Post by michelle on Sept 15, 2006 7:34:06 GMT -5
went in with classic endo symtpoms...came out hearing this??
i totally am not in agreement with the diagnosis. PCOS? (polycystic ovarian syndrome). it's tiny cysts on the ovaries, that make it harder to get pregnant, HOWEVER, i have no physical symptoms of it whatsoever, and totally think this dr. is off base on this one. any chance it could be wrong?
first off....iam not even close to overweight, iam underweight, though i know not all sufferers need to be, there are some skinny people with it, i don't have diabetes or a history of it, no family history of the disease, no excess facial hair, acne problems, i don't miss periods ever, was just late 1 time, but it came, and one big thing....poeple with pcos, as i discovered after my appt. or i would have said something while i was there, as i did lay it ALL on the line.... THEY DON'T OVULATE! if they do, it certainly isn't every month like i do, so i read. that is why they have trouble getting pregnant. i check every single month, and i DO ovulate every month, without any help at all. what kind of diagnosis is this? i had a baby 13 months ago, and all was fine then, no cysts, or blood work troubles in the least, and when i had my iui, i didn't need a trigger shot, i ovulated on my own, confirmed by my RE...what is up here? my friend says pcos doesn't just pop up, it's there from the start, and my dr. made it out like it could, and did...what?
then he tells me he sees no signs of endo in my sono, meanwhile it is EXTREMELY RARE to see any endo on a scan, the only test they can do to find out, is a LAP test, which is surgery. i showed him my long line of family history of endo, showed him all of my symptoms, as iam in between periods in awful pain, which never used to happen, got a zillion other symptoms, that are totally all endo related, and he says PCOS? he looked at my u/s from when i was pregnant and said the cysts were not there at the time. they are tiny and do not get operated on, but i do not believe that pcos is what they are at all! he said it will not get worse, and not to worry, it's nothing bad, it just may make it alittle harder to get pregnant, but what about all my symtpoms? they don't fit the bill of PCOS at all!
dh will believe anything the dr. says, iam saying NO WAY. iam definately finding another dr. for a second opinion, i do not want surgery, but i have a history, and the symptoms, and i ovulate, and have monthly periods, so how could he say pcos over endo..even possibly endo. he said yeah we could open you up, but i know you wouldn't want that for nothing.
he told me about a test i can get that will tell me my risk factor for cancer in the coming years, which is good, cause of the long line of ovarian cancer in my family, so that is what i would like to have, but since they did a vaginal u/s before my seeing the dr. i didn't even get a pap, which i wanted. you can't see precancerous cells on u/s, or there would be no pap test. he says you can come in november for that or even later if i want. he isn't looking to see me again anytime soon. why not? he says i have a mild case. are there varying degrees, and how can i be symptomless, and come into this all of the sudden? sorry to be rambling iam confused, and frustrated.
anyway, he knows i did not want to be on birth control, and still he sent me home with it. he assures me this will help my symptoms, and will lessen them, and maybe even stop my periods, and ovulation altogther (which doesn't sound good or safe to me). he knew i want to get pregnant soon, but still pushed them on me. i said i don't wanna mess with my hormones, and he said it's a new kind, a very low dose, and totally safe. if i don't like it i can stop at any time. dh tells me to take them, but i don't want to *cry*
it's called loestrin24fe. i gotto research it, but i got my dad working on that as well. i honestly don't have a clue how he could brush me off the endo thing, or other possibilities, when i had so much evidence of it. he insisted he would have seen something in the blood or u/s, but every person i talked to with endo, said it is not seen on u/s, so what am i to think? honestly i believe the hundreds of women on these websites telling me lap is the only way to see it. he said my blood levels were a bit off last time, that would correlate with the u/s findings, then why did he tell me 2 months ago when i had blood tests done, they all came out perfect, and totally normal?? what the hell??
i love that he is not an alarmist, and like i knew he would he said 'hey you look just fine to me' (i hate that, iam just good at hiding pain in public, and i was in pain at the time, and said it), but i disagree with his findings, i think all of my talking, and stating my case, was almost a waste, and i did say 'what if i want to get pregnant, now i'll have a harder time, if i have pcos and didn't have it before, right?', and he said you'll likely go through what you did before, which was the clomid and insemination, (likely if i did have pcos, which i don't believe i can have it, it might be worse, and need ivf, cause i didn't have this...whatever it is, before), but without dh on board, that may never happen, cause he took awhile to swallow his pride for our baby concieved unnaturally, i doubt he'd do it again ANYTIME soon, maybe never. i feel like screaming so loud you have no idea! he wants to get me pregnant the natural way, what hope is there for me now?
they didn't even tell me the results of my UTI test today, and my bladder is killing me. my u/s exam actually hurt for once in my life, and that is another endo sign, not pcos sign. iam 5'6'' tall and 110lbs. i don't have excess hair, or irregular periods, acne, or thyroid problems...and i ovulate regularly, so what is the deal? was he smokin a pipe or somethin, cause i don't see how it's possible. it's the only condition noone in my family has ever had, reproductively. no history of diabetes even, or obesity, not even close. plus, how could it pop up so fast, and why doesn't it need treatment, and if like he told me it's not causing my pain....then WTF is?? iam soooooo depressed!
