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Hello!
Mar 14, 2014 0:18:34 GMT -5
Post by annie24 on Mar 14, 2014 0:18:34 GMT -5
Hi everyone,
I'm new to the forum. I hope you are all coping well.
I have been suffering with heavy periods since I was 11 years old. In february 2012, my GP sent me for a ultrasound and it came back normal. In March 2012, I was taken into hospital and confirmed I had appendicitis after I had a scan. I didn't eat for 3 days as they didn't know when I will be going for surgery. I had it removed in the evening. The next day I was discharged. I thought I would recover and get on with my life. How wrong I was.
I've been in and out of hospital 9 times and still having pain in my right side. I was supposed to have the lap done at the end of November 2012. I had a temperature of 38.7 and my pulse was so fast I couldn't have the surgery. So I had to be admitted. I had the lap done in December 2012 and found endo and adhesions wrapping itself around my bowel. I had a partial obstruction. The report also said that my bowel was looped and twisted.
I'm not sure if endo was on my appendix with my first surgery but it was inflamed but no tests were done for endo.
I'm in agony and I think the endo has grown back again. I wish I could take Painkillers with Ibuprofen to help get rid of the inflammation but I'm allergic. I'm taking Co-codamol but I'm thinking of getting a Tens machine. I'm going to try some psyllium husk for my bowel problems.
From June last year I coped with no painkillers at all. I just used my heating pad and baths for the pain. At times I would cry because I could not move with the pain. I was so fed up of going to the doctors.
I had to go to the doctors about a month ago because I'm still getting pain. I'm waiting to see the surgeon again to see what the next step is.
My scars haven't healed well at all. They are keloid scars, my naval and appendix scars are the worst. They are lumpy and wider than they should be. I don't know if they will fade. I think I will get it removed.
My symptoms are:
Burning, stabbing, throbbing, dragging pain throughout the month including my bits Period pain Low right side stomach pain in scar that is worse with my cycle Sciatica Cocyx pain nerve pain Leg pain behind right thigh down to back of my knee Pins and needles in right foot IBS symptoms IBD symptoms Spine problems Tachycardia Nausea Vomiting Headaches Dizziness Fatigue Brain fog Bloated Feel full quickly when eating loss of appetite Insomnia
Thank you for reading.
Annie
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Hello!
Mar 15, 2014 15:48:14 GMT -5
Post by Karen on Mar 15, 2014 15:48:14 GMT -5
Welcome to the board! I'm sorry you're still having so many symptoms. While surgery might be necessary, it can often be so discouraging to leave it all in someone else's hands, particularly if you feel you aren't getting relief from what they've tried so far. While you're waiting for medical treatment, I'd encourage you to take whatever matters into your own hands that you can.
Because you have continued pain on your right side that affects your legs as well, I'd encourage you to find some sort of physical therapy if you can. Because endo can cause so much pain, our bodies can respond by tightening up, thereby pulling your body out of alignment and causing further pain elsewhere. That may not be the case with you, but if it is, physical therapy can help greatly. There's a thread on our boards about pelvic physical therapy that many have found useful (myself included). I swear by PPT as one of the top three things that gave me relief.
Your digestive symptoms sound quite severe and I'd encourage you to continue to seek medical treatment for those. While you're doing that, I'd also encourage you to take note of any foods that make the symptoms worse or better. There are many foods in our food supply these days that our bodies don't know quite how to deal with, and they can make inflammation worse, thereby making pain worse. I suspect that endo on your bowels has something to do with this as well, but is even more reason to eliminate any foods that cause inflammation and pain for you. Those foods that are typically at the top of the list are sugar, gluten (flour), and dairy. Many of us find relief from many or most of our symptoms by eliminating those inflammation-promoting foods and nurturing our bodies with good, clean nutrition so the body can heal.
I mention these options because these are things that you can pursue while you're waiting for a doctor to help you further, and these (and many other things) are often neglected when talking to doctors. This disease can be so infuriating because there's no good medical treatment to 'cure' endo, so any efforts you can make to take matters into your own hands can be encouraging. The book in my signature is the one that gave me the inspiration to help myself. You can often find it at the library if you're so inclined.
I'm sorry you're still not feeling well, but please know there's hope. I was in your shoes over 5 years ago, and I'm in a much better place now. Look around, see that you're not alone, and take whatever action you can for yourself. Hang in there!
