Post by overworkedta on Jan 23, 2014 14:16:48 GMT -5
Hello.
I'm new to the board. I found you guys in a random search regarding something totally unrelated and now I'm here. I'm 26, finishing up my PhD, living in the Midwest (originally from the Chicago area), and currently have stage 2 endo. So, not awful but not great. I'm currently on Mirena which mostly does the job and it's really the last step before Lupron because I have done everything else. I've been on hormonal BC since I was about 13 because of awful periods, pain in between, the usual. No one listened to me. It was mostly just "take these pain pills and stop complaining" (similar to most on this board, I'm sure).
I had my first lap when I was 17. It was inconclusive and my surgeon didn't take samples. Instead, she told me I was "making things up" and wrote me a script for vicodin. I had another flare up that was awful when I was in college and abroad. My doc there suspected endo, put me on Provera for 3 months (in which I gained a ton of weight but the pain stopped!), and then I switched to depo. Depo made me really depressed. A year later I was dx'ed with bipolar II and taken off all meds, which was fine until I got a cyst, it burst, and then I found out I had a terrible pelvic infection due to this during emergency surgery for what was thought to be a burst appendix. The general surgeon saw what he thought were adhesions and called for a GYN to come in and they took samples, pictures, the whole nine yards. I got referred to an EXCELLENT practice at that point.
I was put back on the pill, that didn't work, and then on the implant which worked for about 18 months before I had a 3-month long period. My current doc and nurse practitioner actually listened to me and put the mirena in without telling me how they wouldn't do it because I wasn't married and hadn't had a baby. Has anyone else experienced this? In the UK they are the norm for all types of women.
I also suffer from levator spasms and was in PT for that, which has helped. When my endo flares up, this makes the pain worse. I hope Mirena keeps working because Lupron is complicated for a person with a mood disorder and I would like to have some more job and life stability before I try it. I would like to at some point have children (in the next 5 years maybe), too. Who knows if that is possible. I just realized when looking int my options that adoption is pretty "out" for me because of mental illness (despite stability for years now) and that hurt. I don't want kids right now but I am hoping to feel a little bit more educated about my options in the future.
Other than that, I study bureaucrats by day, teach undergraduates as an instructor at my campus, and ride my bike. I also have a wonderful boyfriend and very sweet dog -both of whom I love very much- and a great, supportive family. However, no one really "gets" what I am dealing with - especially ever since I decided I do actually want to have kids.
If you read all of that, kudos to you!
I'm new to the board. I found you guys in a random search regarding something totally unrelated and now I'm here. I'm 26, finishing up my PhD, living in the Midwest (originally from the Chicago area), and currently have stage 2 endo. So, not awful but not great. I'm currently on Mirena which mostly does the job and it's really the last step before Lupron because I have done everything else. I've been on hormonal BC since I was about 13 because of awful periods, pain in between, the usual. No one listened to me. It was mostly just "take these pain pills and stop complaining" (similar to most on this board, I'm sure).
I had my first lap when I was 17. It was inconclusive and my surgeon didn't take samples. Instead, she told me I was "making things up" and wrote me a script for vicodin. I had another flare up that was awful when I was in college and abroad. My doc there suspected endo, put me on Provera for 3 months (in which I gained a ton of weight but the pain stopped!), and then I switched to depo. Depo made me really depressed. A year later I was dx'ed with bipolar II and taken off all meds, which was fine until I got a cyst, it burst, and then I found out I had a terrible pelvic infection due to this during emergency surgery for what was thought to be a burst appendix. The general surgeon saw what he thought were adhesions and called for a GYN to come in and they took samples, pictures, the whole nine yards. I got referred to an EXCELLENT practice at that point.
I was put back on the pill, that didn't work, and then on the implant which worked for about 18 months before I had a 3-month long period. My current doc and nurse practitioner actually listened to me and put the mirena in without telling me how they wouldn't do it because I wasn't married and hadn't had a baby. Has anyone else experienced this? In the UK they are the norm for all types of women.
I also suffer from levator spasms and was in PT for that, which has helped. When my endo flares up, this makes the pain worse. I hope Mirena keeps working because Lupron is complicated for a person with a mood disorder and I would like to have some more job and life stability before I try it. I would like to at some point have children (in the next 5 years maybe), too. Who knows if that is possible. I just realized when looking int my options that adoption is pretty "out" for me because of mental illness (despite stability for years now) and that hurt. I don't want kids right now but I am hoping to feel a little bit more educated about my options in the future.
Other than that, I study bureaucrats by day, teach undergraduates as an instructor at my campus, and ride my bike. I also have a wonderful boyfriend and very sweet dog -both of whom I love very much- and a great, supportive family. However, no one really "gets" what I am dealing with - especially ever since I decided I do actually want to have kids.
If you read all of that, kudos to you!