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Post by erzulie on Aug 11, 2006 16:21:59 GMT -5
After months of toiling away at my computer, I have finally finished typing up notes for easy reference from the world's hugest endometriosis book. I decided it was too much work to jsut keep it to myself, so I want to post my general notes in places where they fit on the forum in case the information is useful to others. These are just like general outlines, so if you want to know more look for the book Endometriosis: The Complete Reference for Taking Charge of Your Health by Mary Lou Ballweg and the Endometriosis Association and/or do some research. This information about pain seemed interesting to me:
Endometriosis causes pain through:
· Adhesions – they can damage nerves or strangle tissue, cutting off blood supply to areas of the body · Nerve Involvement – nerves can altered or entrapped · Increased prostaglandin production – it creates its own prostaglandins · Inflammation – inflammations can cause tissue damage which creates pain · Pressure/stretching – it can push or pull tissues, which can be aggravated by exercise, bowel or bladder functions, or EXAMS
79 % of women with endometriosis feel pain during their periods 53% during ovulation 46% sporadically 43% constant/ most of the time 39% with bowel movements
66% feel pain in their lower mid-abdomen 63% lower right abdomen 60% lower left abdomen 54% lower back 43% lower pelvis 31% head ?!
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Post by denna on Aug 16, 2006 3:40:45 GMT -5
hi..
this is a good book- i'll try to find it from the book store over here.how thick is the book?
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Post by erzulie on Aug 16, 2006 11:20:48 GMT -5
It's pretty thick, I can't tell you exactly cause I had to take it back to the library. It's got a wealth of information but not much on natural treatments!
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Post by Debi on Aug 16, 2006 13:19:35 GMT -5
You are great for posting this !!
I am having my laperoscopy this Friday. I have had every other test done and everything is negative. My doctor feels this will be negative too and I have started wondering myself. She is a great doctor and I trust her but I still can't help feeling that they all think it is in my head. Most of my worst pain is around ovuation and not necessarily with my period and this is the first real info I have seen that doesn't make me feel like I am crazy for thinking it is Endo ! Most info I read says painful periods. The main reason my doctor thinks she is not going to find endo is because I had a laperoscopy in 1998 -it was negative and had my tubes tied in 2003 and no signs of endo then. Pain has gotten MUCH worse in the last year. Ended up in ER last cycle and morphine did not touch the pain. Again, my doc says if it was endo, morphine would have taken the pain away.
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Post by ouchy on Aug 16, 2006 13:23:35 GMT -5
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Post by Debi on Aug 16, 2006 13:35:05 GMT -5
A co-worker recommend I look in to that as well but I have only a few of those symptoms. I guess anything is possible. I have almost constant pain but the last 3 really bad bouts of it first started WITH my period in June. Back hurt so bad from the day my period started until the day it stopped. It was the type of pain that you could tell was starting in the left front but radiating to my back. After my period ended, the pain eased but never really went away. Then for next cycle, the major pain moved to the right side (this was more during ovulation) had 2 days I could not stand up striaght - felt like a pinched nerve in my back. After and hour or so, the pain eased enough for me to stand and walk but I could not stand more than 5 minutes that my abdomen didn't hurt terribably. a day or two after that, I ended up in the ER because the pain was so bad. Now, third cycle in a row, the pain again shifted to the left and is cramping, burning, stabbing pain and it's been most of the month but is noticable worst now during ovulation. Very frustrating for me (and my husband) to know what is going on.
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