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Hello!
Mar 16, 2014 21:06:50 GMT -5
Post by willow82 on Mar 16, 2014 21:06:50 GMT -5
I can relate very much, I had very similar issues for a long time. It sounds like your pain didn't fully remit after your lap. This could be for several reasons, unfortunately the most likely is that endometriosis was left behind. Endometriosis lesions need to be fully excised, aka cut out for a real benefit. Otherwise the lesions can regrow, and continue to cause pain and inflammation. This is why it is important to work with a surgeon who specializes in endometriosis. There is a sticky in the General forum that has a list of specialists, I actually found my current from that list. If there are non on there none on there in your area or that take your insurance there are threads that try to address general info on finding a specialist, or just ask. I had Stage III endo excised in 10/12 and continued to have pain and digestive problems after surgery. I at my 1st lap had adhesions pulling and twisting my ascending colon, and these symptoms quickly began to recur. I had thankfully had my first surgery with an endo specialist, and in the end it turned out I also had adenomyosis as well as endo. Adeno is similar to endo, it is abnormal growth of endometrial cells in the muscle walls of the uterus. While PT and Lupron were both helpful with symptoms the relief from both was short lived since the endo/adeno was still messing me up. After my Lupron shots wore off PT became completely useless, as simple stretches that used to eliminate my pain caused extreme and ongoing pain within moments. I also had problems with partial intestinal blockages, they are soooo painful and scary. I really have to caution against starting special diets or supplements with partial intestinal blockages, and consult with a GI. A lot of things recommended for endo diets, and anti-inflammation diets were no good for my inflamed, twisted, scarred up colon. Finally between my GI, gyn, and PT we got stuff working enough to keep me out of the ER until my second surgery. Essentially my diet needed to be low fiber, and liquid heavy. My PT & GI both recommended I drink 64-80 ounces of water a day, and that helped some. For constipation after much resistance I finally agreed to try Miralax, and it really helped. Why it hadn't helped before was that the dose was too low for all the nonsense going on in my colon. My GI had me titrate up until my dose was 200-300% of what is on the package a day. This was also really important since at this point I was on narcotics too, and they can cause constipation. I am also allergic to NSAIDs A GI who can get what is going on with your GI tract due to endo is key to learning what will work for your colon until the underlying endo gets treated. I just know for me good clean nutrition wasn't often an option until I had my hyst for adeno and my colon cut free again. Dark veggies, raw veggies, steamed veggies, essentially anything that wasn't mush would lock me up. Gluten which can totally mess some people up, was my best friend through my surgeries. Normally I eat a clean vegan diet. I love kale, chick peas, rice, broccoli. I often could eat none of the above. I can say there is a light at the end of the tunnel. I had my second surgery had scar tissue removed from my colon AGAIN, a new endometrioma excised, and a subtotal hysterectomy for adenomyosis in 8/13. I have now been symptom free for over 7 months. No PT, no meds, and I can eat whatever I want. I have my life back for the foreseeable future. I still have my ovaries though, so my endo can return. However, by having all the endo/adeno removed surgically I have had the most relief, and feel better than I have in the past 5-6 years.
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Hello!