what do you think? i had to post about this, and see if there is something iam missing here, and he is right, and iam just not getting it, cause from what iam reading, it just does not add up. i really do NOT want to take these BC pills. dh is almost making me cry, iam trying to get it through his head that i got something else, something more...iam at the point where i'll have most any test just to prove my case, and get this pain away w/o BC. never been on it, and now they are saying it's the only way to kill the pain. i wish i could get pregnant right now, and not have periods for 9 months, but dh is not going to go back to the RE, his pride is too high, and how can i do it alone?
i feel hopeless about this all around now. i have been taking evening primrose oil, bought some pre-seed, really gearing up for this month, and now i feel totally hopeless:( i'll likely never get pregnant on my own again, and likely never be pregnant again, because dh may never go through all of that stuff, he's super shy, and a tad stubborn. he gets real embarrassed though i don't understand why, i try to empathize, but this is our future here??, and why now, is the thought of no more children, bothering me more then ever? because my hope fell through the roof when he mentioned that term i suppose. i never expected this, and i cannot sleep, i spent my b-day worrying about the appt., and spent yesterday pining about it. i WANT to have the option. what is my body doing to me..this just it cannot be right!
my lining wasn't thick, it was thin and looked good, and so did my uterus. i know i ovulate cause i check every month with LH strips. iam so confused right now. i was actually hoping a thick lining caused the pain, and needed a d&c to end this, but nope. that i could understand and deal with.
oh and i have low blood pressure not high, and normal cholestrol not high, so these symptoms are just not adding up. what gives? do i sound like i got PCOS to any of you? i knew a few girls i ttc-ed with who had it, but i have no clue about the disease really at all, until yesterday, when i wanted to see the symptoms, and looked online.
i NEED a second opinion!
this appt. that has left me more worried and confused then ever! yeah for me. prayers please!
hugs, michelle
ps- would an RE be better able to diagnose me? i don't know who i should see. plus, i had my u/s fot this on my cd10, is that when it is supposed to be diagnosed with the ovary symptom, or CD does not matter? (to those who know about the diease, or have had it).
i don't think my baby will ever have a younger sibling now:(
ps- my diagnosis was always UNEXPLAINED infertility. i did have 2 children on my own 9 and 10 yrs ago.
i totally am not in agreement with the diagnosis. PCOS? (polycystic ovarian syndrome). it's tiny cysts on the ovaries, that make it harder to get pregnant, HOWEVER, i have no physical symptoms of it whatsoever, and totally think this dr. is off base on this one. any chance it could be wrong?
first off....iam not even close to overweight, iam underweight, though i know not all sufferers need to be, there are some skinny people with it, i don't have diabetes or a history of it, no family history of the disease, no excess facial hair, acne problems, i don't miss periods ever, was just late 1 time, but it came, and one big thing....poeple with pcos, as i discovered after my appt. or i would have said something while i was there, as i did lay it ALL on the line.... THEY DON'T OVULATE! if they do, it certainly isn't every month like i do, so i read. that is why they have trouble getting pregnant. i check every single month, and i DO ovulate every month, without any help at all. what kind of diagnosis is this? i had a baby 13 months ago, and all was fine then, no cysts, or blood work troubles in the least, and when i had my iui, i didn't need a trigger shot, i ovulated on my own, confirmed by my RE...what is up here? my friend says pcos doesn't just pop up, it's there from the start, and my dr. made it out like it could, and did...what?
then he tells me he sees no signs of endo in my sono, meanwhile it is EXTREMELY RARE to see any endo on a scan, the only test they can do to find out, is a LAP test, which is surgery. i showed him my long line of family history of endo, showed him all of my symptoms, as iam in between periods in awful pain, which never used to happen, got a zillion other symptoms, that are totally all endo related, and he says PCOS? he looked at my u/s from when i was pregnant and said the cysts were not there at the time. they are tiny and do not get operated on, but i do not believe that pcos is what they are at all! he said it will not get worse, and not to worry, it's nothing bad, it just may make it alittle harder to get pregnant, but what about all my symtpoms? they don't fit the bill of PCOS at all!
dh will believe anything the dr. says, iam saying NO WAY. iam definately finding another dr. for a second opinion, i do not want surgery, but i have a history, and the symptoms, and i ovulate, and have monthly periods, so how could he say pcos over endo..even possibly endo. he said yeah we could open you up, but i know you wouldn't want that for nothing.
