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Post by shortb on May 8, 2013 9:36:24 GMT -5
I am a 42 year old military wife. I am fortunate to have 4 great kids and a crazy great spouse. Somehow, with all of these wonderful people in my life I still feel a bit alone in this new endo journey. I didn't even know I had endo until I had a "super painfull" cyst removed on April 23rd. The surgeon (my Gyn) found stage 4 endo! I thought everything I was experiencing was just age or something . It is all over my bladder and bowel which are unsafe to operate on. Post surgery I am dealing with some raging hormones and mood swings like I have never experienced before. I don't have any idea what to do! I just hope I don't go off on someone and loose my job. Any advice is greatly appreciated.
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Post by hellsbells on May 8, 2013 14:55:45 GMT -5
It's possible the mood swings might be to do with the actual diagnosis. I was expecting my diagnosis but still went a little loopy afterwards. A lot of us here like to try and control symptoms with diet changes, and I know my moods differ a lot depending on how much crap I eat. I also believe that the stress we put on ourselves trying to deal with swings can actually make the mood soooo much worse! Take yourself to a quiet place and shout, cry or whatever you need to do to calm down. Obviously don't give in to it too much, but don't fight it too much either!
I have bowel and bladder involvement too, and they CAN be operated on, by the right surgeoun. Get your op report, pics etc and get a second opinion if your current doc is reluctant to treat those areas.
Good luck, and welcome!
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Post by Karen on May 8, 2013 17:17:46 GMT -5
Ditto to what Helen said regarding the second opinion! A good doc won't throw their hands up and say, "I've done what I can, too bad on the rest!" Please, find someone that really knows endo!
I was a wreck as well leading up to and after my lap. Looking back, the pain had a lot to do with it. But, the fear was a huge part of it, too. The fear of not knowing what would help, not having an action plan with some short-term results. I'm happy to report that since changing my diet, going to pelvic physical therapy, and finding a doctor that uses bio-identical hormones to treat my hormone imbalances rather than cover them up with drugs, I'm much more emotionally stable! Still have some low days, but each month is better than the last. There's hope!
Take the time you need to recover, and then come up with an action plan. A plan of attack isn't out of your control - though many doctors may make you believe that. Find a second opinion, do some research, and figure out which approaches you'd like to try. The endo book in my signature is a great place to start to learn your options.
Hang in there, you're not alone!
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Post by charlie29 on May 11, 2013 8:16:19 GMT -5
I found I went through a grieving process. Even though I knew what the diagnosis would be, it was hard to believe that I now had a name to what was causing all my issues. Like the ladies said, finding a method that helps you deal emotionally is a huge deal. It puts you back in control. Feeling what you are feeling is more then normal: it's expected.. One day at a time.
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Post by MustangGtGirl on May 14, 2013 13:19:07 GMT -5
What you are feeling is normal. Endo is a lot to take in and deal with on a daily basis. Jenaya had once told me to go somewhere like my room and scream or punch the seats in my car when I was at work. I actually went out and bought a heavy bag to punch and it does work. Do not hold it in. Holding it in will only make it worse. Stress and anxiety can also do strange things to your body.
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