Mar 17, 2014 13:41:57 GMT -5
Post by annie24 on Mar 17, 2014 13:41:57 GMT -5
Welcome to the board! I'm sorry you're still having so many symptoms. While surgery might be necessary, it can often be so discouraging to leave it all in someone else's hands, particularly if you feel you aren't getting relief from what they've tried so far. While you're waiting for medical treatment, I'd encourage you to take whatever matters into your own hands that you can. Because you have continued pain on your right side that affects your legs as well, I'd encourage you to find some sort of physical therapy if you can. Because endo can cause so much pain, our bodies can respond by tightening up, thereby pulling your body out of alignment and causing further pain elsewhere. That may not be the case with you, but if it is, physical therapy can help greatly. There's a thread on our boards about pelvic physical therapy that many have found useful (myself included). I swear by PPT as one of the top three things that gave me relief. Your digestive symptoms sound quite severe and I'd encourage you to continue to seek medical treatment for those. While you're doing that, I'd also encourage you to take note of any foods that make the symptoms worse or better. There are many foods in our food supply these days that our bodies don't know quite how to deal with, and they can make inflammation worse, thereby making pain worse. I suspect that endo on your bowels has something to do with this as well, but is even more reason to eliminate any foods that cause inflammation and pain for you. Those foods that are typically at the top of the list are sugar, gluten (flour), and dairy. Many of us find relief from many or most of our symptoms by eliminating those inflammation-promoting foods and nurturing our bodies with good, clean nutrition so the body can heal. I mention these options because these are things that you can pursue while you're waiting for a doctor to help you further, and these (and many other things) are often neglected when talking to doctors. This disease can be so infuriating because there's no good medical treatment to 'cure' endo, so any efforts you can make to take matters into your own hands can be encouraging. The book in my signature is the one that gave me the inspiration to help myself. You can often find it at the library if you're so inclined. I'm sorry you're still not feeling well, but please know there's hope. I was in your shoes over 5 years ago, and I'm in a much better place now. Look around, see that you're not alone, and take whatever action you can for yourself. Hang in there! Hi karen, Thank you for the welcome. I think I will try physical therapy. I think I will speak to the surgeon about it. Hopefully, I will hear something by the end of this week. The only things that do affect me diet wise is wheat at the moment. I bloat a lot if I eat it. I have cut it out of my diet. I will start cutting out meat, dairy - eggs and butter is going to be hard but I already drink coconut milk. I'm doing things slowly. I eat quite a lot of vegetables and fruit. My blood tests have shown high amount of folate and I have told the doctors why. I have to watch how much leafy green vegetables I eat though because my calcium is on the high side of normal as well as my phosphate level. I think my parathyroid is playing up. I don't know if it's linked to endo or not. I've told the doctors that it could be linked but the doctors won't listen. I will push for the surgeon to refer me to a GI, endo, and endocrine specialist. I think I need a bone density scan. So if I get those hormone injections I really don't want my bones any weaker than they are already. I can tolerate Paracetamol and Codiene. I don't like taking them. I only take them if the pain is moderate in the night. I can cope sometimes during the day. I've tried anti depressants and anti epilesy medicine. They didn't help me much because I was throwing them up and I felt worse. With Pregablin I was getting blurred vision, diarrhea, made my stomach pain worse, and my head was spinning so much that I was going to pass out. I'm looking into the T.E.N.S machine as an alternative to painkillers. It's very tricky for the doctors to treat my bowel problems. I react badly to peppermint oil tablets and certain laxatives depending on the dosage. I can drink peppermint tea. I've tried buscopan and meverbine and I didn't get much relief from them. I don't think I can get the books in the UK. I will look for them online though. Annie
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Hello!
Mar 20, 2014 18:04:28 GMT -5
Post by annie24 on Mar 20, 2014 18:04:28 GMT -5
I can relate very much, I had very similar issues for a long time. It sounds like your pain didn't fully remit after your lap. This could be for several reasons, unfortunately the most likely is that endometriosis was left behind. Endometriosis lesions need to be fully excised, aka cut out for a real benefit. Otherwise the lesions can regrow, and continue to cause pain and inflammation. This is why it is important to work with a surgeon who specializes in endometriosis. There is a sticky in the General forum that has a list of specialists, I actually found my current from that list. If there are non on there none on there in your area or that take your insurance there are threads that try to address general info on finding a specialist, or just ask. I had Stage III endo excised in 10/12 and continued to have pain and digestive problems after surgery. I at my 1st lap had adhesions pulling and twisting my ascending colon, and these symptoms quickly began to recur. I had thankfully had my first surgery with an endo specialist, and in the end it turned out I also had adenomyosis as well as endo. Adeno is similar to endo, it is abnormal growth of endometrial cells in the muscle walls of the uterus. While PT and Lupron were both helpful with symptoms the relief from both was short lived since the endo/adeno was still messing me