|
Post by michelleneedadvise on Nov 15, 2006 11:55:19 GMT -5
sorry for the delay i have been in pain DAILY, and down. i finished my period, but still have the pain, and daily migranes to boot. my UTI test came back negative, which means something is definately up with my bladder, so i need to get an invasive test to check for the internal cystitis, and then more bad news yesterday, not only did i have some false positive pregnancy tests, and all of the symptoms of pregnancy, i come to find out i never even OVULATED this past month! i took all my ovulation kits tests and used a monitor, and they said i did, but the blood said no, and blood doesn't lie. it's supposed to be 10 or higher when you ovulate, and mine was a staggering 1.7 i always ovulated, so now this could be a whole new host of problems to worry about, besides that you obviously cannot get pregnant, if you don't ovulate, and that is a totally different issue then endo, or the bladder thing *sigh* the pain all the time is just frustrating me so, i don't know what i can do about it. iam meaner to dh, my patience is much less then once was, and iam definately feeling more b#%chy, which is so not who iam. dh did say that in april he'll be willing start to do some treatment, but i believe it might be too late by then, if not already. what if this is the start of early menopause, or ovarian failure, or something like that? my head has just been spinning. despite the fact i didn't ovulate, i have to go in today for another blood test for pregnancy, as it's required to have done 3 days prior to the HSG test, or they will not do it. iam having the test done this friday, and iam hoping there is SOMETHING to see, and iam praying this ovulation problem is only a one time thing, i just feel lost, and scared. i can't even trust my tests anymore, telling me i ovulate. that is sad, cause they are NOT cheap. there isn't one day out of the month now that i don't feel bladder pain, af like cramping, and now headaches. it seems like this could be more then 1 problem to contend with. my dr. is still against me having the lap at this point, he says pregnancy is what he wants for me, yes, me to, but whose to say even with treatment i'll get pregnant, and if hubby is making me wait till april, i guess i'll be popping pain meds, that hardly take the edge off, and lying on heating pads and massagers till april he also said that if fertility treatments did not work after awhile, then we'd o w/ the lap. i just had so much hope last cycle, and just knew i was pregnant, i had some convincing hpt lines, and my boobs swelled up, were sore, and had blue veins all over, still do, but it isn't possible, and i was not obsessed, and creating these things on my own. woe is me. my health is #1 right now, i just need answers. things are just slowly getting worse every month. april is too late, why oh why can't i get him on board sooner. i fear my chance is slipping, and the dr says do it soon, so if something drastic needs to be done, we can remove the ovaries etc. (EEKK) that is like my worst nightmare come true, so please pray for me. i want another baby bad, but i just feel so hopless, and dead inside. i just needed a vent thanks for listening. i hope to get somemore definate answers real soon. i can't go on like this. hugs, michelle
|
|
|
Post by jjuls22 on Nov 15, 2006 12:42:12 GMT -5
wow. April is def. a loooooong ways away. If your in so much pain why does the doctor insist on waiting until april? Popping pain pills can't be that great for your health either. Have you gone to see another doctor about this?It seems like neither your hubby or your doctor are interested in your well being- at the time being. Does your hubby really want his wife drugged up and wipped out on the couch for the next 4 months? Maybe im alittle lost on your story. But good luck, feel free to vent some more!!!hugs hugs hugs
|
|
|
Post by ouchy on Nov 15, 2006 20:53:14 GMT -5
Hi, Michelle. Sorry for everything you are going through. I think a "10" is even considered weak ovulation and just means that there was some type of ovulatory activity. From what I've read, doctors prefer a 14 or so for it to be considered good. It's depressing. I have PCOS, so I know how screwy ovulation makes you feel--like your body isn't doing its job!!! Maybe you should add temperature charting to your fertility monitor and OPK's. Even though you may get +'s on your test strips, that only means ovulation is approaching--but does NOT mean that is iminent. Having your progesterone checked or taking your temps. each day is the only way to tell if you are actually ovulating. I know how sucky it is!!!! You said that you have always ovulated...is this going by the test strips? Or have you had your progesterone tested a lot? If you are going by the test strips for this statement, it could be that you alllllllllllmost ovulated and then for some reason it just didn't happen...this has happened to me at least 3 times in the past 9 months . Not fun for baby making time. Anyway, the cystoscopy to check the inside of the bladder sucks, but it's not the end of the world. Just make sure the urologist numbs you up nicely before the scope goes in. You'll also probably get you a dose of prophylactic antibiotics to prevent infection. Well, I hope the best for you. Keep us all posted. Hugs back.
