FRUSTRATION!!!!!!!!

[holly]

I am beyond frustrated....I am tired if living with this disease and it's only getting worse I feel like people don't look at it like a real disease! After having a fairly reasonable month last month this month my period is here and worse then ever!!!! My bottom hurts I can't sit down my stomach aches I can't eat and stand straight up. My cramps are so bad and my flow so heavy I can't move, and the fatigue is debilitating, I still pushed myself and went to work (a few hours late)and came home to what was my husbands day off to find he had gone into to work that was 13 hours ago, I had to make 2 30min. trips to the kids school to get them each (at different times) and find something to feed them, help with homework, deal with all of our animals myself all when I can't even stand! He knows how much pain I am in? I am so angry right now~I feel really let down! Why is there no rhyme or reason with my cycles, one month they are live-able this one is not, I can't do this every month~ I am supposed to work tomorrow I have to be there, it isn't a choice! Why is this so hard? I feel like a sh*tty mom to boot!!!!

[JC]

This disease is tough, it's awful what some women with endometriosis have to suffer with. And people assume that since they can't see it, it's not a big deal.
I'm going to give you a link to an article writen by an OBgyn. This doctor explains what it's really like to have endometriosis and I swear, he really captures what we really go through. I think it's a good article to share with friends/husbands/family... etc to give them and idea of what you feel. It's an excellent article:
www.vitalhealth.com/blog/endometriosis/what-it-really-means-to-have-endometriosis/

[Karen]

Aw, hugs girl!

[Tamela]

I totally understand your frustration. I have mostly bearable periods and then BAM --- one from hell. I never know month to month what my period is going to be like and I get so nervous about seven days before my period is due wondering if this one is going to kick my butt. I hate it. And the worst part is, even if it's bad, I still gotta pretend everything is fine. Still gotta go to work and live my life. Sometimes though you just gotta say "screw it" and stay home, rest and take care of yourself!!

[pretty]

I think my hubby is just about as caring as he is capable of. I try to set a precedent of being very sympathetic to HIS pain (and he has a LOT of it, has a broken back, cluster headaches, and broken neck/head injury issues) which has helped a lot... however I come to see that it's going to be an ongoing issue for as long as I have endo symptoms. I can really see how endo can destroy marriages and families and lives and careers, simply because its invisible, deals with 'girl parts' and people don't know about it. I had to FORCE myself to tell family and friends about my surgery, and learned very fast who is compassionate and who is NOT.
What I tell myself is, every day's a new day, and think of myself as an ambassador of endo, to explain it to people without tearing out my hair (or their hair) lol...

hope it gets easier. sorry it has to be this bad for you. wish you better and better. Pretty

[sunshine78]

I hope you start to feel better, soon. I know it can get really, really REALLY bad, and sometimes, you just feel like the ass-kickings from this disease never stop.

People just don't know what it's like to be in pain, all the time, and how exhausting it is. It really does steal all of your energy, so that even the simplest things are huge pains in the ass.

Are you sure hubby knows how much pain you're in? I have found that, in order for men to understand (or at least, have a better idea) how painful this is, it needs to be put into terms they can understand. Use phrases like "harpoon through the testicle" and "twisting and pulling, until it hurts so badly that you vomit and/or pass out."

I've also found that sometimes, you actually can find people who do understand, or try to.

Hugs,
sunshine