up. After my Lupron shots wore off PT became completely useless, as simple stretches that used to eliminate my pain caused extreme and ongoing pain within moments. I also had problems with partial intestinal blockages, they are soooo painful and scary. I really have to caution against starting special diets or supplements with partial intestinal blockages, and consult with a GI. A lot of things recommended for endo diets, and anti-inflammation diets were no good for my inflamed, twisted, scarred up colon. Finally between my GI, gyn, and PT we got stuff working enough to keep me out of the ER until my second surgery. Essentially my diet needed to be low fiber, and liquid heavy. My PT & GI both recommended I drink 64-80 ounces of water a day, and that helped some. For constipation after much resistance I finally agreed to try Miralax, and it really helped. Why it hadn't helped before was that the dose was too low for all the nonsense going on in my colon. My GI had me titrate up until my dose was 200-300% of what is on the package a day. This was also really important since at this point I was on narcotics too, and they can cause constipation. I am also allergic to NSAIDs A GI who can get what is going on with your GI tract due to endo is key to learning what will work for your colon until the underlying endo gets treated. I just know for me good clean nutrition wasn't often an option until I had my hyst for adeno and my colon cut free again. Dark veggies, raw veggies, steamed veggies, essentially anything that wasn't mush would lock me up. Gluten which can totally mess some people up, was my best friend through my surgeries. Normally I eat a clean vegan diet. I love kale, chick peas, rice, broccoli. I often could eat none of the above. I can say there is a light at the end of the tunnel. I had my second surgery had scar tissue removed from my colon AGAIN, a new endometrioma excised, and a subtotal hysterectomy for adenomyosis in 8/13. I have now been symptom free for over 7 months. No PT, no meds, and I can eat whatever I want. I have my life back for the foreseeable future. I still have my ovaries though, so my endo can return. However, by having all the endo/adeno removed surgically I have had the most relief, and feel better than I have in the past 5-6 years. Hi willow, I'm sorry for the late reply. It's so hard to do things when your in pain. I know that he burnt the endo/adhesions off but he didn't cut it out. I'm getting the same symptoms I had before the lap. I think there's only a few endo specialists in the UK that do excision laparoscopies and they are all far away from me. I'm trying raise money so that I can have another lap that do excision surgery. My bowels have been awful since I had my appendix removed. If I eat too much fibre I can't go and if I eat too little I have diarrhea. I wish I could have a re-section so that my bowel can heal even if I have to have a stoma. I'm still waiting for a sigmoidoscopy since December 2012. They just make excuses that I'm too young or another department will perforate my bowel. It makes me think that are they saying the other department is incompetent which not nice. It's more like they don't want to be proven wrong and hesitant to do it. I still haven't heard anything after the doctors saying they will request one for me before discharging me whether I'm not able to eat properly. I have had dreadful treatment in hospital with doctors and nurses shouting at me on top of everything else. I've even been called a dog when my hair was shorter and the nurses wouldn't even help me comb my hair. My mum had to do it when she came to visit in the afternoon. My mum reported it though. I've had managers on the ward shouting at me for saying I'm still in pain. I said to my mum I want to go home and if I go home at least I won't have to put up with their abuse. If I die at home at least I'll have my dignity with people who know me. Then nurses saying not to say that. I said to the nurse it's how doctors and nurses make me feel by shouting abuse at me. Until you go through it yourself you really don't know what it's like to be in pain everyday and nobody takes you seriously because of your age and female. It's not your health declining it's mine and I have the right to know what's wrong with me. Then doctors thinking I'm fine because tests come back normal and I look ok. Carers wishing the worst that could happen to me before my lap. I just don't know what to do any more. This is why I haven't gone back into hospital since last year because some of them just treat me as if I'm invisible and ignore me when I ask for help. I get compared to others in there as well. I was treated differently to everyone else. I know that they are busy but don't take the pressures of their job out on me. I was blamed for having too many scans and that I requested them by a doctor. I did not sign a request form for those CT scans. I was made to feel that I was lying about my pain.
I'm sorry for the rant but I'm feeling down at the moment.
Bowel blockages are frightening and I'm scared about having another one.
I'm getting my tens machine tomorrow so hopefully it will help with the pain and reduce the amount of painkillers I take. I really don't know how I coped last year without any painkillers. I don't like making plans around the pain. I'm so glad I found this site with people that can understand what your going through. Annie
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Hello!
Mar 20, 2014 18:22:43 GMT -5
Post by chibineko717 on Mar 20, 2014 18:22:43 GMT -5
Welcome! I'm sorry you are going through so much. That is awful how the nurses treated you. My bowels have been really bad for a long time too and I had a resection in January. I'm still not feeling better yet, so I have no idea how long it will take to heal. I used a tens unit, but finds that it works better on the back/hip than the abdomen. Hopefully you can get some relief soon.
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Hello!
