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:( bah.
Oct 1, 2014 12:21:23 GMT -5
via mobile
Post by princessbritain on Oct 1, 2014 12:21:23 GMT -5
Hey,
It's been so long since I have come on here but lately I don't know where else too turn.
Everyone wants too symphaize with me and give me advice even though they have no idea what I'm going through. I know they only want too help.
On Tuesday I went to my GI Dr who said that she was stopping testing on me, that it was pointless too put me through anymore and that she had exhausted all tests.
I was diognosed with minimal Endometriosis last November (18th) and since then I was put on the pill and even did the dreaded "lupron" but nothing worked. So I ended up seeing a pelvic specialist who diognosed me with pelvic floor dysfunction. I did my rehab but I don't think its even that.
I'm in pain pretty much all the time, my GYNO says that because I didn't respond to the Lupron that it can't be endometriosis. My pain is all over my abdomen and very low down. The pain differs from stabbing too burning. I'm so tired and I just feel very sad in my heart. I get on with it but sometimes it feels so lonely.
Just feel so upset, I feel that I will have to endure this pain for the rest of my life.
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TMM03
New Member
Posts: 32
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Post by TMM03 on Oct 1, 2014 19:37:56 GMT -5
We're you diagnosed through laparoscopy (sp)? Others here can probably speak to this better than I can, but if you do have endo, even if it's "mild", shouldn't surgery to remove it (or at least to look inside to assess the scope of the problem) be an option on the table? Do you need a referral to see a different gyno? Maybe there is someone else who can help, and can determine a course of action that provides you with the relief you need.
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terceltina
New Member
Happy, and now with 4 cats.
Posts: 43
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:( bah.
Oct 2, 2014 10:38:29 GMT -5
Post by terceltina on Oct 2, 2014 10:38:29 GMT -5
Hi,
Yes, I was told that endo is only really diagnosed through laproscopy. I mean, if they just throw different medication at you to see what works, they still don't know for sure mild or major, where and how, etc. Correlation doesn't imply causality. Silly doctors. I don't know why they always try and start with the 'go on this for 4 weeks, see if it gets better, and then come back.' when that could leave one with 4 more weeks of intense pain.
There are still good resources, like diet changes, and types of exercises, and different supplements, that could start helping you to feel better. Don't give up. I would suggest finding a different doctor though, if you're feeling like you're not getting the help you need.
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TMM03
New Member
Posts: 32
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Post by TMM03 on Oct 2, 2014 11:45:19 GMT -5
Nothing is worse than a pill-pushing doctor. How many of those have we all had, eh? When I had my gall bladder removed I just went back to the surgeon who had seen me through my appendicitis infections in the hospital. He had removed my gall bladder 6-8 weeks after the appy because I just went back to him complaining about more pain. Since I had access to some of the previous tests that were done I knew they had detected gall stones during a past ultrasound. He griped about me not having a primary physician but he still did the second surgery. So much better than pills. But I know not everyone can do that. I just wanted a solution that was permanent.
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terceltina
New Member
Happy, and now with 4 cats.
Posts: 43
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:( bah.
Oct 3, 2014 11:48:33 GMT -5
Post by terceltina on Oct 3, 2014 11:48:33 GMT -5
Hmm. A "try to make a stress journal, and I'm sure when you manage your stress, your pain will go away" doctor is worse. I had that happen to me. This was for 3 days of fever, chest pain, and difficulty breathing. Probably due to a cyst bursting, and pressure being put on the expansion of the lungs. The doctor said, "look, you're a healthy young woman, but you're very stressed. That's your only problem." I kinda feel like going back and showing my laproscopy scars and saying " I was sick!".
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:( bah.
Oct 4, 2014 15:36:48 GMT -5
via mobile
Post by princessbritain on Oct 4, 2014 15:36:48 GMT -5
Hey guys, Thanks for replying Yep I was diognosed through Laproscopy surgery. Thing is what I say is that it's been a while since that surgery and who knows what could of gone on? All my Drs are at a loss, my Gyno even wanted to do a lumbar MRI :/ my GI Dr gave me a "are you serious" look when I told her lol Trying to be gluten free, anything too help. This was because of the Celiac antibodies that where found in my blood even though I've been told I don't have the gene :/ which I'm confused with. I want him to do another surgery just too see, I would prefer that than nothing or more damn pills. I'm on like 7/8 pills a day and I know people are on more than that but I'm sick of taking the damn things. As I'm typing this im laying on the sofa wishing my hot water bottle would go fill its self lol but looks like I may have to get off my bum and go make one!!! Xx
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:( bah.
Oct 12, 2014 13:57:09 GMT -5
Post by JC on Oct 12, 2014 13:57:09 GMT -5
I'm sorry you're going through so much! What other tests have you had done? Also you can have the celiac antibodies and not have the gene. Not all celiac disease patients are genetically predisposed to have it. Also, genetics in general, the propensity of autoimmune disorders run in families more than specific autoimmune disorders. Meaning, if someone in the family has an autoimmune disease then that increases the chances of family members having ANY autoimmune disease. It's a dysfunction of the immune system, not a dysfunction of a specific organ. Have you ever kept a pain journal to see if the pain comes with certain activities, food, exposures, stress, etc? Sometimes that can at least give a clue to what could be causing it. It may not solve the mystery but it could point you in a direction.
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