he told me about a test i can get that will tell me my risk factor for cancer in the coming years, which is good, cause of the long line of ovarian cancer in my family, so that is what i would like to have, but since they did a vaginal u/s before my seeing the dr. i didn't even get a pap, which i wanted. you can't see precancerous cells on u/s, or there would be no pap test. he says you can come in november for that or even later if i want. he isn't looking to see me again anytime soon. why not? he says i have a mild case. are there varying degrees, and how can i be symptomless, and come into this all of the sudden? sorry to be rambling iam confused, and frustrated.
anyway, he knows i did not want to be on birth control, and still he sent me home with it. he assures me this will help my symptoms, and will lessen them, and maybe even stop my periods, and ovulation altogther (which doesn't sound good or safe to me). he knew i want to get pregnant soon, but still pushed them on me. i said i don't wanna mess with my hormones, and he said it's a new kind, a very low dose, and totally safe. if i don't like it i can stop at any time. dh tells me to take them, but i don't want to *cry*
it's called loestrin24fe. i gotto research it, but i got my dad working on that as well. i honestly don't have a clue how he could brush me off the endo thing, or other possibilities, when i had so much evidence of it. he insisted he would have seen something in the blood or u/s, but every person i talked to with endo, said it is not seen on u/s, so what am i to think? honestly i believe the hundreds of women on these websites telling me lap is the only way to see it. he said my blood levels were a bit off last time, that would correlate with the u/s findings, then why did he tell me 2 months ago when i had blood tests done, they all came out perfect, and totally normal?? what the hell??
i love that he is not an alarmist, and like i knew he would he said 'hey you look just fine to me' (i hate that, iam just good at hiding pain in public, and i was in pain at the time, and said it), but i disagree with his findings, i think all of my talking, and stating my case, was almost a waste, and i did say 'what if i want to get pregnant, now i'll have a harder time, if i have pcos and didn't have it before, right?', and he said you'll likely go through what you did before, which was the clomid and insemination, (likely if i did have pcos, which i don't believe i can have it, it might be worse, and need ivf, cause i didn't have this...whatever it is, before), but without dh on board, that may never happen, cause he took awhile to swallow his pride for our baby concieved unnaturally, i doubt he'd do it again ANYTIME soon, maybe never. i feel like screaming so loud you have no idea! he wants to get me pregnant the natural way, what hope is there for me now?
they didn't even tell me the results of my UTI test today, and my bladder is killing me. my u/s exam actually hurt for once in my life, and that is another endo sign, not pcos sign. iam 5'6'' tall and 110lbs. i don't have excess hair, or irregular periods, acne, or thyroid problems...and i ovulate regularly, so what is the deal? was he smokin a pipe or somethin, cause i don't see how it's possible. it's the only condition noone in my family has ever had, reproductively. no history of diabetes even, or obesity, not even close. plus, how could it pop up so fast, and why doesn't it need treatment, and if like he told me it's not causing my pain....then WTF is?? iam soooooo depressed!
what do you think? i had to post about this, and see if there is something iam missing here, and he is right, and iam just not getting it, cause from what iam reading, it just does not add up. i really do NOT want to take these BC pills. dh is almost making me cry, iam trying to get it through his head that i got something else, something more...iam at the point where i'll have most any test just to prove my case, and get this pain away w/o BC. never been on it, and now they are saying it's the only way to kill the pain. i wish i could get pregnant right now, and not have periods for 9 months, but dh is not going to go back to the RE, his pride is too high, and how can i do it alone?
i feel hopeless about this all around now. i have been taking evening primrose oil, bought some pre-seed, really gearing up for this month, and now i feel totally hopeless:( i'll likely never get pregnant on my own again, and likely never be pregnant again, because dh may never go through all of that stuff, he's super shy, and a tad stubborn. he gets real embarrassed though i don't understand why, i try to empathize, but this is our future here??, and why now, is the thought of no more children, bothering me more then ever? because my hope fell through the roof when he mentioned that term i suppose. i never expected this, and i cannot sleep, i spent my b-day worrying about the appt., and spent yesterday pining about it. i WANT to have the option. what is my body doing to me..this just it cannot be right!
my lining wasn't thick, it was thin and looked good, and so did my uterus. i know i ovulate cause i check every month with LH strips. iam so confused right now. i was actually hoping a thick lining caused the pain, and needed a d&c to end this, but nope. that i could understand and deal with.
oh and i have low blood pressure not high, and normal cholestrol not high, so these symptoms are just not adding up. what gives? do i sound like i got PCOS to any of you? i knew a few girls i ttc-ed with who had it, but i have no clue about the disease really at all, until yesterday, when i wanted to see the symptoms, and looked online.
i NEED a second opinion!
this appt. that has left me more worried and confused then ever! yeah for me. prayers please!
hugs, michelle
ps- would an RE be better able to diagnose me? i don't know who i should see. plus, i had my u/s fot this on my cd10, is that when it is supposed to be diagnosed with the ovary symptom, or CD does not matter? (to those who know about the diease, or have had it).
i don't think my baby will ever have a younger sibling now:(
ps- my diagnosis was always UNEXPLAINED infertility. i did have 2 children on my own 9 and 10 yrs ago.