Mar 20, 2014 23:39:43 GMT -5
Post by annie24 on Mar 20, 2014 23:39:43 GMT -5
Welcome! I'm sorry you are going through so much. That is awful how the nurses treated you. My bowels have been really bad for a long time too and I had a resection in January. I'm still not feeling better yet, so I have no idea how long it will take to heal. I used a tens unit, but finds that it works better on the back/hip than the abdomen. Hopefully you can get some relief soon. Hi chibineko717, Thank you for the welcome. I hope you feel better soon. Fingers crossed the post op pain will go away for you. Maybe you could ask the doctor or surgeon how long it will take to heal for a peace of mind. I know it takes longer to heal inside but I don't know how long. I know right, I'm trying to stay away from the hospital wards as long as I can. If I start being sick again I might have to go in.
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Hello!
Mar 22, 2014 11:08:44 GMT -5
Post by willow82 on Mar 22, 2014 11:08:44 GMT -5
I'm sorry for the late reply. It's so hard to do things when your in pain. I know that he burnt the endo/adhesions off but he didn't cut it out. I'm getting the same symptoms I had before the lap. I think there's only a few endo specialists in the UK that do excision laparoscopies and they are all far away from me. I'm trying raise money so that I can have another lap that do excision surgery. I completely understand, I remember being there, it is no fun. We do have some members in the UK, and they might be able to help with finding a doctor who can do excision. Fiber was a really delicate balance for me too with the colon adhesions and endo/adeno. I felt like a baby bird, everything I ate had to be super processed. Like the food had to be as close as digested as possible before going into my body. So to get veggies and vitamins I had a lot of nutritional shakes and soups. To get the fiber I had to go with highly processed gluten or very well cooked rice. Essentially most of my food was mush. It sucked. I found taking a multi vitamin helped quite a bit since I couldn't rely on my diet to get me everything I needed. My GP also did labwork to see what nutrients I was short on. Pelvic floor physical therapy also helped some. My rectal and vaginal wall had fused, therapy was able to separate them, and also to give me some techniques to make it easier to go. It also helped some with pain, in my legs, back and hips. However therapy stopped helping when my Lupron injections were over, at least for the pain. With a lot of laxatives and my mush diet some of the bowel tricks still worked. Yeah I once had a gynecologist belittle me for thinking my GI issues were gyn related, she said my uterus wasn't big enough to cause those sorts of problems, and to calm down. Ha, I've seen on Ultrasound what my uterus did to my bowels. I am very lucky to now have a doc who does his own ultrasounds. I actually had a "specialist" blame my ongoing pain on anxiety. It's ridiculous what we get put through. I will never forget them. I also had so many doctors tell me it was no big deal when I hadn't gone in 3 days, even though my body normally goes once a day, and the extreme pain would be ignored. I on numerous occasions would have to pile magnesium citrate on top of prescription osmotic laxatives and could feel where I was blocked. Of course when I'd tell most doctors I had this I was looked at like I had lost my mind. At my surgeries the adhesions were exactly where I would have all the pain. I clearly remember where the pain was since I would spend hours and hours screaming through it with no meds touching it. I will say I finally fixed this issue by working with a GI who taught me how to mix miralax based on what I needed. The normal dose did nothing and before my second surgery I was taking 3 times the daily recommended amount to have a normal bowel movement 4-5 times a week. I get the fear I still freak out when I go a day without having a BM, even though I've not had GI problems since my last surgery. Tens didn't help me much, but a lot of people find it helpful. Physical therapy exercises helped me get the pain meds down. With pain killers I found it really helpful to be on a schedule, and not to wait to take them until I was in pain, then they didn't help much. So I would take 1 every 8 hours, and have a second on hand in case the pain flared up. This also helped with the side effects of the narcotics. This schedule allowed me to keep working last year. The only drawback is coming off of them, I was completely off until 6 weeks after my second surgery. We're here, we get it, and rant away if it helps.
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Hello!
