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Post by pretty on Nov 1, 2010 3:11:14 GMT -5
I think it may help. It's hard to prove, but my instinct is that bad foods, toxic with pesticides and hormones, prevent our immune systems from being able to work on the endo. I feel better on the diet, more energy, less digestive problems, pain, bloating, constipation, and cramping. But if it helps with pain, it's worth it. I think it does more, but then that's me. I don't have any proof, it just makes sense to me.
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erna
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Post by erna on Oct 25, 2011 20:16:16 GMT -5
I have a question... Since my doctor suggested a hysterectomy I have been wondering what that will do to our sex life? I fear that it will dry me up like a prune as it did when I was on Lupron and had all the effects of menopause. I wonder if that's why I took the drug, to remind myself to never sign up for an early menopause with a hysterectomy. Just wondering if anyone would be willing to share their experiences in this area as I'm not ready to give up my happy sex life with my husband.
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Post by KSA on Oct 25, 2011 22:27:07 GMT -5
Are you having a full or partial? Sex is very different I have to be upfront about that but it maybe different for every girl. I have a few friends that have had hysters and they all say the same thing. I have to read your intro to see how and why you have come to this point but I would really think hard about it and get a ton of information honey. Good Luck!
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Post by omaklackey on Oct 25, 2011 22:56:01 GMT -5
yup, exactely what Keri said. DO LOTS OF RESEARCH. If someone is telling you this will "fix you" they are wrong. There are good things about having one, but you need to know that sex is definitely one of the things affected. Dryness and atrophy are so common that Hyster sisters sells several kinds of lubrication. Please check out their site as it has so much information and they have an endometriosis site. I have always had amazing sex and I have nights now with the hubby when I want to freaking throw something because I can't get "going".
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erna
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Post by erna on Oct 27, 2011 8:06:10 GMT -5
I don't want a hysterectomy and know enough to be sure it's not a cure for me. I have a ton of endo on other parts of my body and know well enough that since it's not contained to my uterus it's not the answer for me but the fear of having another cyst on my only ovary left and maybe losing it this time would mean at least a partcial with the loss of both ovaries right? When I was on Lupron I got a good picture of what my sex life would become and I'm not ready for that when I'm only 33 years old never mind that I was really hoping to have another baby.
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erna
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Post by erna on Oct 30, 2011 15:54:19 GMT -5
Does anyone regret getting a hysterectomy? How was the endo pain after? Are the drugs expensive to surpress the hot flashes? I'm sorry if these questions have been answered I just have not found them.
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Post by omaklackey on Oct 30, 2011 17:54:22 GMT -5
there are no drugs to suppress hot flashes, unless you mean taking hormones which means the endo is just growing away. Did you read this whole thread? All of these qustions and more are also answered on Hyster Sisters as well. I don't mind not bleeding all the time, but regret it... more each day, especially after this last surgery. I keep thinking I have several friends who were infertile and I should have just had babies for all of them, since fertility wasn't an issue for me and the best I ever felt was when I was pregnant. Stupid right?
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erna
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Post by erna on Oct 30, 2011 18:30:56 GMT -5
No, not stupid, never mind how hard the thought of giving up a baby would be. I'm sorry that you feel regret, I really would like to avoid a hysterectomy if at all possible doing what I can to manage my symptoms till I'm at least in my mind 40's to consider it.
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Post by JC on Oct 30, 2011 18:39:12 GMT -5
Aww Karla I wouldn't say it was stupid. You did what you thought was best for you. It's a tough decision and when you're in constant pain you're willing to do anything to get it to stop. I don't think you should regret it. Who knows how you'd still be if you had everything. Maybe worse? I'm so sorry you feel that way Some women do get relief from their symptoms from a hysterectomy, and unfortunately some don't. It's a really hard decision and weighing out the pros and cons might bring you to the right answer.
