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Post by litayoliechi on Jun 13, 2006 8:53:06 GMT -5
Hey all
My name is Lita and I am 18 years old. I have had endo for about 4 years and was told so about 2 and half years ago. I am not sure what exactly to say but yea I am here. Hi. I have a lot of questions and just started researching. So yea..umm....anything else I should add?
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lilyloves
New Member
sunshiney mind
Posts: 28
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Post by lilyloves on Jun 13, 2006 9:46:10 GMT -5
Hiya, hope you're coping ok with this. Terrible that you had it so young but I suppose it's better that they've caught it now. Are you having any treatment for it? Take care xXx
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Post by litayoliechi on Jun 13, 2006 11:17:52 GMT -5
As of right now I am on the pill and I have Ponstel for the pain. Thats it. I haven't had surgary or anything yet. And luckly as of lately it seems to not be actting up much. I am just waiting for it to come back cause it will. Most likely this fall when I leave for college.
I am thinking about slowly start a diet but my mom is not very supportive of the idea cause I don't have it bad right now and she doesn't think I need it. *shrugs* So the diet is still in the air.
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lilyloves
New Member
sunshiney mind
Posts: 28
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Post by lilyloves on Jun 13, 2006 11:25:59 GMT -5
As much as your mum will know a bit more, she doesn't know everything, I say this cos my mum had endo and has been really unhelpful through this. The diet is a good idea, as I feel better in myself since a week ago when I made a decision just to modify my diet, probably cos itd just so much healthier. Prevention is better than cure! As time goes on you may find that you are sensitive to more and more foods thats why I'm eating more within the diet guidelines now, and I'm sure I will notice the positive effects on my endo soon xXx
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Post by ouchy on Jun 13, 2006 21:00:04 GMT -5
Welcome to the forum! You said you have not had surgery, so I am wondering what type of diagnosis you had. Did you get diagnosed from symptoms/case history? Is the pill helping with the pain? If the pill is helping you with the pain, then it is most likely endo... However, a couple different things can have the same symptoms as endo, such as uterine fibroids to name one. Did they at least do an ultrasound to rule out fibroids?
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Post by litayoliechi on Jun 15, 2006 6:56:53 GMT -5
My doctor used my symptoms and we did an ultra sound. That was fun. My mom's boyfriend kept making fun of me errrr and we had to bring my borhter along. The pill is helping with the pain and making me more regulated. As of right now I am actually not using a lot of the pain killers, so the pill has helped a lot.
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Post by ouchy on Jun 15, 2006 10:20:48 GMT -5
-------------------------------------------------------------------------------- Oh wow. They usually do a vaginal ultrasound (to check for uterine fibroids, which can mimic endo)...sounds like you got off easy! Glad the pill is helping:)
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Post by litayoliechi on Jun 15, 2006 17:31:45 GMT -5
Is that where I have to drink so much and go the bathroom like 6 hours before and it has gel that tickles? I had that done. Tthey just found some fluid not cysts(sp?).
And what is this uterine fibroibs?
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Post by erzulie on Jun 15, 2006 19:29:23 GMT -5
Uterine fibriods are non-cancerous tumors that grow in the uterus. I think they normally only occur in middle-aged women, although they can occur in younger women as well. I must say they were never considered in my case, and I'm glad because I would never have consented to a trans-vaginal ultrasound. The symptoms of uterine fibroids are very similar to endometriosis, but it my case they decided to just go ahead with the laparoscopy. They never even mentioned fibroids to me, and I don't think this was oversight on their part. It's just that uterine fibroids are very uncommon at my age (I was 24 when I had the laparoscopy), and with my family history it was almost certainly endometriosis since my sister had it as well. An ultrasound would have cost more money I didn't have and would have wasted time and, from the sounds of things, caused me a good deal of pain all for nothing. I think in some cases it makes sense to skip the ulstrasound and just do the laparoscopy.
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lilyloves
New Member
sunshiney mind
Posts: 28
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Post by lilyloves on Jun 16, 2006 9:24:03 GMT -5
I had a normal ultrasound at 14 that found nothing, but they decided not to look into it further which is terrible as I have a family history of endo and cancer. Thankfully last year they mistook my old ultrasound for a recent one, and decided to do some investigative surgery instead. Obviously it saved a lot of time and at least I know whats so wrong. Good luck with contunuing without too much pain! xXx
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Post by ouchy on Jun 16, 2006 9:34:46 GMT -5
I think it is a good hunch in most cases that endo is the problem, especially with a good case history. Out here, however, the standard procedure is the ultrasound to be followed by a lap. It just makes for better diagnostics. In the rare event that they do find something, it can all be knocked out in one shot in addition to the endo. The ultrasound only took like 5 min. I feel like it was a good thing for me. I would have been mad if I would have needed to go back under for something they could have fixed at the same time. I dont' know. Just my thoughts on it.
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meka
Full Member
Posts: 164
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Post by meka on Jun 18, 2006 23:07:16 GMT -5
I had a transvaginal ultrasound, too. I'm glad I did (even though it was embarassing; and the full bladder mixed with already-abdominal pain was excrutiatingly painful). It helped me get an idea of what was going on in my body. Before the ultrasound, the doctor's were working off of pelvic exams and my reports of abdominal pain. So they could only speculate. Now we're fairly certain it's endo, and from here the docs can decide what kind of surgical procedure to do.
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Post by litayoliechi on Jun 21, 2006 14:37:17 GMT -5
Is surgcey helpful really? I heard that normally after a lap you have to get it done again within 3 years. Thats why I trying to stay away from it.
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Post by meldart on Jun 21, 2006 15:42:32 GMT -5
Hiya & welcome,
I'm 20 and Ive had 2 laps in the past 3 years. After both they pain has come back the 1st one was within a year and much to my dismay within 2 weeks.
But thats not to say that surgery is not helpful, I have found from talking to people that it depends on the individual how successful surgery is.
I know thats not terribly helpful but I thought I would pass on my experiences!
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Post by erzulie on Jun 21, 2006 16:37:51 GMT -5
It depends on the person, and it depends on what kind of surgery you have. Most people have the endometriosis lasered away, and their symptoms are normally back in about 4 months. If you go to a specialist and get it excised (which to my knowledge no one on this board has done, though I have known people on other boards who have had it) then your symptoms should stay gone for years, and may possibly not even come back. It's definitely not a good idea to have surgery done often, but if you've never had it before it would be a good idea to have a laparoscopy to find out for sure what's going on in there (and to remove as much endometriosis as possible, as it might help). The only way to really be diagnosed is to have that done. Otherwise you may be treating endometriosis when you really have something else. Also the symptoms of endometriosis are similar to the symptoms of ovarian cancer, so that's another good reason to find out for certain what's going on in there.
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