Post by gladys on Feb 22, 2006 7:46:23 GMT -5
Hiya.
I'm having a really hard time of it at the moment and feeling really sorry for myself!!!! If it's okay I'm going to pour it all out and hopefully feel loads better.
I had a laparoscopy about 6 months ago.
I have always had very painful heavy periods, ever since I started them but the pain was getting worse over the last two years. I finally got an appointment to have scans at the hospital after four visits to the doctors, when she said the pain was glands and I had to argue that I didn't think glands would nearly make you pass out with pain half way between each period and when you were bleeding!!!!
Once the doctor saw the scan results she had to eat her words, I had a 4cm cyst on one ovary and a 3cm cyst on the other ovary.
It took months to get everyone to agree on me needing an op, after loads of trips to the hospital and I had to wait months for an appointment for an operation because there was a shortage of beds and it kept getting canceled.
I went to hospital on a Friday for a laparoscopy, which I was told would take 45mins max and if I was not fully recovered to go home that night I would be home by Saturday lunch time.
It actually took over 3 hours for them to remove all the endometriosis and the two cysts (chocolate cyst) were now 9cm and 6cm. As you can imagine I didn't recover to well from that op and was in a lot of pain as they had to make two more laparoscopy cuts to get the right angle as the endometriosis was so bad and everywhere!!!
I finally got out of the hospital on Tuesday after high temperatures and feeling like poo!!!!
The whole thing had left me feeling strange.
I have an underactive thyroid and found it really hard after the op. I was tired, tearful and weak to name just a few things. I went back to see the gyno consultant who performed the op who said all these feeling were to be expected because of the op and wanted me to go on a 6 month course of Zoladex injections. I said I wanted time to think about it. In fact after reading all the known side effects I didn't know what to do. Well I did, I didn't want to go on it but as the endometriosis was so bad the consultant said It was more likely to come back if I did nothing.
I went to my doctor to talk it over and to find out if it would have any effects on my thyroid problem and because I was a little tearful he chose to not give me straight forward answers but to tell me he thought I was depressed!?!? Yer thanks for that.
I tried to explain that it was only this problem that made me cry but he just said to think about it and gave me a leaflet on depression.
So (gosh I am going on abit, sorry) I went to see a lady who runs a well women clinic and she knows everything there is to know about the endo system and she helped me alot, She couldn't tell me what to do about the Zoladex injections, that was my choice to make. But she said everything I was going through and feeling was down to the endometriosis, the two chocolate cysts and the effect of the op on my thyroid problem. She had also seen depression and helped clients and family members deal with it and I was not suffering with it. So to the doctor who was no help at all.
Anyway (you would never believe this is a cut down version of the story), I decided to go for the Zoladex because I didn't want another op anytime soon and the state I was in I couldn't see any other options.
Which brings me to why I'm feeling very low.
:-It's made me put on weight, not much but enough to make me feel yuck. Since the underactive thyroid I've gone from eating what I like to having to be careful and this has made that worse.
:-The hot flushes are horrid, I'm getting 30+ a day.
:-Night sweats are even worse than the hot flushes and they should be called anytime of day sweats because you get them when you eat or drink anything warm, when you go into a warm environment from a cold one, when you are rushing around...the list goes on.
:-Memory lost, started on only small things now I have to write "post its" to myself for EVERYTHING. I actually forgot about this one and had to sign back in to add it!!! No really I did.
:-Oh and the worse one if you have an underactive thyroid INSOMNIA. I can be as tired as a tired thing but will stay awake for hours, which is why I feel so tired and low and washed out and tearful.
:-And slow reaction to stuff and slow speech. Guess this is to do with the being tired thing and lack of sleep but I haven't got quick reactions to stuff at the moment and when I've not slept to well I don't drive, even grating cheese and chopping veg is a challenge(badly sliced my finger). And I'm talking alot slower because if I try to talk my normal fast speed all the words get mixed up.
So there you go! I just needed to get it all out and share what I've been through, although I'm not very good at putting down just how bad its been. My hubby has been wonderful and supportive but he will never really know the pain of endometriosis and how this whole experience makes you feel.
Well, Thanks for listening (reading) and well done if you got this far without giving up or getting bored.
