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Post by Steph on Aug 20, 2006 23:23:32 GMT -5
Hi, I've been diagnosed with endo for about a year now and I didn't think much about it but now I need some advice. My endo was only in the first stages when we found it but it was hurting me so bad that I've been on BC continuously. I really didn't think much of its risks until my fiancee was researching it online. The doctor can only tell you so much but since he's never actually been there and done that I'd really love some stories or advice or at least tell me what to expect. I want to have kids soon and I'm just scared I won't be able to or that it's going to be painful.
Thanks Stephanie
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Post by candice on Aug 21, 2006 19:05:43 GMT -5
I hear ya. Thats one of my biggest worries too. I've had a nagging feeling since I was about 14 that fertility might be an issue for me. I've always had cycle problems and pain. I'm just now going through diagnosis. I'm 23, married almost a year. We are thinking about the kids thing too now and I'm worried. I have pain with sex so it's really difficult for us. I can give you some good news though. From what I've read, no one really knows how much a persons fertility is really affected. Apparently (and I'm only going on what I've read) everyone is different and many women have no trouble getting pregnant. Others have problems, but overcome them. Just because you have endo, doesn't necessarily mean you can't have kids.
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Post by stephanied on Aug 23, 2006 22:04:04 GMT -5
It's just that who knows that worries me. I think he read some article that giving birth can actually cure endo but i don't know his sources. I think at this point, because I'm on such a high dosage, I'm more worried about what effects my birth control is going to have on me.
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Post by macymoo on Oct 2, 2006 15:53:24 GMT -5
Hi, I am really worried too....Apparantly I have quite serious endo (well this is what my dr says but he is a bit of a drama "queen"!!! (very camp and over the top!!) My right fallopian tube is blocked due to an appendix op and my left ovary has the endo...3 cysts that are quite large. I also would like to know what the chance of pregnancy are..my Dr says no chance at all:( but I have heard so many other people having been told they won't be able to concieve naturally and they end up having children. If you have endo in its severist form can the eggs still be taken out of the ovaries or does it mean the eggs are destroyed or something?
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Post by ouchy on Oct 2, 2006 21:56:44 GMT -5
Macymoo, NO ONE can tell you your chances of having a pregnancy--unless you don't have a uterus, at which time the chance would obviously be 0%. The eggs wouldn't necessarily be destroyed, but the endo may be interfering w/ the egg traveling from the ovaries to the tubes (The endo can misalign the position of the ovaries and the tubes.). And I'm sure you know that while a lot of infertility cases result from endometriosis, most women w/ endo are fertile. Even if you have endo quite severely, they should be able to perform IVF on you, maybe performing a lap and burning the endo first then putting you on fertility drugs to inrease ovulation and then doing IVF. Good luck w/ everything!
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Post by vatechgrad on Oct 9, 2006 15:16:36 GMT -5
I was only diagnosed a year ago, but looking back I had the symptoms. When I gave birth to my son 3.5 years ago I realized my periods did feel like labor, I always thought I was just a wuss, but no I don't think your period should feel like labor every month. I never bled much but had severe pain. I spent 11 years on birthcontrol, didn't help much, went off the pill, had a fling with an old bf, broken condom later I was pregnant. There were so many statistics about long term bc pills reducing fertility, the endo that was always there. Hell, his father smokes way too much pot I wouldn't have thought his swimmers were potent :lol My point, statistically I should've had trouble getting pregnant, but here I was pregnant literally having sex one time that year. So when things are meant to be there is no stopping them. You can't worry in advance over things you can't change, because the stress alone could reduce your fertility.
Good luck and hugs!
Janet
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Post by denna on Oct 11, 2006 22:48:51 GMT -5
hi Janet,
your story is encouraging.there are hopes to get preganat even when with endo
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Post by needadvise on Oct 26, 2006 13:26:12 GMT -5
i agree...i had 2 children naturally and a 3rd via 1 round of iui and clomid, and i must have had endo the whole time, but just was not diagnosed, just thought my periods were bad. i worry about my fetility also since we are ttc again, but it doesn't always affect it, it can, but may not. iam still considered 'unexplained' infertility to my RE, and he wants to eigther do a lap or get me pregnant. iam waiting for the green flag from dh to get some intervention again. naturally so far nothing, but trying. good luck to you:)
hugs, michelle
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Post by denna on Oct 29, 2006 0:21:55 GMT -5
hi michelle,
just curious how is iui perform? you were also taking clomid at the same time? heard my gynae is giving the same to me once my period starts..
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Post by needadvise on Nov 18, 2006 11:54:55 GMT -5
yeah i had 1 month of clomid, which you take for 5 days i believe it was, in the beginning of the cycle, and then they take your husband's sperm, during O time, and use a cathertre tube to insert the sperm up by the uterus, so it has less distance to travel, and a better chance to survive, and it worked first round for us. iam now ttc again for 14 months, and nothing. my dr is confident, that treatment would work lickedy split again for us, but husband wants natural right now *sigh*, and iam wondering if it's even possible, as each month is very frustrating, and maybe ny spring he said he'd go for it. guess it's a man thing, hope i won't need it though. i never been on clomid by itself.
i feel my clock ticking, not from age, but from family history, and pain, etc, and just want to get pregnant soon. good luck to you my friend
hugs, michelle
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Post by needadvise on Nov 18, 2006 11:56:23 GMT -5
ps- to the others, my friend had awful periods when growing up, was on bc for many years, had cysts and all sorts of problems, and i was always healthy. they said she'd never have kids, and now gets pregnant after every time she stops the pill (grrr..), and me, i have the problems. (irony?). i remember feeling bad for her back then, but now i feel bad for me. dr's aren't Gods remember that!
hugs, michelle
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