|
Post by melanier on Nov 14, 2013 12:30:05 GMT -5
I am just introducing myself. This website has been a great comfort to me. I was diagnosed about ten years ago, i had a cat scan and they told me it looked like ovarian cancer. I had a 12 cm cyst on my right ovary and a 6 cm on the left, it was terrifying i was 28 and a mom to one perfect daughter. They did surgery and it was endometriosis. I was on Lupron for a couple years, did fine no side effects and was effective, also have a mirena. The md stopped the Lupron and started continuous BCP, i just stopped those because i felt tired and my blood pressure increased. Now i am just on the Mirena. I just had an ultrasound that shows a spot on my liver, again they dont know what it could be and i am getting an Mri today. I am in pain all through my upper abdomen. I am suspecting (hoping) it is endometriosis again, except i dont have any pelvic pain, but i do have the mirena so maybe that helps that area only? When i had that surgery ten years ago the surgeon said that the cyst ruptured all over my abdomen, i believe that can cause more endo, but my pcp says no. Any thoughts on that? Anyway send me good vibes and thank you so much for having this board .
|
|
|
Post by chibineko717 on Nov 14, 2013 13:38:42 GMT -5
Welcome! I have upper abdominal pain from endo. Endo can attach itself to any organ in the body. The way my endo spread so quickly is through cyst ruptures. Sometimes endo can create its own estrogen supply so it can continue to grow even if you are on lupron or another hormone treatment.
Your pain could also be from adhesions from your previous surgery. Where exactly is your pain? I have pain under my ribs since the endo spread to my diaphragm. Also, have you had your gallbladder and appendix taken out? The endo was close to my gallbladder so it stopped working properly. This can cause painful gallbladder attacks when you eat certain foods.
I don't know what to tell you about the spot on your liver. I had one on my liver during 2 of my surgeries, but there was nothing on it during my last surgery. Sometimes it shows up on ultrasounds and other times it does not.
I hope your doctor treats your pain after they get the mri results. Everyone on this board is different, but some have found success from diet changes and supplements.
|
|
|
Post by melanier on Nov 14, 2013 14:03:38 GMT -5
My pain is up under my ribs and in the middle upper abdomen, high up. My appendix was removed during surgery there was also endo all over my bowels. I am on Vicodin so pain is usually controlled unless i am at work. Do you think they can see endo lesions with an MRI? I think it is on my diaphragm, I get these coughing spells that taste like blood lately. I went to md and they did a chest x ray that was normal and of course a tb test and i dont feel sick. How did they find it on your diaphragm?
|
|
|
Post by chibineko717 on Nov 14, 2013 15:43:07 GMT -5
The endo on the diaphragm was found during my last surgery with an endo specialist. They took out my gallbladder and looked at the diaphragm. I'm looking to have another surgery soon since I've been having lung pain and coughed up blood with my last period. I think it is on my lung. Endo does not show up on most scans so I don't know if it shows up on a mri. My insurance always denied mri requests. I had lung x-rays and CTs, but all looked normal.
If you are having coughing spells, I suggest you start looking for an endo specialist. Thoracic endo is rare and most doctors don't know what to do. My pulmologist said he doesn't have any idea what to do since my lung has not collapsed yet. Head on over to the endo specialist thread to see if there is a doctor near you. What area of the world are you? There are a lot of doctors listed for the US but only a few for other countries.
Do you have pain that sometimes goes to the back of your shoulders? Endo on the diaphragm can cause referred pain in your shoulder. It is usually on the right side.
|
|