|
|
|
Post by michelleneedadvise on Nov 15, 2006 21:06:23 GMT -5
hey girls,
ouchie, most of what iam going by is from my clear plan monitor, my opk tests, my Cervical position, and mucus. i thought that would be enough, but you are right, it does only lead up to your high point, and what happens after is anyone's guess. i have the pain though at that time, so i figured this was definately it, ya know?
there have been occassions where i did get blood taken and this is the first time i heard i did not ovulate, but it was far from a regular routine. now you bet it will be. the only thing is, since my period came the day after the test, wouldn't my progesterone have been low anyway? do you know anything about taking progesterone, like suppositories creams, etc? do you think that would help in my case? my periods were always pretty darn regular but lately, they are getting off a bit, and i don't like that. it's enough to soon be called irregular, and i certainly don't need another problem.
this would all make sense with PCOS, but they ruled that out with the Re's bloodwork. endo doesn't affect cycles, and ovulation can it??
i don't know what they can and won't see on friday, but iam looking forward to the test, and doing SOMETHING. i have seen 2 dr's, and now searching for a 3rd who won't scare the willies out of me, and has a hint of bedside manner. this dr. whom i just saw, is very laid back, and though i like that he's not an alarmist, being too lax isn't great eigther. he just thinks pregnancy is my answer, and then BC. hubby is up for natural ttc, but wanted to wait until april for intervention..don't ask me why THAT month, lol. he's very shy, and he also since our last baby was iui, felt like he wasn't 'the man'..the one who got me pregnant, and i guess he felt like a failure, but i can't understand that, cause for the main reason, he doesn't have the problem!! that we know..second off, where is the shame in it? giving things a jumpstart.
well, i know things can be pushed up if something is found wrong where the dr pushes pregnancy this minute. dh is just not really taking in the whole scope of things. he cares a great deal, he just doesn't know how to deal with it, and if he tries to be comforting i push him away, cause right now, iam having extreme migranes, from wake up till bedtime, and i don't know what that can be from, and iam snappy as can be. iam lucky he's still around lol.
as far as the IC testing, is that really bad pain wise? they better numb me, and good, lol. i knew the test would come back negative...it always does.
welp, rightnow iam on the toilet suffering with an awful bout of IBS (i know TMI), i have dealt with this so long, these labor like contractions have become a normal part of life. boy would i like to see those go away! they are getting too bad to type, but i'll check in tomorrow.
thanks everyone:)
hugs, michelle
|
|
|
Post by ouchy on Nov 15, 2006 21:37:38 GMT -5
Hi again. That's a good point about the progesterone being low right before your period--from what I've read the test is supposed to be done 7 days past ovulation--maybe going by temps...? Don't know how they determine 7dpo, that's just my guess. To use the progesterone cream correctly--so you don't delay ovulation, you'd have to start taking your temps, because you are supposed to take it from ovulation until you start your period--or until you get a negative preg. test. I plan to use it while I'm pregnant, because I have a short luteal phase (time from ovulation until period), and that's most likely why I had my early miscarriage back in May. I've heard that you can use the progesterone cream until you're out of the first trimester--something I'll have to ask my OB/GYN about. Just because you had an anovulatory cycle doesn't mean you have to have PCOS--anyone can have an anovulatory cycle every now and then, so don't get too worried about that. You can have your LH/FSH checked on day 3 of your next cycle (3 days after you get your period) to show if you are going to be anovulatory next cycle. Something rather disappointing, though, is that once you have one anovulatory cycle, sometimes that becomes a pattern (or so my doc. says...and proved true in may case--this was before I had the PCOS tests), so he must have been speaking for women in general, not just those w/ PCOS. There is a thread re: cycle length and endometriosis, just do a search for it--I would search for you and put a link here to it, but I have a migraine and don't feel like it . Sorry. Sorry about your husband. I guess somehow it insults a man's "manlyhood" if for some reason medical intervention--or even just getting a head-start--is done, even if it has nothing to do w/ a problem on his end. I think it is cute how he wants to wait until April. That's funny. Maybe he just wants a New Year's baby! Whatever it is, maybe you'll get lucky and get your little baby sooner! Tell him you want a baby sooner for taxes . I know how you feel about being snappy. I recently had a stint on b.c. pills to shrink an ovarian cyst. Needless to say, I'm one of those "lucky" ones w/ endo who bleeds alllllllllllllll the time while on the pill, so I was pretty bit**y after more than a month of bleeding! Poor hubby for me, too! He was like a sweet puppy, and I was a mean alley cat! He loves me, though. That's our men's jobs! They're supposed to stick by us through thick and thin. After all, we stick by them! It's just how it is supposed to work. For me, the cystoscopy was just like what I was feeling pain-wise, only a bit stronger and continuous for about one or two minutes. Pulling the scope out was probably the worst, followed by peeing afterwards--you have to pee before you can leave (at least when I had it done I was told I had to). When you said, "As far as the IC testing...I knew the test would come back negative...it always does." How were they testing you for IC before if you've never had a cystoscopy? I'm not sure I understand that. As far as I know it's always diagnosed (supposed to be diagnosed) with a scope. It doesn't check for a bladder infection like a UA (urinary analysis) does, if that is what you are thinking. Anyway, just ask to really be numbed--I think they use lidocaine to numb before this procedure. Hope your IBS gets better fast! Have you tried psyllium husk? There is a thread on that, too. Has helped a few women, myself included. Best wishes w/ everything. Hope you feel better!