Any replys will be greatly received.
Cheers
Gladys
I'm having a really hard time of it at the moment and feeling really sorry for myself!!!! If it's okay I'm going to pour it all out and hopefully feel loads better.
I had a laparoscopy about 6 months ago.
I have always had very painful heavy periods, ever since I started them but the pain was getting worse over the last two years. I finally got an appointment to have scans at the hospital after four visits to the doctors, when she said the pain was glands and I had to argue that I didn't think glands would nearly make you pass out with pain half way between each period and when you were bleeding!!!!
Once the doctor saw the scan results she had to eat her words, I had a 4cm cyst on one ovary and a 3cm cyst on the other ovary.
It took months to get everyone to agree on me needing an op, after loads of trips to the hospital and I had to wait months for an appointment for an operation because there was a shortage of beds and it kept getting canceled.
I went to hospital on a Friday for a laparoscopy, which I was told would take 45mins max and if I was not fully recovered to go home that night I would be home by Saturday lunch time.
It actually took over 3 hours for them to remove all the endometriosis and the two cysts (chocolate cyst) were now 9cm and 6cm. As you can imagine I didn't recover to well from that op and was in a lot of pain as they had to make two more laparoscopy cuts to get the right angle as the endometriosis was so bad and everywhere!!!
I finally got out of the hospital on Tuesday after high temperatures and feeling like poo!!!!
The whole thing had left me feeling strange.
I have an underactive thyroid and found it really hard after the op. I was tired, tearful and weak to name just a few things. I went back to see the gyno consultant who performed the op who said all these feeling were to be expected because of the op and wanted me to go on a 6 month course of Zoladex injections. I said I wanted time to think about it. In fact after reading all the known side effects I didn't know what to do. Well I did, I didn't want to go on it but as the endometriosis was so bad the consultant said It was more likely to come back if I did nothing.
I went to my doctor to talk it over and to find out if it would have any effects on my thyroid problem and because I was a little tearful he chose to not give me straight forward answers but to tell me he thought I was depressed!?!? Yer thanks for that.
I tried to explain that it was only this problem that made me cry but he just said to think about it and gave me a leaflet on depression.
So (gosh I am going on abit, sorry) I went to see a lady who runs a well women clinic and she knows everything there is to know about the endo system and she helped me alot, She couldn't tell me what to do about the Zoladex injections, that was my choice to make. But she said everything I was going through and feeling was down to the endometriosis, the two chocolate cysts and the effect of the op on my thyroid problem. She had also seen depression and helped clients and family members deal with it and I was not suffering with it. So to the doctor who was no help at all.
Anyway (you would never believe this is a cut down version of the story), I decided to go for the Zoladex because I didn't want another op anytime soon and the state I was in I couldn't see any other options.
Which brings me to why I'm feeling very low.
:-It's made me put on weight, not much but enough to make me feel yuck. Since the underactive thyroid I've gone from eating what I like to having to be careful and this has made that worse.
:-The hot flushes are horrid, I'm getting 30+ a day.
:-Night sweats are even worse than the hot flushes and they should be called anytime of day sweats because you get them when you eat or drink anything warm, when you go into a warm environment from a cold one, when you are rushing around...the list goes on.
:-Memory lost, started on only small things now I have to write "post its" to myself for EVERYTHING. I actually forgot about this one and had to sign back in to add it!!! No really I did.
:-Oh and the worse one if you have an underactive thyroid INSOMNIA. I can be as tired as a tired thing but will stay awake for hours, which is why I feel so tired and low and washed out and tearful.
:-And slow reaction to stuff and slow speech. Guess this is to do with the being tired thing and lack of sleep but I haven't got quick reactions to stuff at the moment and when I've not slept to well I don't drive, even grating cheese and chopping veg is a challenge(badly sliced my finger). And I'm talking alot slower because if I try to talk my normal fast speed all the words get mixed up.
So there you go! I just needed to get it all out and share what I've been through, although I'm not very good at putting down just how bad its been. My hubby has been wonderful and supportive but he will never really know the pain of endometriosis and how this whole experience makes you feel.
Well, Thanks for listening (reading) and well done if you got this far without giving up or getting bored.
Any replys will be greatly received.
Cheers
Gladys