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Lupron
Sept 28, 2007 23:32:28 GMT -5
Post by mzcharm on Sept 28, 2007 23:32:28 GMT -5
Are you a serious, there is a nasal spray for endo? Any side effects with that?
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Lupron
Sept 28, 2007 23:53:13 GMT -5
Post by ouchy on Sept 28, 2007 23:53:13 GMT -5
Side effects seem to be pretty much the same as Lupron. It's the same class of drug.
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Lupron
Sept 28, 2007 23:54:58 GMT -5
Post by ouchy on Sept 28, 2007 23:54:58 GMT -5
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Lupron
Oct 3, 2007 7:24:32 GMT -5
Post by tfaith on Oct 3, 2007 7:24:32 GMT -5
so today is the day i decide whether or not to take this lupron shot....i am almost afraid to go, just because my doctor is not personable at all, seems strictly business and i have a feeling his response won't be too good when/if i decide not to take it. when i started doing continuous b control the side effects became really bad....weight gain, hot flashes, menopause symtoms and mood swings, leaning towards getting angry or depressed. i was wondering, if i am that sensitive to the b control effects, do you think i would be more prone to have the bad side effects instead of good if i take the lupron? i was talking to my friend about it and she said that i dont have to take it, and that i should just tell him i would rather deal with the pain, and take the pain meds instead of the hormones....which that is how i feel in this situation, but then again i am always second guessing the decision to make in this situation....
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Lupron
Oct 3, 2007 9:01:40 GMT -5
Post by ouchy on Oct 3, 2007 9:01:40 GMT -5
Hi, tfaith. Well, you can look at it this way. The Lupron depletes your calcium and leads to osteoporosis, which is not reversible in many of the cases of people who take the Lupron. It causes a LOT of problems for many women who take the drug. All of the problems for a treatment that is only temporary. After you go through all of that, risk osteoporosis and other menopause symptoms, it all comes back when you quit the shot. The decision is yours, but if you are already having second thoughts about it, I'd go with your gut feeling.
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Lupron
Oct 3, 2007 9:21:26 GMT -5
Post by cherry on Oct 3, 2007 9:21:26 GMT -5
I agree with Ouchy. I'm only on a GnRH again because it was a necessary stopgap and because my doctor found that I had aggressive endo. For the side effects were and are pretty life altering. In my experience, the symptoms carry on after the injection is supposed to have worn off. I have different symptoms on this treatment (Gonapeptyl) compared to the Prostap that I had last year. They are both along the same lines as lupron. If you do decide to take the treatment, take very good supplements if only to keep your sanity!
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Lupron
Oct 3, 2007 10:05:50 GMT -5
Post by tfaith on Oct 3, 2007 10:05:50 GMT -5
thanks for the uplifting....anyone i have talked to about it thinks it would be a bad idea for me to even try it. i don't know why i am so intimidated by my doctor, but i am. he is the only one that has actually went forward this year and did the surgery and diagnosed me, so i am hesitant to switch doctors...but i wonder if i should. when a doctor tells you there is nothing else they can do, that is never good to hear. i guess i will say my prayers and hope that the outcome is good today and not depressing!! i will update tomorrow!!
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Lupron
Oct 3, 2007 10:24:30 GMT -5
Post by ouchy on Oct 3, 2007 10:24:30 GMT -5
Remember also that one of the "treatments" for endo is "watch-and-wait." I've been doing that for years now.
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Lupron
Oct 4, 2007 9:12:06 GMT -5
Post by tfaith on Oct 4, 2007 9:12:06 GMT -5
i typed up a list of questions and just gave them to him to read while he was in there….the only thing he really said was that if I didn’t want to do the hormones that I should really try the clinical study they are doing next month on endo….and if I decide not to do it to just keep taking the pill and come back in 4 months….which doesn’t really help much. I asked him if there was anything I could/should do with my diet and exercise to help and he said no. I asked about herb supplements and he told me that there are ‘natural belivers’ but that mostly all of that is mental due to the placebo effect….he says if you tell someone that this pill will make the pain stop, it will stop for a while, but then it comes back….so he said that is why they need to do studies to see what really helps. He said absolutely nothing about why he didn’t take any of the endo out during surgery, except that it was a diagnostic surgery which is just for diagnosing, not treating. !?!?!?! I don’t know where that leaves me now….there is some kind of seminar on oct 12 (Sunday) that is about natural health and healing and pain management….it is from natural medicine doctors I think , and they give you samples to try also so I am going to go to that. I guess it is just trial and error from here on out…
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Lupron
Oct 4, 2007 12:08:20 GMT -5
Post by minnie on Oct 4, 2007 12:08:20 GMT -5
Geeeeeeeeeeeeeze, don't some doctors just make you wanna scream! Grrrrrrrrrrrrrrr, that little paragraph is one for my thread on Idiot doctors in the Rant and Rave! Don't be forced into doing anything you don't want to do and if you don't get the support you feel you need, do move. Nothing and no-one is more inportant than you and remember, he doesn't know how you fel, HE is a man! If he had endo, and was faced with some of these treatment options, he might be interested in looking at diet, exercise and even some of the "natural believers" stuff! Sorry to be so angry but it makes my blood boil!
