Post by vks44 on Jan 26, 2006 11:03:04 GMT -5
Hi all ,
I am 44 years old and have been dealing with endo for many years ...2 years ago i had a hyster and kept my right ovary ...big mistake ...i have had terrible bouts and flares ..i have awful times where my ovary doesn't work and times when it does ...those are the times i wish it was gone the most ..have any of you suffered sacroiliac pain and swelling , tingly burning pain,bladder rectal pain and spasm...with terrible nerve pain in buttocks tail bone ect...sciatic pain bilateral .....bad bloating .i have had PT i got so much better till my hormones surged again ...
my PT is convinced it is endo ..since i had it all down low and my left ovary was stuck to my bowel ect...also i had lupron before my surgery ...so my GYN admits , there was stuff she probably didn't see withered down from it .......i hated lupron ..it is only a temporary fix ...but i had none of this type of pain while under its influence 2 years ago.......seems even now the pain is worse ...there is no pain where my uterus was ...mainly crotch and sacrum , tail bone .....my gyn wants to try a progestin to see what happens ...at age 44 i am afraid of those ...make me terribly depressed ....i never could tolerate bc....an ultrasound shows nothing ...but in the past 2 years i have had cysts and fluid ....i am going to request a CT scan to make sure nothing else is going on
down and depressed here about all of this
any help would be appreciated
hugs , V
I am 44 years old and have been dealing with endo for many years ...2 years ago i had a hyster and kept my right ovary ...big mistake ...i have had terrible bouts and flares ..i have awful times where my ovary doesn't work and times when it does ...those are the times i wish it was gone the most ..have any of you suffered sacroiliac pain and swelling , tingly burning pain,bladder rectal pain and spasm...with terrible nerve pain in buttocks tail bone ect...sciatic pain bilateral .....bad bloating .i have had PT i got so much better till my hormones surged again ...
my PT is convinced it is endo ..since i had it all down low and my left ovary was stuck to my bowel ect...also i had lupron before my surgery ...so my GYN admits , there was stuff she probably didn't see withered down from it .......i hated lupron ..it is only a temporary fix ...but i had none of this type of pain while under its influence 2 years ago.......seems even now the pain is worse ...there is no pain where my uterus was ...mainly crotch and sacrum , tail bone .....my gyn wants to try a progestin to see what happens ...at age 44 i am afraid of those ...make me terribly depressed ....i never could tolerate bc....an ultrasound shows nothing ...but in the past 2 years i have had cysts and fluid ....i am going to request a CT scan to make sure nothing else is going on
down and depressed here about all of this
any help would be appreciated
hugs , V