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Post by khop1982 on Aug 26, 2010 2:49:44 GMT -5
From the time I started my period I "cramped" in my right thigh just like my abdominal cramping. By age 18 I started having low back, right hip and right leg pain (i am 45 now). By age 22 or so the pain had moved all the way to my foot/toes and over into my left leg. I had a complete hysterectomy at age 26 but my sciatic nerve pain has never gone away. I filed for and received total permanent disability based on this back pain 9 years ago (although it took 7 1/2 years to get approved). I see from your posts many other women have this pain. I have also seen that endo has been "found" on sciatic nerves. Has anyone else heard of this? Do they actually excise it? Does anyone know of surgeons who perform this surgery?
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Post by ohmandie on Aug 26, 2010 18:55:25 GMT -5
I've heard the same about endo being found on sciatic nerves. And I think that I've heard that it can sometimes be removed. I suffer from sciatic pain as well. Mostly in my low back, hips, thighs and knees. The pain is horrible during my period, so much that I limp. I hope you find a solution! And let us know if you find any interesting info!
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jessa
New Member
Posts: 12
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Post by jessa on Aug 26, 2010 19:56:48 GMT -5
I have the same back, hip,leg, foot pain. I seems to me its a bit worse when the Endo is @ its worst. I feel nuts today I can't even get out of my own way!!!!!!!!! ughhhhhhhhhhhhh!!!
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Post by khop1982 on Aug 27, 2010 0:32:48 GMT -5
I am so sorry you guys are going through this pain too! My pain started out just with my period but then it became more frequent. Now I have dealt with back, hip, leg and foot pain so long I can't remember my life without it. It's an every day part of my life. I would really like to know of any doctors who might be able to remove this from my sciatic nerves. I hope you guys get relief! I will pass on this tip....my pain is concentrated in my buttocks (butt cheeks to be exact). It's almost right in the middle of each butt cheek with the right cheek much more often. I have my husband rub biofreeze on it and then stick his elbow right into the most painful area. He then moves his elbow around clockwise and counter clockwise. This helps me with my pain as well as a narcotic! Hope this helps you guys too! Be sure not to get the biofreeze (or anything like it) on your private areas....it hurts! I have only had it happen once but you don't forget it! lol
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Post by pretty on Aug 27, 2010 1:17:32 GMT -5
Wow how strange. I just wrote out a narrative for my new doc and in it I mentioned that I have a deep aching pain inside my right hip which comes and goes but always in the same spots. I wonder if it's endo, or just me getting older/possibly arthritis type thing? It's not the same piercing pain I get in my tummy, more of a deep achiness. I'll wait and see if the doc asks me about it, maybe it's endo? Sucks to hear how much pain you're in khop... wish there was better understanding of endo too!
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Post by hellsbells on Aug 31, 2010 14:12:54 GMT -5
TENS!
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Post by JC on Aug 31, 2010 15:33:35 GMT -5
I have my husband rub biofreeze on it and then stick his elbow right into the most painful area. He then moves his elbow around clockwise and counter clockwise. This helps me with my pain as well as a narcotic! This sounds a lot like a move used in "Shiatsu." Shiatsu translates to English as "finger pressure" and is a traditional Chinese medicine technique used to treat many different conditions. I read a book on shiatsu and experimented on my husband's back and hip pain and it fixed it! I wonder if shiatsu would help a sciatic nerve problem???
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Post by omaklackey on Aug 31, 2010 20:40:28 GMT -5
My hubby and I both use the pressure point technique for sciatic nerve pain. It can be very effective. When you first start hitting those points in the buttocks for sciatic pain you barely rub your finger across them and you will yelp but as you work them they slowly become better. I have no idea if it would work if the underlying cause was endo but it works for the spasms from over lifting etc.
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Post by khop1982 on Sept 1, 2010 23:02:46 GMT -5
hellsbells....no TENS doesn't work for me. I have tried it multiple times with the first time being over 10 years ago (at least). Pressure point is much more effective. Jenaya I will look into this shiatsu thing. Thanks everyone
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Post by Karen on Sept 2, 2010 6:28:15 GMT -5
Have you heard about pelvic PT? Might be something to consider, too. For me, the relief from adhesion-type pain was well worth it!
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Post by khop1982 on Sept 5, 2010 3:13:56 GMT -5
no what is this pelvic PT?
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Post by Karen on Sept 5, 2010 7:53:05 GMT -5
Here's a whole thread on it, and I've posted about my experiences here: cjlevett.proboards.com/index.cgi?board=alternative&action=display&thread=565 When we're in so much pain all the time, our bodies overcompensate in other ways. PT helps to correct this, and manual manipulation can help stretch out adhesions or even reduce them. It was an incredible feeling, I'd recommend it to anyone and everyone (with a well trained PT, of course)!
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Post by khop1982 on Sept 10, 2010 0:25:11 GMT -5
Karen....I have looked at the thread and I don't think I could do that very easily. I do have a few questions though....does it hurt? I have vaginal pain sometimes. It feels like someone is stabbing me in there. Does it help that?
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Post by Karen on Sept 10, 2010 6:35:48 GMT -5
My pain wasn't so much vaginal as pelvic, but she did do a bit of internal work. There are some PT (at least the first two I saw - the third was trained to do much more externally) that do only internal work and work on getting the pelvic floor muscles internally to relax and release the trigger points. It's all about identifying areas where you have pain and getting them to release or at least calm down.
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Post by lizzylou on Sept 12, 2010 20:40:23 GMT -5
I'm a little late to the party since this was discussed higher up. When I get sciatic pain, I stand with my legs far apart and squat down as far as I can and shift my weight from one side to the other and kind of wiggle my hips around in circles and one way or another, it seems to help unpinch the nerve sometimes.
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