Mar 24, 2014 22:09:36 GMT -5
Post by annie24 on Mar 24, 2014 22:09:36 GMT -5
I'm sorry for the late reply. It's so hard to do things when your in pain. I know that he burnt the endo/adhesions off but he didn't cut it out. I'm getting the same symptoms I had before the lap. I think there's only a few endo specialists in the UK that do excision laparoscopies and they are all far away from me. I'm trying raise money so that I can have another lap that do excision surgery. I completely understand, I remember being there, it is no fun. We do have some members in the UK, and they might be able to help with finding a doctor who can do excision. Fiber was a really delicate balance for me too with the colon adhesions and endo/adeno. I felt like a baby bird, everything I ate had to be super processed. Like the food had to be as close as digested as possible before going into my body. So to get veggies and vitamins I had a lot of nutritional shakes and soups. To get the fiber I had to go with highly processed gluten or very well cooked rice. Essentially most of my food was mush. It sucked. I found taking a multi vitamin helped quite a bit since I couldn't rely on my diet to get me everything I needed. My GP also did labwork to see what nutrients I was short on. Pelvic floor physical therapy also helped some. My rectal and vaginal wall had fused, therapy was able to separate them, and also to give me some techniques to make it easier to go. It also helped some with pain, in my legs, back and hips. However therapy stopped helping when my Lupron injections were over, at least for the pain. With a lot of laxatives and my mush diet some of the bowel tricks still worked. Yeah I once had a gynecologist belittle me for thinking my GI issues were gyn related, she said my uterus wasn't big enough to cause those sorts of problems, and to calm down. Ha, I've seen on Ultrasound what my uterus did to my bowels. I am very lucky to now have a doc who does his own ultrasounds. I actually had a "specialist" blame my ongoing pain on anxiety. It's ridiculous what we get put through. I will never forget them. I also had so many doctors tell me it was no big deal when I hadn't gone in 3 days, even though my body normally goes once a day, and the extreme pain would be ignored. I on numerous occasions would have to pile magnesium citrate on top of prescription osmotic laxatives and could feel where I was blocked. Of course when I'd tell most doctors I had this I was looked at like I had lost my mind. At my surgeries the adhesions were exactly where I would have all the pain. I clearly remember where the pain was since I would spend hours and hours screaming through it with no meds touching it. I will say I finally fixed this issue by working with a GI who taught me how to mix miralax based on what I needed. The normal dose did nothing and before my second surgery I was taking 3 times the daily recommended amount to have a normal bowel movement 4-5 times a week. I get the fear I still freak out when I go a day without having a BM, even though I've not had GI problems since my last surgery. Tens didn't help me much, but a lot of people find it helpful. Physical therapy exercises helped me get the pain meds down. With pain killers I found it really helpful to be on a schedule, and not to wait to take them until I was in pain, then they didn't help much. So I would take 1 every 8 hours, and have a second on hand in case the pain flared up. This also helped with the side effects of the narcotics. This schedule allowed me to keep working last year. The only drawback is coming off of them, I was completely off until 6 weeks after my second surgery. We're here, we get it, and rant away if it helps. Hi Willow, I know what you mean. I have smoothies if I don't feel I eating and it was a mixture of fruit and vegetables. I don't mind having lentils with well cooked brown rice and vegetables. Soft/blended foods makes passing stools a little easier, still painful but at least it's quicker. If it takes too long that's when I'm close to passing out. I think it presses on a nerve at the back of my right leg and makes going to the toilet worse. I worry if I can't go to toilet as well. I was like that in A & E and I could not sit down in a padded wheelchair. I ended up on the floor because the pain was so bad. I used my coat as a pillow for my head. I said I can't sit any more to the triage nurse when she checked on me. I was curled up holding my stomach crying in pain. I took paracetamol and tramadol before and it wasn't touching the pain. My mum had to buy bottled water for me to take my painkillers because the nurses were so busy. I eventually was given morphine but sometimes it wouldn't help with the pain either. It took about 12+ hours to be seen by a doctor then another 6 hours for them to find a bed for me. I had the same thing happen to me by a surgical consultant and I disagreed that my pain wasn't down to anxiety. I think it's a flare up of endo I said. I said I'm fed up of being fobbed off all the time. Now they say I'm not trying to fob you off to me. They said if they do the other tests it's not specific and not accurate. When you think it's important to inform doctors of anything they dismiss it. I take 1-2 four times a day but if I'm running out I cut it down because I think I will be refused next time if I ask for a repeat prescription. I don't want to take hormones. I'm going to try balancing the hormones with diet and supplements. I do have maca root and it supposed to be good for endo. I haven't been consistant with maca root powder though. I will try it again and remember to take it every day. My mum said to me today that this condition sounds awful and gave me a hug. She was speaking to my Aunt about her symptoms with endo and she finally understands me because of what her sister went through. It's a bit of a relief. She wants to find a GI specialist with endo knowledge as well as a gynae for me. Reading peoples experiences on here made me cry. Most of them I could have written myself.
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