|
|
|
Post by michelleneedadvise on Nov 16, 2006 12:44:26 GMT -5
OUCHIE- sorry about your miscarriage:( iam sure your next baby will stick, it's at least reassuring to know, you can get pregnant, eventhough it is a tragic loss. i know i did get pregnant in the past, i just don't know how much can change with fertility and endo over the course of some years. how much worse can it make it? i don't know. no dr has been inside me yet 'litterally' just have their theories.
YES, the test is supposed to be done 7 dpo, and i was well past that, so iam unsure how they can be so sure? my period was just the next day, and iam sure it goes down before the next flow. i gotto call back up and ask. i did start temping and i didn't take any progesterone, so i guess i'll have to wait until next cycle, if i do do it. i'll try asking the dr about that to, but i hate being a pain in the %#^! my insurance company is going to start asking questions, iam going to so many things so quickly. i can't believe the blood work i had for ovarian and breast cancer was $3,000!!!!! for blood??!! haven't gotten those results back yet. i don't know how accurate blood can see into the future but for $3,000 i should get a crystal ball with it, lol. incredivle how much this stuff costs!
thanks hun. i know people say it is normal to not have one once in awhile, but what if it happens more then i think, but i just didn't have a blood test? obviously the testing i do with the monitor and pee sticks, can clearly be wrong. i will temp from now on, and try to figure things out that way, plus if insurance will cover it, go in for blood on 7 dpo, not the day before my period, but that was meant for a beta, i guess they see all levels in that test.
my RE checked my LH/FSH, i told him to check for EVERYTHING last i saw him, and all came back normal, but the elevated test ca-125, that i told you gals about. i wanted to re-take that test, not during my menstral cycle (i was on the 5th and last day), but my obgyn doesn't think insurance will pick up the tab again, and it's not that great of a test anyway. GRRR...lol. these tests were not done on cd3 though, they were done on the 5th, so i'll have to ask about that as well. WOW...they can tell on cd 3 if you won't ovulate? i'd much rather know it, though dissapointing, then trying to hustle dh into sex, and stress myself waiting, and wondering, wasting money on tests. i'd rather know, even if it was a depressing thought. too bad it's too late for that this month. thanks for letting me know about that. if i don't ovulate again, i will know there is something going on. can endo do this if i were on my ovaries or something? even if it couldn't be seen on u/s?
that's ok hun, i have been having migranes daily now, and don't feel like doing anything!! this sucks huh? i really don't understand my husband, i just don't wanna wait and find out it was too long of a wait, and it made all the difference. i know that is drastic thinking, but one never knows...ya know? i hope somehow it will just happen on it's own, so he'll feel like the big man, and i won't need that crazy clomid, lol...actually it wasn't that bad, eventhough i ovulated on my own, which was seen on u/s, it produced more eggies for more chances. only 1 month of that stuff i had though. seems like it's the only thing out there to really push ovulation, besides the natural hormones in the body, or injectables, which are a step up even. i did get pregnant a long time ago on my own, i just don't know if things inside me have gotten worse with time. iam only 31, but feel 91, lol. the pain has gotten worse since my baby's birth so i don't know.
lol, YES before tax season. we always get hit hard from uncle sam during that time, lol.
oh man!! i have a friend who gets long bouts of bleeding like that and she is miserable, and never sees a dr over it. she has no clue what it is, and i tell her to go in and get checked out, and she doesn't. she's not even on the pill. man i feel for you. 5 days is bad enough! my sympathies. i'd be bi^chy to.
