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Post by Heather on Aug 21, 2011 23:02:24 GMT -5
I'm pretty open, probably to a fault. The one thing that does make me uncomfortable is talking about sex pain with my mom. She's interested because she wants to know why her little girl's not feeling well, but it's awkward. My parents never even really kissed in front of me (just pecks), so the whole sex thing just doesn't translate over to them. I still have a hard time with the idea that they do it. At first, my mom was sure the doctors could do something other than just masking the pain, but I've kept her informed of all the different things I've tried to control it and she accepts now that it's just not that easy with endo.
I do like to give people a broad overview if they ask why I can't eat certain things, why I'm doubled over in pain, etc etc. Some people do glaze over (mostly younger girls who think they're invincible--I know I used to!), but a lot of people ask questions. And you never know who you might help by being that obnoxious broad who's always talking about being sick. Even the 18-year-old kid who washed dishes at my last job stood there attentively and listened while I gave a rough outline of my medical history to another coworker. Who knows, maybe one day he'll have a girlfriend or relative with it, and maybe he can help her.
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Post by Heather on Aug 22, 2011 2:07:07 GMT -5
On the note of not being understood... granted this could be something entirely different from what I think. I have a friend who has endo and PCOS. She's had a partial hysterectomy (one ovary left) and is still having major issues with pain. One of her friends posted on her FB page some bullsh*t article about increasing your activity to prolong your life. I didn't say anything because it's not really my business, but I'm sitting here thinking "you are REALLY not helping".
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jaye
Full Member
Posts: 165
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Post by jaye on Aug 22, 2011 9:33:39 GMT -5
GP - So true about talking with parents. With me, it was the other way around. My Mom had endo much worse than I do and I have gleaned from conversations that she had sex pain (I think it indirectly caused my parents divorce 'cause my Dad is a narcississtic ass). I don't really want to hear about my parents sex or sex troubles but at the same time I felt I needed to get the whole scoop. She was very private about the whole thing until I started asking questions. Luckily, my endo didn't come with sex pain (knock on wood).
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Post by omaklackey on Aug 22, 2011 9:58:47 GMT -5
This topic is so interesting. I bet if we could be a little more honest at least with our closest friends/family it would "maybe" help them be a lot less intrusive with their questions. I keep thinking of all those things they say to us, the "things NOT to say to an Endo girl". On the other hand, do we really need to discuss our personal Bowel habits with acquantices... I sure hate having to tell anyone that's what's wrong. BUT I want to be proactive with education but some how without exposing myself. I guess I will continue to try and be bold with education without cringing from the "girly parts" of the conversation. If we had ovarian cancer or cervical cancer do you think it would be okay to talk about girly stuff?
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Post by Heather on Aug 22, 2011 14:27:00 GMT -5
Breast cancer is considered a girly disease (even though men can get it, but hey men can get endo as well), but no one seems to have a problem talking about that. Maybe it's because everyone loves boobs? I mean who doesn't?
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