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Post by omaklackey on Oct 30, 2011 20:59:13 GMT -5
Nah, I don't feel stupid doing the hyster. I just want people to really, really think about it before they do it because its not as simple as they think it is. Docs like to say its no big deal but its HUGE. I do sometimes wonder if I should have used my uterus for helping friends but its stupid to think like that. I guess that's what I meant. Its gone, its done. I need to move on already
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Post by JC on Oct 31, 2011 6:10:27 GMT -5
OHh I see what you mean. I'm sorry and I hope you feel better!!! It has just been a non stop battle for you. Eventually we have to catch a break right?
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Post by KSA on Oct 31, 2011 8:59:01 GMT -5
I took a long time and many trips to different doctors to get opionions glad I did and suggest anyone thinking of a hyster to do the same. I do not regret mine much. I have my days tho and the older Jacob gets the more those days come out. One son and soon he will be grown. On a happy note I got one child and some woman do not get any. I am thankful for what I have and I know Karla it has been rough keep you head up tho you made the right choice.
We do not exactly have a lot of research on endo but it is more than they had 30 years ago. I have a patron come in that had a full hyster with a large cut because of endo and a bowel resection on top of that due to adhesions. She is a survivor not only to endo but cancer as well. When she shared her story with me I felt lucky for the time we live in we got the choice! She didn't it all hit her at once and even tho she went thru this she says you gotta look at the posostive we are alive.
Look at how far the disease has come we can ask one another what is right or how we feel about our bodies and choice. In her time it was not like that. I can honestly say hold on to hope anyone of us could be faced with to decide at anytime what to do with our disease. Keep as much of yourself as you can as long as you can until it is making you too sick that you loose yourself. Then the time is right to take whatever surgery or organ it is out to help you get the life back you deserve.
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Post by omaklackey on Oct 31, 2011 14:15:22 GMT -5
Love this post Keri, You said it beautifully! Love you!!
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mere
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Post by mere on Jan 26, 2012 22:04:12 GMT -5
Hey everyone! I am new to this board and was not able to use the introduction area for some reason??? Anyway, I was diagnosed with Endo 9 years ago (after 6 years of doctors visits). I had a lap surgery in 2006 and a hysto was recommended but I was not willing to do it then (I was only 28). I lost my health insurance after the surgery and have not been under a doctors care for years. Finally couldn't take it any more and went to a doc the week before xmas. Had a CT and I have tumors on my uterus and ovaries in addition to the endo so I was sent back to me specialist at UNC and am scheduled for a Hysterectomy (uterus, cervix, fallopian tubes and ovaries) plus an apendectomy in March. I've had years to come to terms with this, but would love some info on what to expect. My doc is going to try to do the surgery lap but thinks he will have to do it abdominally due to the amount of endo tissue around my bowels and bladder. What kind of recovery should I expect? How about the symptoms of menopause? With just a vaginal canal will my husband and I's sex life be affected?
Any info/advice/support would be much appreciated. Thanks Everyone!
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Post by bloomrae on Feb 10, 2012 15:44:05 GMT -5
I finally went back to the doctor today after avoiding it for a long time. Pain has been horrible the last several months since I started getting my period again after Lupron. I had a lap in Jan 2011, then 6 months of Lupron and the pain never stopped; it only got worse when the Lupron wore off.
My left ovary has been really bad. Bad enough that i was ready to tell them to remove it several months ago. Then the right side started hurting. I knew the next step would be for the doctor to suggest a hysterectomy and I agreed to it today. I'm 39 and don't plan on any more children. My periods are horrible and i'm done with it. She's going to try to keep one ovary, but after looking at the ultrasound today, the left one is stuck to my uterus and the right one has a cyst on it. Hopefully the cyst will go away and the right ovary can be saved.
I'm fully aware that this is not a cure, but i'm also tired of it all. I can't function at work some days, take ibuprofen quite often and at home I'm always using the heating pad. My worst pain is in the ovaries and the bad cramps, heavy bleeding and clotting during my period. I'm hoping that removing the uterus and at least one ovary the pain will be less or gone. I'm waiting until next week to schedule the surgery sometime in the next month.
The doctor actually spent an hour talking with me about my options and of course i can still change my mind, but I just want to be done with the almost constant pain.
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