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Lupron
Oct 4, 2007 13:25:40 GMT -5
Post by Sarah C on Oct 4, 2007 13:25:40 GMT -5
If i could turn back the clock i would NOT go on Lupron. What a nightmare that i'm STILL dealing with. I was put on lupron for 6 months about 4 years ago. I had horrible hot flashes (in the middle of a NY summer!), unbelievable mood swings, hair growth on my face, my breasts deflated, insomnia, zero libido...sure i had no pain, but it almost wasn't worth it.
Here i am,4 years later and I am still suffering from side effects. My joints have never been the same (very stiff and painful), my libido has increased a little, but is still barely existent (I haven't had sex in 4 years), i STILL have hot flashes, and insomnia. ANd now my metabolism is messed up. I haven't been able to keep my weight down since i was on it. Truthfully, i don't see waht good it did me. My periods are just as painful as ever, and I feel that i have never been 'right' since being on Lupron.
Of course everyone has different experiences and you have to make your own decisions about what is right for you. But, if i had my way, the drug would be banned and never given to anyone
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Lupron
Oct 4, 2007 17:02:09 GMT -5
Post by JackMcFarland on Oct 4, 2007 17:02:09 GMT -5
I recently had a dr try to push lupron on me. I always say no. Even though I have very aggressive endo, for me the cons to lupron far outweigh the pros. Every girl I have ever talked has had a negetive experience on lupron, and while some doc says it's just hear-say and some sideeffects are "psychological", its just not worth the risk.
I'm doing what ouchys done...the watch and wait treatment. There isn't anything else I can do right now...
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Lupron
Oct 5, 2007 7:20:34 GMT -5
Post by tfaith on Oct 5, 2007 7:20:34 GMT -5
yeah i am angry. medical doctors and health insurance companies as a whole are making me want to up and move to a different country all together. i am starting to wonder who i should listen to at all, that is considered a "professional". i was talking with some friends last night about the whole issue...how i didn't really want to use pain meds, but at the same time when the pain is bad it seems like my only option... they brought up the point on how things like vicodin/darvocet have been used since the world wars....and they have always worked with no crazy side effects (the chance of addiction as with all narcotics) and then you get the 'new' pain meds that doctors want people to use (what if they get paid more to perscribe those over old meds!?) and they end up giving people heart attacks! i got this off a website regarding health care in general.... [Among the 12 medications, which are made by a wide range of manufacturers, are the pain reliever celecoxib (Celebrex), a close cousin of Vioxx,are linked with heart attack and stroke] i have been perscribed celebrex this year and paid $60 and took it once. !?!? do any of you wonder what info is true and what is just lies from greedy companies? i was also doing research on herbs, and the FDA was putting warnings on a bunch of stuff (i have taken a few and have no crazy side effects) trying to get it pulled off the market. what if one of those really does have a natural cure effect and the FDA and drug companies just don't want people to use them...because in the long run that would mean money LOST for the FDA...Am I going crazy here or what? I just find it appalling that my medical doctor tells me that diet and exercise WON"T help my situation....
**jumps off soapbox**
thanks for listening!
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Lupron
Oct 5, 2007 9:11:24 GMT -5
Post by JackMcFarland on Oct 5, 2007 9:11:24 GMT -5
diet and exercise help. My dr is anti-lupron (the dr who was trying to push the lupron was his colleage), he's also very much into charting, natural cures, and is always yelling at me to eat better and get my butt in the gym. Recetnly I asked to come off of the norethindrone I'm on (it's a progest. only pill - what ouchy lovingly calls POPs. haha) - my dr told me it was within my best interest to stay on them because it seems, as we never *really* know, that my endo is already back - apparently everything is blown up and inflammed too, sweet.
I started to diet, no carbs...trying to limit my ice cream in take...though that is hard cause I'm an addict. Lol. I go to the gym every day. It's hard for me to do sit ups, not sure for anyone else, but it seems to aggrivate my endo. Either way, if the exercise doesn't help the Endo it'll make you feel better on a whole!
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Lupron
Oct 6, 2007 0:58:04 GMT -5
Post by kb on Oct 6, 2007 0:58:04 GMT -5
My docs dont believe in natural therapies at all, defo dont think diet or exercise will make a diff.
But what does it matter what they think, its ultimately my body, and i know what works for it. Diet and exercise have made a dramatic difference for me, i wouldnt dream of going off my diet now, its worked too well for me.
If nothing else its going to at least give your body a fighting chance if you keep it at optimum health, which is exactly what diet and exercise do. So even if your doc isnt promoting it (which is crazy anyway, a doc should be encouraging a good diet and exercise with all patients), id still include it in your treatment regime, regardless of what else your doing, it defo wont do any harm, and will likely at least make u feel better, even if it doesnt cure.
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