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Post by niecsey on Apr 19, 2010 11:41:50 GMT -5
Hi l had a abdominal hysterectomy 3 weeks today and am experiencing hot flashes and night sweats .. these are the most obvious symptoms, l am still sore from the surgery and tired. Didint know l had endo until surgery when l came round gyny said we would talk about hrt at follow up appointment in May. Before l knew about the endo too the plan was to leave me with 1 ovary l have adhesions and did have a big ovarian cyst... l didnt want to take hrt as my mam died of breast cancer she too took hrt for a few years after her hyster along time ago was just wanting to meet others and how your menopause symptoms are been treated. Thanks ladies x
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Post by endopaused on Aug 8, 2010 17:25:17 GMT -5
I see this was posted a while back but... just in case. I'm post hyster, no ovaries, no HRT's. LOTS of ice water by the bed for the night sweats is the best natural treatment I like so far (just a personal opinion of course) as well as during the day. They do slow down after a while, around six months or so they start tapering off a little.
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Post by Karen on Aug 8, 2010 19:45:04 GMT -5
Hot flashes are withdrawal symptoms of estrogen and eventually are supposed to even out, though I suppose everyone is different.
BTW - There's a HUGE difference between traditional HRT and bio-identical HRT, so don't lump them together with the same risk factors. Women with endo have to be careful with any sort of HRT, but if you have a qualified doc that knows the ins and outs, it may be helpful to get your body back in balance.
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Post by endopaused on Aug 13, 2010 13:29:16 GMT -5
There are many of us on Hyster sisters who had hysters and are surviving the Menopause HRT Free. It really is possible. I see a lot of people on here are into natural remedies and the side effects of no HRTs (like bone loss, etc) can be partially managed by vitamin therapies and such like. You may want to check out Hyster sisters about the NO HRTs and the suggestions for treatment.
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Post by omaklackey on Aug 17, 2010 19:07:04 GMT -5
we tried an antidepressent for about six months to deal with the post hyster depression, I'm on Vit. D, calcium, to deal with any bone loss issues due to the lack of estrogen and I'm not taking any HRT's because of the risk of Endo growing back. I actually really like not being on any HRT's. The hot flashes are managable most of the time. I get them the worst at night or when I get nervous. I keep an insulated water bottle filled with ice and when the flashes get bad I drink it to cool off. It works pretty good.
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Post by khop1982 on Aug 28, 2010 14:01:25 GMT -5
I had a hysterectomy 19 years ago and my hot flashes have never stopped.
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Post by omaklackey on Aug 28, 2010 21:53:12 GMT -5
Also a lot of post surgical menopausal women find relief in Progesterone cream. I have a very good friend that was PCOS and had a hyster about 11 years ago. She uses Progesterone cream to manage her symptoms and likes it. She tells everyone about it. I'm just trying the no HRT's because I like it.
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lisa6
Junior Member
Posts: 73
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Post by lisa6 on Nov 5, 2012 10:58:28 GMT -5
Just had a total hysterectomy with removal of both ovaries on 10/31/12. My left ovary was infested with endo as well as 2 spots on the outer uterine wall. Also, had adenomyosis and tested positive for mild IC. I went to Dr. Koh in Milwaukee. He wanted to put an estrogen patch on me immediately and I told him no. He told me there is no difference between compound estrogen and bio-identicals. I still refused because I honestly don't know much except to wait 3 months. Anyway, I would like to know how I find a qualified doctor who deals with Bio-identicals. My husband is concerned I'm now at risk for dementia, but I'm afraid to even consider estrogen with the endo. So far, so good, but it's only been 5 days.
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Post by omaklackey on Nov 5, 2012 14:29:38 GMT -5
I would highly recommend going to Hyster sister and the hormone jungle forum. here is the link: www.hystersisters.com/vb2/forumdisplay.php?f=5. This link is for surgical menopause (no ovaries) and Yes you want HRT. It has a lot of great information. I'm one of only a very few on Endo Resolved that is a current active member that is in surgical menopause and I'm currently trying experiments with HRT but I don't know a lot about it. I have been going to Hyster sisters for my information as they are accurate and have lots of experienced people on there.
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Post by Karen on Nov 5, 2012 18:57:31 GMT -5
That's a really good suggestion, Omak! In terms of hormones, compounded/bio-identical IS different than premarin and others because it can be prescribed at a dose that is perfect for YOU and isn't just a standard dose. With hormones, there's a tendency for more damage if you're not given exactly what your body needs. Too much or too little and your hormones can become out of balance, creating even more problems. And if you're going to supplement with hormones, I'd highly recommend getting your hormone levels tested before and throughout supplementation. I'd highly recommend finding a doctor that works with bio-identical hormones and knows how to customize them. If you don't know who that would be, find a local compounding pharmacy and ask them which doctors prescribe through them - that's the easiest way to find a referral. I go through www.womensinternational.com. They're based in WI but serve the entire US, though there may be others in your area. I hope you're recovering well!
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lisa6
Junior Member
Posts: 73
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Post by lisa6 on Nov 5, 2012 22:44:41 GMT -5
Thanks for the responses. Omak- I'm already on hystersisters and getting much info. That's why I was adamant to wait 3 months before starting HRT. So much helpful info and I received my booklet today too with a coupon for the MyETpatch. Gotta look into that more.
Karen- even in a drugged up haze, when he told me they are the same I said "oh really?" and wished you were there! I went to the site you recommended and requested info. I was amused to see on the home page the story about the Massachusetts company because Dr. Koh made me promise to make sure the lab wasn't near a dumpster. I didn't know what he was talking about but he and the nurse had a good laugh. I'm doing my homework but find myself frustrated and confused, then I sleep and start over.
Am I right about waiting 3 months due to the endo or have I botched that?
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Post by omaklackey on Nov 6, 2012 0:08:10 GMT -5
I have heard that some doctors suggest waiting, others do not. Mine wanted me to wait and then I refused to go on them after his "six month" suggested wait. Of course four years later I have been having some issues that needed hormones to fix, ie. dry vagina, painful sex, lose of libido and so I went on them very, very reluctantly. So it really is doctor preference.
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Post by Karen on Nov 14, 2012 22:45:02 GMT -5
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lisa6
Junior Member
Posts: 73
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Post by lisa6 on Nov 30, 2012 10:47:19 GMT -5
Thanks for the link Karen. I was able to find a doctor in my area and have an appointment on Dec. 18. I'll be 7 weeks post-op.
The hot flashes and night sweats are starting to become a pain, so I know I need something. I started drinking iced sage tea (which has an immediate cooling affect) and adding yams to my daily diet. Everything I read about natural menopause solutions says to take soy, but my understanding is that unfermented soy can cause your thyroid gland to stop working. Does anyone have input, either way? I'm really confused about this.
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