a more immediate effect on cramping than on the other parts of endometriosis--I really hope it helps you! The nuvaring also, in the sense that you wouldn't have a "real" period or the hormone changes that accompany one might also reduce the cramping.
In any case, you certainly need an easier time. Glad to hear some more spunk in your voice!
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Post by jessabug on Apr 22, 2012 2:37:22 GMT -5
Hi there beautiful ladies! Just popping in to say hi I hope you all are doing well! I realized a few days ago that I haven't been on this board in nearly two months. Not for any particular reason... I blame concentrating SUPER DUPER HARD on bringing my GPA back up. I am doing really well!! I have so far gotten perfect grades on everything I've done for every class (fingers crossed; I have an exam on Monday) and I hope to keep it up! I quit going to acupuncture and am paying for it a little bit, but it's a sacrifice I'm willing to make. My acupuncturist was great and I really liked her, but I really hated the way those needles felt. Call me a wuss, but I just couldn't stomach it. The final straw was when one of the needles in my foot gave me this intense pain that hurts my belly button even just thinking about it! No worries though, because the NuvaRing controls things for me for the most part. I do have a couple of pain days here and there, but nothing compared to how it used to be. Because of the (potential??) adeno (or whatever the hell it is that's still causing me pain haha) I've learned that I just can't push my body too hard or else I pay for it the next day with lots of soreness and inflammation (sometimes it feels like my lady parts are going to just throb right out of my body! haha), but the reason I'm so upbeat and cheerful is that I feel like I'm at a place where I've come to terms with it and have learned to just accept and work with the shortcomings I've got now. For example, I've come to accept the fact that it's best for me to make little adjustments in my life like getting up at 9am to assess my discomfort level, which gives me 3 hours to act accordingly before I have to be at school (if I feel fine, I get to hang out, if I feel crappy, I get to take meds and/or get ready at my own pace taking breaks to sit). Overall I feel so much happier because even when I have pain days, I feel like it's okay because at least I know what it is and I know how to manage it, which is so much better than where I was. By the way, you think my therapist is helping? ;P haha. She is so great, I love her. I'm especially excited because she actually mentored one of my professors and is on the admissions board AND so is that professor... and the best part..... they both LOOOVE me! With any luck, and maybe a little sucking up, I'll make it to grad school after all? I really hope you all are doing well. I've stayed in touch with Nicolle, but I wish I was better at talking to the rest of you! For those of you on my facebook, don't hesitate to say hi Well wishes to you all!
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Post by JC on Apr 22, 2012 7:51:28 GMT -5
Thank you so much for coming in and giving an update! I feel like part of feeling good is getting control over the situation and it sounds like you have a really good handle on things! I'm facing the same situation you are in applying to grad school (med school) and having to explain away why I didn't do so hot previously It really sucks when you know you are a good student but your grades don't reflect that. I have come to believe though that grad schools have come to appreciate those of us who have a little life experience to carry with us. Maybe it'll work out in your favor in the end! I've really missed your big smile!! Come say hi more often!
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Post by semicolon on Apr 22, 2012 8:55:22 GMT -5
It sounds like you're doing really well, and you sound so positive! That's awesome! I'm glad you feel more in control of your life and your body, it makes such a difference.
I used to do grad admissions and a little life experience does go a long way. Do whatever you can to find an actually human being in charge of your paperwork, or a faculty member, so someone really remembers your name and you know they got everything (so many students never did this and really weren't considered because of a missing letter of rec or transcript, but might have been great candidates). Trust me, the squeaky wheel bit does work!
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Post by 1234 on Apr 22, 2012 13:38:21 GMT -5
So great to hear from you Jess. And congrats on the GPA. That is awesome, and a testament to what a strong woman you are. So nice to hear.
On the ongoing inflammation--have you considered trying teh endo diet yet? It's not the best thing to start during your senior year and final exams, but maybe something to think about as you're transitioning to the next step.
So proud of you Jess. You're awesome.
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Post by hellsbells on Apr 22, 2012 13:40:34 GMT -5
Love you beautiful girl!
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Post by Karen on Apr 22, 2012 13:42:22 GMT -5
So good to hear you're doing well and coping!
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Post by painttheseconds on Apr 24, 2012 0:47:28 GMT -5
Hi lady. Funny I came on here to check in too. I'm so glad you are doing well and that you feel more in control of what's going on with your body. It's been wonderful keeping in touch with you and I'm proud of how well you are doing in school. If I have any regrets it's that I pretty much messed up my college career so I am happy you are doing so well. Lots of love to you.
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Post by jessabug on May 6, 2012 19:43:33 GMT -5
Thanks girls! Popping in today to ask a question. To mods: I tried using the search engine for this, but I think I'm handicapped when it comes to that thing.. if there's a thread on this I'd love it if you could point me in the right direction. Anyway, for the past several months I've noticed something interesting. A while back I noticed that like many of you, I feel nauseous from time to time. I've heard that this can be associated with endo, but then I've also heard it completely debunked (even Dr. Redwine thinks it's a myth). Lately I started paying closer attention, and realized that for me this nausea comes with my period! ONLY at that time of the month will it come around. I'm not nauseous EVERY day of my period, but a couple of days before I start I'll have one bout of pretty heavy nausea, and also usually sometime towards the end. Throughout the rest of my period it's pretty mild. So what I'm wondering is, does anyone have any information on how or why this happens? I'm not miserable so don't worry about finding me a solution -- I'm much more interested in just understanding it. I've found that what gives me the most peace of mind with all of this endo/adeno (I've got no idea what to address now haha so I'll just go with both since there's no way to know) junk is just knowing what's going on. Like for example, yes, my periods feel like hell, and yes, sometimes I feel like I'm being stabbed in the vagina -- but I don't let it get to me now that I know WHY it happens! Sooo any insight into the world of nausea linked to this disease of ours would be greatly helpful to me. Thanks!!
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Post by loveshoes on May 6, 2012 19:50:06 GMT -5
My best GUESS is that the hormones are increasing and causing the nausea but it's just a guess. Glad to hear you are feeling so good otherwise!
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Post by Karen on May 6, 2012 22:38:35 GMT -5
Hormones are actually dropping prior to your period - progesterone, specifically. Progesterone levels drop off a few days before your period and that's what triggers the bleed. I have no idea if that can cause nausea, but it might be something worth looking into. If I recall, you're on BC, correct? When you stop taking it, does your period come right away, or are there a few days in between? (Mine always started 5 days later when I was on BC.) Perhaps that has something to do with it?
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Post by semicolon on May 7, 2012 5:46:48 GMT -5
One member who just checked in, I think it was Uncomfortable, has a history of nausea and was thinking it was estrogen related if I remember her thread correctly. It could be from the shift in hormones itself, your body notices the difference and then gets used to it. Not sure, good luck figuring it out since that's pretty interesting.
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