Husband doesn't understand!!!

[sarahm03]

So I was diagnosed with endo and Adenomyosis in August 2011 and am still in sooooo much pain!! Every single day I feel like crap and my hubby still doesn't understand what I'm going through. I've tried to explain and even my doctor has explained to him and he STILL doesn't get it! I'm a hairstylist and am on my feet 9-10 hrs a day, no breaks just 30min lunch. I just got my first shot of lupron today but it won't kick in for another month or two. Since I'm in so much pain still I just cut my hrs to 6 a day, the hubby freaked because we have a "plan" and that's not in it!!! It's only until I start feeling better!! How can I explain that I'm tired and feel so s****y ALL the time that I need to take it easy until it kicks in??? Ugh husbands

[Karen]

I meant to find an article that got passed around here about how to explain endo (or similarly adenomyosis) to people that don't have it. Some people just don't get it. Perhaps you can ask him kindly that if he's not able to 'get it', if he'd kindly at least support you and trust that you're doing what you're doing to get better so that you have less to deal with in the long run.

And as for lupron, well, be prepared for some side effects. Although some women get relief from it, most get some pretty nasty side effects. You might want to try to prepare yourself and your husband for some of those. Did your doctor review them with you??

[JC]

The article Karen is referring to is in our thread titled, "What it really means to have endometriosis."
cjlevett.proboards.com/index.cgi?board=general&action=display&thread=4217
The "spoon theory" is also another really good one and that's also in that thread.

As far as your husband, um, are we married to the same man? My husband was really NOT AT ALL understanding when all of my endo stuff started. It took him a long time to really understand what I was going through and what' sad is that it took me getting really sick and seeing me laying in a hospital bed for him to finally "get it."
Not to say that's what your situation is like but I totally understand your frustration with feeling awful and having someone not understand. I wish I had some good advice for you because like you, I tried EVERYTHING. And just like you, I had my doctor even tell him how awful this disease is and he still didn't get it. I wonder if it's just a man thing?
I'll brainstorm a little more to see if I can come up with something. Read through that thread I gave you above and see if anything there helps. If not, at least you can come here and vent!

[1234]

I'm so sorry! I've been so amazed at people's different reactions to my dealing with this disease. My husband has been amazing, but my mother has been insane. I don't know what the answer is, but I certainly understand and I'm so sorry. I think it has much more to do with the person's ability to understand/accept sickness, than about you, but it still sucks for you.

[semicolon]

I don't know how to make others get it either. But I love that's not part of the "plan"- with my health issues and my husband's this year we no longer have a plan but try to roll with everything as it comes. It may be that your husband just doesn't understand you guys can make it a different way, maybe you can find a way to convince him that happiness and health are worth changing the plan a bit. Hugs to you!