so far about the whole bladder thing, it's the only 'thought' they have, to why i feel like i have UTIS, and all negative culture tests for bacteria and infection (i meant uti tests, not IC tests, sorry). i offered the explaination of possible endo bladder, but just for some lovely reason, they don't take the endo talk too seriously. i dont understand why, i have family history, pain w/ periods, before periods, now after periods, back pain, legs pain, now pee problems...come on, lol. what are the chances of having endo and IC? welp in my case, i guess pretty good. they can't say IC for sure until the test, but that is what the RE and OBGYN are thinking. me, i don't know, i just don't like whatever it is. my bladder is tender now. just my pj bottoms leaning against it, bothers me a bit.
i think they will have to give me a stiff cosmopoliton before the procedure, lol, just kidding. it doesn't last long though? they better numb me good for that one. i got my legs sealed shut thinking about the details, lol....oh and now i found out the specialist my dr referred me to the other day, and made an appt. with me, isn't covered by my insurance, so i have to call someone else, he gave the nurse the # to give to me. i must be annoying them, but hey..i can't pay this guy out of pocket. that procedure and just seeing the specialist is gonna cost thousands. need that towards april's taxes, lol.
as far as IBS, i baffel the whole damn medical commuity with my bowels! no joke, most dr's whom see me, don't believe how long i can go inbetween bowel move'ts. they say it's the worst case they have ever heard of, but they cannot find any cause but just to call it IBS. i was thinking with all that pain over the years, i'd have at the very least polyps, or a rupture somewhere, but 2 colonoscopies, a barium enema, and GI series, and they conclude i have a slow track, and am enema dependant now, and that is OK?? it got to this point, cause they gave me miralax, and zelnorm, and i went to an herbal dr. and tried all his concoctions, and even a bowel prep wasn't working!! so i got used to having to take enemas, and waiting out the pain, until something comes out. my dr doesn;t even tell me to stop that, he says my body is used to it, and this is just how it is, nothing on the market is going to help, but enemas. real great advise huh? i took 3 last night (i know, i know), and i barely got anything out. felt like i was in labor for hours, but even worse, and where is my baby?? lol. that is why during actual labor, when iam joking around, smiling, and making sure my lipstick is on properly, the dr's cannot believe it. that is cause iam so freakin used to pain, it's scarey!
never tries the husk, but i will try anything. i don't mind taking enemas, i mean they don't hurt me physically or anything, but i dont have a clue what they might do over time, or anything like that. i just get in such bad pain, i can't help but pop one in, if it doesn't do anything after awhile, pop another etc. i used to be able to stop the pain sometimes in public places, with muscle relaxers, but that doesn't work anymore. one dr even suggested me to shorten my intestines with surgery so the poop has less of a trip to take, but they couldn't find anything wrong. yeah right! NOT. another dr told me at 17, if i don't cue this vicious cycle, i'd have a bag attached to me by 30, and he scared me so freakin much, but iam 31, and no bag!!
i just can't believe you can have all that pain, and it not take it's toll on the intestines, and cause tears and stuff, or maybe just not yet. if there was endo on my bowel, that would certainly make a great deal of sense, since no abnormalities were found, in their other tests. IDK. it's all so much to swallow. infertility, endo, cancer risk, possible IC, IBS, now migranes..it never ends! i must admit lately i have been nasty to dh to, but not cause i can help it, it's just like there is never a totally pain free day anymore, and all the drs say to me, is that pregnancy is the answer, but even if it is true, it is only 9 months ya know? *sigh*
thanks for chatting with me. you really know your stuff, and we got some things in common. i don't know why they are against the lap right now, seems like most drs go right to it, but iam awaiting a 2nd RE to tell me what i should or should not do, cause if i got it, where could it spread to next?? i think alot, maybe too much, but it's a real fear, ya know. my mom had it, and didn't have alot of the pain that i have. i got it worst out of the whole family she says pain wise. i think cause i dress nice, and always act fine, and bubbly, have make-up on, and all that, it confuses dr's into thinking i look healthy, but come on they should know better then that. people deal with pain in different ways, for instance i don't cry, sometimes i laugh, or crack jokes, or just stay silent, i don't scream and moan, that is me. i think it's time they took the endo a bit more seriously, cause if i do have it, how much worse might it get by april?
urrgghhh dr's!!
thanks again dear. you feel better to, and i'll check out that thread. anything is worth a shot.
hugs, michelle
|
|