|
Post by lynette on Feb 1, 2006 18:57:33 GMT -5
I just got a phone call from my ob/gyn's nurse. They just got the pathology reports back from my total hysterectomy, ovary removal, cleaned out all the endo. Funny thing is that it came back not endo. I have had 4 doctors tell me I have had endo and 2 laproscopic surgeries to diagnose the endo. Pathology on this one said everything was benign, so no cancer, but also no endo. If it hasn't been the endo that I have been treating what in the world could it be. I don't even know what kind of doctor to call. Anyone have any ideas. I would greatly appreciate it. I just had this major surgery at 27 years old and that is supposedly not what it was. Help. Lynette
|
|
|
Post by ouchy on Feb 1, 2006 19:41:45 GMT -5
is it possible that the endometriosis was obliterated by the co2 laser, therefore they coudn't test the actual endometriosis ....to see if it was endometriosis? if there was no endometriosis on your ovaries and tubes, that would obviously come back negative for endometriosis. if you did not have andenomyosis (endometriosis of the uterine wall), and you didn't have any endometriosis on the outside of the uterus, that would come back negative as well. if they obliterated all of the endometriosis with the laser and didn't excise any to do tests on the actual suspected endometriosis, then there is no way to do tests on it to see if that is what it was (although it probably was endometriosis), because it is vaporized by the laser.
|
|
|
Post by erzulie on Feb 1, 2006 21:08:51 GMT -5
lynette, the exact same thing happened to me after my laparoscopy in December. The doctor said right after the surgery that she found endometriosis in various places and cleaned up what she could, then a week later the nurse called to say the pathology report was back and the tissue removed was benign, but was not endometriosis. I totally freaked out, thinking I had some hitherto undiscovered disease that no one would know how to treat, and as a result totally blew my post-op appointment a week later. By that I mean that I didn't prepare my usual list of questions because I didn't know what to ask about, and consequently failed to get much information. What the doctor said was that it was obviously endometriosis because nothing else does that. She said she does the best she can with the biopsies, but sometimes they just don't show up as endometriosis in the tests. She didn't think it was a big deal, and after a week of panicking I felt really relieved. Probably this is the same thing with you, Lynette. The biopsy didn't come out right, but what else can it be besides endometriosis?
|
|
|
Post by lynette on Feb 1, 2006 22:22:28 GMT -5
Thank you both for the confirmation. I have called the doctors back and her nurse said the report says I had follicular cysts on both ovaries. They feel it is all fine and the doctor will go over the reports more in my appointment on Feb.15. I just don't want to think I had this major surgery for nothing. I am still going to do some more research. Thanks for any help or advice. Lynette
|
|
|
Post by ouchy on Feb 2, 2006 0:30:02 GMT -5
Hi, Lynette. Each time an egg is produced by the ovary a small follicular cyst forms. The cyst normally ruptures and releases an egg --ovulation. If the cyst doesn't rupture, it can continue to grow leading to polycistic ovarian syndrome (PCOS)...that's usually treated with birth control pills, which stops future cyst formation (by stopping ovulation). After a few months of b.c. treatment, the cysts usually shrink. If you didn't have polycysts, it could just mean that you were ready to ovulate, maybe double ovulation (both ovaries)? I don't know. Good luck with the appointment on the 15th, and make a list of questions to bring with you!
|
|